Narcolepsy research center
Common Questions and Answers about Narcolepsy research center
narcolepsy
See a sleep center. Recurrent "Bells Palsy" is actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
See a sleep center. It sounds like narcolepsy. I had the same problems you did, and viruses can actually cause narcolepsy.
I went undiagnosed for about 15 years, until I finally saw a sleep specialist and she nailed the diagnosis right away. The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it. 75% of people with narcolepsy never get diagnosed in their lifetime.
See a sleep center. It sounds like narcolepsy. Viruses can actually cause it.
I went undiagnosed for about 15 years, until I finally saw a sleep specialist and she nailed the diagnosis right away. The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it. 75% of people with narcolepsy never get diagnosed in their lifetime.
It doesn't look the way you think it looks.
You need to find a sleep center with expertise in narcolepsy where you can be evaluated and treated.
Dr.
I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since,
nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy,
and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't
believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch
my doctor, but in the meanwhile, I have been more tired lately than usual.
See a sleep center. Recurrent "Bells Palsy" is actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
a href="/posts/Eye-Care/Lazy-eye-lid-smaller-eye---residuals-from-bells-palsy/show/932713">Lazy eye-lid/smaller eye - residuals from bell's palsy</a>.
See a sleep center. Recurrent "Bells Palsy" is actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
Been diagnosed with CFS by Dr. Black from Hunter Hopkins Center, which I feel very blessed to have had the opportunity to be treated by her. She is a wonderful doctor as well a wonderful person.
Recently had a sleep study and a MSLT nap study the following day. This was my 4th sleep study and they all have indicated the inability to get Stage 3 or 4 sleep (less than 5 min. per night).
See a sleep center. It sounds like narcolepsy. Viruses and some vaccines can actually cause it.
I went undiagnosed for about 15-20 years, until I finally saw a sleep specialist and she nailed the diagnosis right away. The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it. 75% of people with narcolepsy never get diagnosed in their lifetime.
I have been nodding off during the day, sometimes for a few seconds, sometimes it lasts an hour. He is saying maybe narcolepsy, and I am headed to a sleep center on thursday, night test for sleep apnea, and day test for the narcolepsy. My right leg and feet swell. My leg has been swollen for over 2 weeks now, he has no clue what is causing that. :( Plus it seems like every week, something new is going on with me.
See a sleep center. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (especially the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Common misdiagnoses are depression, epilepsy, and migraines.
Bell is caused by a virus - as close as they can tell but it also only lasts a few days. I believe the two events to be unrelated or else everyone with bells would be immunized for the flu as a cure.
See a sleep center. It sounds like narcolepsy. Viruses and some vaccines can actually cause it.
I went undiagnosed for about 15-20 years, until I finally saw a sleep specialist and she nailed the diagnosis right away. The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it. 75% of people with narcolepsy never get diagnosed in their lifetime.
Flu shots and viruses have been known to cause what looks like Bells Palsy, but is actually a manifestation of cataplexy (random muscle weakness or paralysis which can be widespread or isolated) which happens in narcolepsy, which flu shots and viruses have been known to cause. Most recently, the H1N1 vaccine caused a swath of narcolepsy cases. 75% of people with narcolepsy never, ever get diagnosed in their lifetime.
See a sleep center. Recurrent "Bells Palsy" is actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
See a sleep center. It sounds like narcolepsy with cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate it, but it can happen seemingly in random fashion, too.
I went undiagnosed for about 15-20 years, until I finally saw a sleep specialist and she nailed the diagnosis right away. The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it.
Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include-
Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.
About a year ago, I had a flu-like illness (fever, chills, body aches) and I went to an Urgent Care Center and was given TamiFLU, although I was not swabbed for the flu. The next week I woke up to get ready for work, but when I stood up I fell straight to the ground from severe dizziness. My vision seemed blurry and double, I had a low grade fever (100.3F), nausea, and a debilitating headache erupted.
Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!
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