Narcolepsy research institute

Common Questions and Answers about Narcolepsy research institute


535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
535822 tn?1443976780 New research reported by Reuters reveals that whooping cough outbreaks are HIGHER among vaccinated children compared with unvaccinated children. This is based on a study led by Dr. David Witt, an infectious disease specialist at the Kaiser Permanente Medical Center in San Rafael, California. As Reuters reports: (
698408 tn?1256958348 P) to bipolar research and there are a number of research projects being funded out of that, not sure if this is one but there is a focus on this research now in AU thanks to the diagnosis of a high profile footballer as BP and in Australia if it affects a sportsperson its MUST be vital...
1680869 tn?1304912217 A CT scan this month found chiari 1 (in Israel). I am due for an MRI but want to coordinate this with a specialist like this chiari institute (at my first thought). I found someone's post about the Chiari Institute - anyone have information about costs for the evaluation, information about their evaluation experience or anyone on one of those research trials through the universities? I have had almost a month of lower head pain, mild nausea,etc.
Avatar f tn Hi there, I just received a request to participate in a study sponsored by The Cancer Institute of New Jersey & Memorial Sloan-Kettering Cancer Centre. I was contacted because I am on the NJ State Cancer Registry. Wow, how depressing! Anyway, this research is looking into Diet and Lifestyle links to Ovarian Cancer Risk and includes a genetic test too. I am going to join up. Hopefully this will help somehow and give a bit more meaning into my having OVCA.
Avatar f tn If diagnosed with narcolepsy, and regulated and controlled with Meds can I still do whatever job? I want to be an under water welder, and I'm worried that once I get the diagnosis I won't be able to do the job I really want to do.
167426 tn?1254086235 Newswise — A protein that stimulates blood vessel growth worsens ovarian cancer, but its production can be stifled by a tiny bit of RNA wrapped in a fatty nanoparticle, a research team led by scientists at The University of Texas M. D. Anderson Cancer Center reports in the Journal of the National Cancer Institute. "The protein interleukin-8 (IL-8) is a potential therapeutic target in ovarian cancer," said senior author Anil Sood, M.D., professor in the M. D.
Avatar n tn Hey Guys, I work in the medical field of research and there is a Brand New Reseach break thru that may Stop Herpes in it track and give millions of people now and in the future relieved. They can use our help for full development to be completed and clinical trials. Below is website from Harvard to check out then get the word out to everyone,companies,clinics and television.
1068968 tn?1256169388 In doing my research I found this doctor in Long Island, NY who hasn't shown up on any of the lists here. I actually found her because I found a research study she did on Chiari and did a search of her name. I just thought people would like to check her out. She does peds and adults and is an expert on Chiari.
Avatar f tn To facilitate and advance patient care Research the pathophysiology of neuro-immune diseases such as ME/CFS, fibromyalgia, atypical MS, and autism Develop therapeutics, diagnostics and prevention strategies for this spectrum of diseases To advance and support medical education and physician training To find out more about this research institute, visit: http://www.wpinstitute.
Avatar f tn Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include- Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.
Avatar m tn NIH, the nation's medical research agency, includes 27 Institutes and Centers and is a component of the U.S. Department of Health and Human Services. NIH is the primary federal agency conducting and supporting basic, clinical, and translational medical research, and is investigating the causes, treatments, and cures for both common and rare diseases. For more information about NIH and its programs, visit
Avatar f tn Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!
1630419 tn?1299714661 Has anyone heard of ** The Chiari Institute** in Great Neck New York? There is a lot of information on this site for those of you who need to learn more info. This site is by far the best website I've found on CM! and other Chiari situations. I hope you find this site as usefull as I have.
589816 tn?1332976771 Recently the whooping cough vaccine has been shown to be the cause of an outbreak of Narcolepsy in children , do some research there was a report done on findings recently ..
Avatar m tn When Somebody alerted getting back to normal and sometimes not. But this is not narcolepsy as he having NO SLEEP when no study at morning or physical work. Also during studies Pain @ neck area due to stiffness and may be neck tension or stress. These all making him unable to study and prosper well. Having memory loss to some extent of studied material. These all symptoms from last 12 years. The problem shown to NIMHANS in Bangalore, India (Big neurological institute).
Avatar n tn This is known as narcolepsy, there are treatments for it, so perhaps you can do some research on that topic and see if it matches up with you, and also the info sites will tell you the kind of doctor who is best equipped to help you with this. Sorry I don't know much more than that.
Avatar f tn I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.
Avatar f tn Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
Avatar n tn Unfortunately the only way you can change you facial muscles in excercise, that took me years to figure out!! There seems to be little research into bells palsy as no one seems to know the cause. Did you have an epidural? If yes I think you may not have 'bells palsy' but damage to the nerves caused by medical negligence. I have researched this for 11 years and although only a lay man with no medical training I believe you need to demand some answers.
Avatar n tn there is a woman that has visual lasting effects and has spoken is a link to some of her info I am sure with more research u can find more info regarding her and the condition. http://en.wikipedia.
Avatar f tn s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.
Avatar f tn I've never really heard much about mycoplasma infections. (And I'm a nurse.) I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!