Narcolepsy research study

Common Questions and Answers about Narcolepsy research study


Avatar n tn The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
Avatar m tn First of all, I'm sorry the doctor who ordered your testing didn't go more in depth in explaining the results to you. The information I'm going to give you here is based strictly upon the diagnostic criteria for different conditions; doctors use a combination of test results and diagnostic guidelines AND clinical expertise to reach diagnosis and treatment decisions, so there is no guarantee that this information pertains to your case in particular.
Avatar f tn In my first sleep study, I came in for a night study and then stayed the next day for the daytime study (5 naps). The second study was only done during the day. The second study only consisted of 4 studies because they said it was clear I had narcolepsy and there was no use in doing the last nap. Now, I don't know how people with narcolepsy usually sleep at night, but once I am asleep I am pretty much 'dead.
Avatar f tn Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
Avatar m tn Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.
Avatar f tn Sleep paralysis is a very common feature of narcolepsy. How old are you? I was convinced I had narcolepsy when I went but I ended up having periodic limb movement disorder. It's where you kick your legs and move your arms all night long. Every time I would get into REM, I would kick my legs or move my arms and it would jerk me out of it. That's what caused me to remember my dreams vividly. I would wake up mid REM cycle.
1764925 tn?1370785147 There is more of REM sleep in your nighttime sleep study; hence the doctors have tried to rule out narcolepsy, which causes excessive sleepiness. Narcolepsy is characterized by excessive day time sleepiness, sleep paralysis, cataplexy where the person has episodes of loss of muscle function while awake, hypnogogic hallucinations and automatic behavior.
535822 tn?1443976780 New research reported by Reuters reveals that whooping cough outbreaks are HIGHER among vaccinated children compared with unvaccinated children. This is based on a study led by Dr. David Witt, an infectious disease specialist at the Kaiser Permanente Medical Center in San Rafael, California. As Reuters reports: (
Avatar n tn ve been reading about narcolepsy, and although my sleep study did not indicate anything about it, I find one of its symptoms prevalent in my experience. Often, I seem to dream right when I fall asleep - not after the 90 minutes it's supposed to take to reach REM. I know this is true because sometimes I'll wake up only about a half hour after falling asleep, having already dreamt. Does anything other than narcolepsy cause this?
500453 tn?1210676097 t become readily apparant, he can request an overnight polysomnogram (sleep study). A sleep study will show if you have sleep apnea, narcolepsy, catapexy and other sleep disorders. I had terrible fatigue which I thought was related to depression. After three psychiatrists and numerous medications, my last shrink asked me about my sleep. I had known for over 20 years that I have apnea just from my own observation. Well, apnea side effects include fatigue and depression.
Avatar f tn Ideally you would have an overnight sleep study followed by an all day nap study to be assessed for narcolepsy. It is possible to have other sleep disorders that result in symptoms that mimick narcolepsy. That happened with me. I may still have a mild case of narcolepsy, but the worst of the symptoms have responded to treatment of the other disorders. I personally would want to know if I was in danger of having a sleep attack and hurting myself or someone else.
Avatar f tn I have to do a sleep study next month to see if I have narcolepsy..... that is actually what introduced me to this site, I am doing a sleep journal. I did not realize until last night how many dang times I wake up at night. My doctor mentioned Ritalin. I am so worried about taking meds, I am so close to getting my 8 year old off Ritalin by going organic. I am also finding it oh so hard to keep up with 2 boys that are very high in energy.
Avatar f tn The sleep doctor who diagnosed his narcolepsy can answer this based on the sleep study that was performed for the diagnosis. Dr.
Avatar n tn You might want to inquire about having a full sleep study to rule out sleep apnea and/or narcolepsy. The sleep paralysis, hallucinations, and daytime sleepiness are hallmarks of narcolepsy. Narcolepsy isn't just suddenly collapsing in a state of sleep. I tell you this not as a medical professional, but as a person with narcolepsy. Best wishes.
Avatar m tn John, After "sleeping on it," I have some other thoughts for you. Have your doctors tested for hormonal and/or vitamin and mineral imbalances that could contribute to your fatigue? I'm thinking of everything from thyroid and adrenal issues, to paraneoplastic syndromes, to antinuclear antibodies for autoimmune disorders, to vitamin/mineral/electrolyte imbalances (esp B vitamins, anemia, or hypokalemia). I think your intuition that a second sleep study could be helpful is spot-on.
Avatar f tn // She has a hard time staying awake during the day without medication. This is called type 2 narcolepsy as well. My sister in law as I said takes medication that allows her to be functional during the day and go to work and drive and all of that important stuff.
Avatar f tn Does anyone know of a research study starting soon in Austin? I've never had treatment before and I am a Genotype 1a. I'd really appreciate any information anyone has for me. Thanks and May God Bless You All!
Avatar f tn He said he wants to do some more testing on me, an EEG and a nap study, as well... to make sure nothing else is going on... since usually with narcolepsy, you're sleepy all the time, and I am not. So, I was just wondering if this is just something that may be connected to chiari. I was diagnosed last year with trigeminal neuralgia and occipital neuralgia, after being is such severe pain forever... and neuro after neuro not wanting to believe me. I kept being diagnosed with a migraine.
Avatar f tn Have you consulted the sleep specialist to get the sleep study? Hope you have got lot of information on the narcolepsy. Thanks to mastkids for having shared his experience and valuable thoughts. Hope you too are able to get adequate sleep and following up with your doctor. Here are few aspects of the treatment and hope you follow few tips. Ref: Share your thoughts and keep updating. Take care.
Avatar f tn I only know that when Jules got the diagnosis of Narcolepsy/Cataplexy I looked up whether they were associated with MS and saw that there were several reports of people with MS having the two. But, now I have seen the new study that shows that narcolepsy is an autoimmune disorder, so I do not know how to answer your question.
Avatar m tn Murph65 is right on. Proper diagnosis of narcolepsy requires a specific type of sleep study, but it's not something your family doctor will administer. Suggest to your doctor a referral to a sleep specialist, who can handle the sleep study. This is the only way to be sure. Good luck!
Avatar f tn At 16, my daughter finally had a sleep study. She met the criteria for narcolepsy. What I find puzzling is that her sleep problems were already there in infancy. She did not sleep excessively at first -- just very erratically, in short pieces of time. Even at 6 months old I could put her on her back and she would suddenly be asleep for 5-15 minutes (in the middle of an activity). 1- Can a BABY have narcolepsy?
Avatar f tn i sent you a message I am just getting the hang of this and I have narcolepsy would definitely like to chat
Avatar m tn After months of this happening I went to a sleep Dr and had a sleeo study done, they informed me of what I had and that my tonsils were blocking my airways. After getting my tonsils removed my sleep problems got a lot better, although I always talk in my sleep. When I started getting older I began seeing things, I would be asleep with my eyes open and see the ceiling falling on me, babies falling from curtains, and sometimes people in my room.
Avatar f tn I was diagnosed with narcolepsy at age 25, took adderall ufor 5 yrs. then stopped for 1 yr to become pregnant. I took pro vigil for appr. 6,so. W/0 any help, des. Increased med and it sent me into violent emotions. I have had a recent MRI because of headaches. I need hello. I don't want the diagnosis of narcolepsy but I can't live like this.