Narcolepsy research institute
Common Questions and Answers about Narcolepsy research institute
narcolepsy
Hi there, I just received a request to participate in a study sponsored by The Cancer Institute of New Jersey & Memorial Sloan-Kettering Cancer Centre. I was contacted because I am on the NJ State Cancer Registry. Wow, how depressing!
Anyway, this research is looking into Diet and Lifestyle links to Ovarian Cancer Risk and includes a genetic test too.
I am going to join up. Hopefully this will help somehow and give a bit more meaning into my having OVCA.
If diagnosed with narcolepsy, and regulated and controlled with Meds can I still do whatever job? I want to be an under water welder, and I'm worried that once I get the diagnosis I won't be able to do the job I really want to do.
Hey Guys, I work in the medical field of research and there is a Brand New Reseach break thru that may Stop Herpes in it track and give millions of people now and in the future relieved.
They can use our help for full development to be completed and clinical trials. Below is website from Harvard to check out then get the word out to everyone,companies,clinics and television.
To facilitate and advance patient care
Research the pathophysiology of neuro-immune diseases such as ME/CFS, fibromyalgia, atypical MS, and autism
Develop therapeutics, diagnostics and prevention strategies for this spectrum of diseases
To advance and support medical education and physician training
To find out more about this research institute, visit: http://www.wpinstitute.
Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include-
Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.
NIH, the nation's medical research agency, includes 27 Institutes and Centers and is a component of the U.S. Department of Health and Human Services. NIH is the primary federal agency conducting and supporting basic, clinical, and translational medical research, and is investigating the causes, treatments, and cures for both common and rare diseases. For more information about NIH and its programs, visit www.nih.gov.
Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!
When Somebody alerted getting back to normal and sometimes not. But this is not narcolepsy as he having NO SLEEP when no study at morning or physical work. Also during studies Pain @ neck area due to stiffness and may be neck tension or stress. These all making him unable to study and prosper well. Having memory loss to some extent of studied material. These all symptoms from last 12 years.
The problem shown to NIMHANS in Bangalore, India (Big neurological institute).
This is known as narcolepsy, there are treatments for it, so perhaps you can do some research on that topic and see if it matches up with you, and also the info sites will tell you the kind of doctor who is best equipped to help you with this. Sorry I don't know much more than that.
I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since,
nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy,
and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't
believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch
my doctor, but in the meanwhile, I have been more tired lately than usual.
Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder.
Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!)
Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
Unfortunately the only way you can change you facial muscles in excercise, that took me years to figure out!! There seems to be little research into bells palsy as no one seems to know the cause. Did you have an epidural? If yes I think you may not have 'bells palsy' but damage to the nerves caused by medical negligence. I have researched this for 11 years and although only a lay man with no medical training I believe you need to demand some answers.
there is a woman that has visual lasting effects and has spoken publicly....here is a link to some of her info I am sure with more research u can find more info regarding her and the condition. http://en.wikipedia.
s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.
I've never really heard much about mycoplasma infections. (And I'm a nurse.)
I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!
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