Narcolepsy research clinic

Common Questions and Answers about Narcolepsy research clinic

narcolepsy

535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
Avatar f tn Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include- Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.
729135 tn?1247495402 Regarding genetic testing for narcolepsy, positive test results indicate a susceptibility to narcolepsy but do not definatively diagnose narcolepsy. Positive genetic tests results are used to support a clinical diagnosis of narcolepsy. We recommend that you speak with your doctor regarding your symptoms and test results as well as to discuss the most appropriate course of treatment for your specific situation. We wish you the best.
Avatar f tn Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
535822 tn?1443976780 New research reported by Reuters reveals that whooping cough outbreaks are HIGHER among vaccinated children compared with unvaccinated children. This is based on a study led by Dr. David Witt, an infectious disease specialist at the Kaiser Permanente Medical Center in San Rafael, California. As Reuters reports: (http://www.reuters.com/article/2012/04/03/us-whoopingcough-idUSBRE832...
Avatar f tn Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!
589816 tn?1332976771 Recently the whooping cough vaccine has been shown to be the cause of an outbreak of Narcolepsy in children , do some research there was a report done on findings recently ..
Avatar n tn This is known as narcolepsy, there are treatments for it, so perhaps you can do some research on that topic and see if it matches up with you, and also the info sites will tell you the kind of doctor who is best equipped to help you with this. Sorry I don't know much more than that.
Avatar n tn Severe depression can cause someone to be lethargic and stay in bed. Lastly, what about narcolepsy. There is typical and atypical. Both can cause someone to sleep inordinate amounts of time. My sister in law has atypical narcolepsy and she takes medication to keep her up for about 9 hours to go to work and then she is in bed the rest of the time.
Avatar f tn If this has been ruled out, the excessive daytime sleepiness could be due to other disorders like narcolepsy. Adderall is used to treat narcolepsy. It could also be due to idiopathic hypersomnia. Please check with your doctor to rule out these conditions. Hope this helped and do keep us posted.
Avatar f tn I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.
Avatar n tn Unfortunately the only way you can change you facial muscles in excercise, that took me years to figure out!! There seems to be little research into bells palsy as no one seems to know the cause. Did you have an epidural? If yes I think you may not have 'bells palsy' but damage to the nerves caused by medical negligence. I have researched this for 11 years and although only a lay man with no medical training I believe you need to demand some answers.
Avatar n tn there is a woman that has visual lasting effects and has spoken publicly....here is a link to some of her info I am sure with more research u can find more info regarding her and the condition. http://en.wikipedia.
Avatar f tn s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.
Avatar f tn I've never really heard much about mycoplasma infections. (And I'm a nurse.) I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!
Avatar f tn If I was in your position, I would ask my physician for a referral to a sleep clinic. It may Narcolepsy, Obstructive Sleep Apnea due to enlarge tonsils. This is why it will be helpful to get a sleep study done so it can be more accurate to what it may be going on.
Avatar f tn Narcolepsy! i am a 28 year old male who literally just started having the exact symptoms you described about 8 months ago. After several test and doctors visits i was diagnosed with sever narcolepsy, with catalepsy. Its common for the symptoms to come on suddenly between the ages of 15-30. I encourage you to research narcolepsy and if it has the ring of truth go see a neurologist.
Avatar n tn He was not sure I had crps though bone scan suggested it, He was talking about possible synvisc injections in 6 weeks, last resort is an epidural. You see I suffer from narcolepsy/cataplexy and pain triggers off muscle tone loss of total body so even upon inserting the injection I would go limp hear everything but cant move., part of the cataplexy.
1066766 tn?1254995664 have you ever been tested for narcolepsy. Do you get very week after emotions such as laughter, crying. How about (well the term I use for my cataplexy) a form of narcolespy "passing out" only to wake up and not remember what happened. These are some of the few symptoms of my narcolepsy.
Avatar n tn I thought once you made the decision to donate the embies for stem cell research (or anything else), the clinic took it from there.
Avatar m tn She needs a true chiari specialist to help guide her,....we do have a list of the members Drs for her to use to research to find the Dr just right for her. Also she needs to educate herself as to what the Drs should be doing for her so she knows a good Dr when she meets them...there r related conditions to chiari and they will need to be ruled out. The bells palsy may be something related to her chiari I have heard of someone else that did have it with chiari as well.
Avatar m tn I was diagnosed with Bells Palsy in 2000, and given the same prescription, but with a lot of research and asked the doctor if it could be trigenimal neuralgia. Turns out I did. However, in 2010, I had what seemed like a stroke, but found out this Monday was MS. I had a second seizure and lost sight in my left eye. No bueno. Don't ever settle for what they tell you. You need to always search and ask questions.
488264 tn?1226520307 I am in my forties, female, and a nearly lifelong sufferer of sleep paralysis. So many times I have tried to research the problem online, and the general ignorance, lack of interest and false conceptions of this actually quite common condition is disturbing. What annoys me most is when it is connected to anxiety, mental states, youth, etc. I have endured this problem for decades, and it is worsening as I get older.
Avatar f tn //www.sleepfoundation.org/narcolepsy/what-narcolepsy/are-there-different-types-narcolepsy She has a hard time staying awake during the day without medication. This is called type 2 narcolepsy as well. https://www.mayoclinic.org/diseases-conditions/narcolepsy/symptoms-causes/syc-20375497 My sister in law as I said takes medication that allows her to be functional during the day and go to work and drive and all of that important stuff.