Narcolepsy research stanford

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narcolepsy

87972 tn?1322661239 top of page Department of Medicine, Division of Infectious Diseases and Geographic Medicine, Stanford University School of Medicine, Stanford, California 94305, USA. Department of Medicine, Division of Gastroenterology and Hepatology, Stanford University School of Medicine, CCSR 3115A, 269 Campus Drive, Stanford, California 94305, USA. Department of Bioengineering, Stanford University and Howard Hughes Medical Institute, Stanford, California 94305, USA.
535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
1559533 tn?1308948561 Back to Stanford I go, since all I could get out of Fresno is that its just anxiety. They can sort through the mess and maybe they will do a lip biopsy to rule in or out sjogrens. I have most recent MRI's to take with. I will keep you all updated since this is the one place I found intelligent people that seem to care. Thanks everyone for all your input, its what has kept me going.
Avatar m tn I was hospitalized with so much pain and was released from Stanford hospital saying I had Chiari Malformation 8! Saw another NS and said it was really only a 3 or 4 and that I was not bad enough to need surgery. Two years later I'm still suffering with neck pain, headaches, dizziness every time I stand from sitting, body weakness, pressure in my head, and fullness and pressure in my ears, I'm not myself anymore. Some days are worse than others, but every morning starts the same way.
Avatar f tn I am currently seeing a physician at the Stanford Eye Institute but am thinking of changing physicians since I am now losing some vision due to my dry AMD. thanks! Any info would be appreciated.
Avatar f tn Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include- Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.
Avatar f tn Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!
589816 tn?1332976771 Recently the whooping cough vaccine has been shown to be the cause of an outbreak of Narcolepsy in children , do some research there was a report done on findings recently ..
Avatar n tn This is known as narcolepsy, there are treatments for it, so perhaps you can do some research on that topic and see if it matches up with you, and also the info sites will tell you the kind of doctor who is best equipped to help you with this. Sorry I don't know much more than that.
Avatar f tn I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.
1309256 tn?1273509406 I seen a docter at Stanford, felt ok about the consulation, but didn't get alot of info, and was told Surgery would be the only help for me. I am looking for anyone who has had surgery at Stanford with Dr. Dodd. I am trying to decide if I am ready for surgery and see how it went for someone at stanford and how there results are. I am diag with the Chiari Malformation type 1 with slight Sygromyelia. But The Sygromyelia is to small to operate on.
Avatar f tn Welcome ! So many of us here will be able to relate to your post. I know I can. Stress will make your symptoms worse, so I hope that you are able to somehow manage your stress and I do wish you the BEST with your wedding. You might want to consider treating yourself to a couple of massages beforehand. If you can't financial afford it (with the wedding costs and all)... you may want to try calling the massage schools in your city and finding out what their prices are.
19403315 tn?1479766630 Dear Empty Nose Syndrome patients, Empty Nose Syndrome (ENS) is a complex condition that we, Dr. Thamboo and Dr. Nayak, at Stanford University have a strong interest in understanding. With your help, we aim to help decrease the number of ENS sufferers in the world through rational treatments and education. Your answers to the following questions in this questionnaire will help us assess some of the basic physiologic and geographic associations to ENS, and its impact on quality of life.
Avatar f tn Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
Avatar n tn Unfortunately the only way you can change you facial muscles in excercise, that took me years to figure out!! There seems to be little research into bells palsy as no one seems to know the cause. Did you have an epidural? If yes I think you may not have 'bells palsy' but damage to the nerves caused by medical negligence. I have researched this for 11 years and although only a lay man with no medical training I believe you need to demand some answers.
Avatar n tn there is a woman that has visual lasting effects and has spoken publicly....here is a link to some of her info I am sure with more research u can find more info regarding her and the condition. http://en.wikipedia.
Avatar f tn s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.
535822 tn?1443976780 New research reported by Reuters reveals that whooping cough outbreaks are HIGHER among vaccinated children compared with unvaccinated children. This is based on a study led by Dr. David Witt, an infectious disease specialist at the Kaiser Permanente Medical Center in San Rafael, California. As Reuters reports: (http://www.reuters.com/article/2012/04/03/us-whoopingcough-idUSBRE832...
Avatar f tn I've never really heard much about mycoplasma infections. (And I'm a nurse.) I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!
596605 tn?1369946627 I will travel anywhere to get a proper assessment and treatment plan. How do I research and find the right type of doctor given my history? I have already brought this issue up with my neuroendocrinologist who referred me to a headache doctor who had no real plan other than Topamax (which caused me to experience vision problems) and all of the usual Migraine lifestyle stuff that I've tried and does not do anything.
Avatar f tn Narcolepsy! i am a 28 year old male who literally just started having the exact symptoms you described about 8 months ago. After several test and doctors visits i was diagnosed with sever narcolepsy, with catalepsy. Its common for the symptoms to come on suddenly between the ages of 15-30. I encourage you to research narcolepsy and if it has the ring of truth go see a neurologist.
Avatar m tn She needs a true chiari specialist to help guide her,....we do have a list of the members Drs for her to use to research to find the Dr just right for her. Also she needs to educate herself as to what the Drs should be doing for her so she knows a good Dr when she meets them...there r related conditions to chiari and they will need to be ruled out. The bells palsy may be something related to her chiari I have heard of someone else that did have it with chiari as well.
Avatar m tn I was diagnosed with Bells Palsy in 2000, and given the same prescription, but with a lot of research and asked the doctor if it could be trigenimal neuralgia. Turns out I did. However, in 2010, I had what seemed like a stroke, but found out this Monday was MS. I had a second seizure and lost sight in my left eye. No bueno. Don't ever settle for what they tell you. You need to always search and ask questions.