Narcolepsy research cure

Common Questions and Answers about Narcolepsy research cure

narcolepsy

Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
Avatar m tn Here is one optimistic news about the ongoing research to find a cure for hbv. "Tavis, who is professor of molecular microbiology and immunology at Saint Louis University, says his team has built a warhead that will kill the virus; now, it's time to design a cruise missile that will deliver the drug." http://www.eurekalert.org/pub_releases/2015-12/slu-ngs121415.
Avatar f tn Hey. Keep your head up, there's a lot you can do to work with this. Feeling defeated and depressed comes along with a sleep disorder, I know. I'm just a couple years younger than you. The same things happened to me. I was so smart but all my grades started falling because I could never get anything done. Everyone thought I was just lazy- I thought I was just lazy. But I was tired all the time and unmotivated. See a sleep specialist.
Avatar f tn I was reading up about it and this lead me to read about Narcolepsy as Cataplexy is a unique symptom to this condition. I read about the symptoms and I am now afraid that I may be suffering from it. I have very vivid and sometimes lucid dreams and I wake up almost every hour of the night for short spans of time. Sometimes I cannot tell my dreams from reality and I often hear noises and see things during the night that aren't really there.
Avatar m tn I would re-explore the cardiac diagnosis. When your doctor said "a little off beat" what did he mean. If you have any valve problems they could get progressively worse. Certain drugs can induce this kind of problem. Any kind of amphetamine (whether legal or not) would be very detrimental in your case.
Avatar f tn Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include- Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.
Avatar f tn Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!
Avatar n tn depends on test! the focus alissa test has a problem w false positives under 3.5 some people even were telling me 3.0. if they had a pcr culture done its almost a def. yes! there sitll needs to be conformation testing otherwise. in the u.s they say they are working on a cure but a country outside of the u.s.
612876 tn?1355514495 So anyone else out there who is having that same problem of being paralyzed when they come out of the syncope, I would encourage you to at least consider consulting a sleep specialist to have narcolepsy ruled out. There is no cure, but he said there are treatments they can try for it. At any rate, it's reassuring to have an explanation for something that has been so scary and difficult to explain, and that some doctors have treated me like a nut for.
Avatar f tn her findings, which raise the possibility that an inexpensive, readily available drug might effectively treat Type 1 or juvenile diabetes, challenge widespread assumptions. Many diabetes researchers insist that a cure lies instead in research on stem cells and islet cell transplants. Dr. Faustman's story, scientists say, illustrates the difficulties that creative scientists can have when their work questions conventional wisdom and runs into entrenched interests.
589816 tn?1332976771 Recently the whooping cough vaccine has been shown to be the cause of an outbreak of Narcolepsy in children , do some research there was a report done on findings recently ..
Avatar n tn This is known as narcolepsy, there are treatments for it, so perhaps you can do some research on that topic and see if it matches up with you, and also the info sites will tell you the kind of doctor who is best equipped to help you with this. Sorry I don't know much more than that.
Avatar f tn I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.
Avatar f tn no, i don't think it makes sense. taking a pill everyday exposing my body to chemicals and irritating my stomach even further, as i cannot take any medication without stomach upset, makes no sense to me. i also don't believe in supporting these drug companies so that they never want to come up with a cure. there's no money in finding a cure.
Avatar f tn Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
467579 tn?1289402969 I am finding that most Dr.'s on this subject to just not be there. Maybe because emphysema is such a politically incorrect disease to have, even if it has nothing to do with smoking or who knows.
Avatar n tn Unfortunately the only way you can change you facial muscles in excercise, that took me years to figure out!! There seems to be little research into bells palsy as no one seems to know the cause. Did you have an epidural? If yes I think you may not have 'bells palsy' but damage to the nerves caused by medical negligence. I have researched this for 11 years and although only a lay man with no medical training I believe you need to demand some answers.
Avatar m tn See a sleep center. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar n tn there is a woman that has visual lasting effects and has spoken publicly....here is a link to some of her info I am sure with more research u can find more info regarding her and the condition. http://en.wikipedia.
Avatar f tn s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.
535822 tn?1443976780 New research reported by Reuters reveals that whooping cough outbreaks are HIGHER among vaccinated children compared with unvaccinated children. This is based on a study led by Dr. David Witt, an infectious disease specialist at the Kaiser Permanente Medical Center in San Rafael, California. As Reuters reports: (http://www.reuters.com/article/2012/04/03/us-whoopingcough-idUSBRE832...
Avatar f tn I've never really heard much about mycoplasma infections. (And I'm a nurse.) I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!