narcolepsy research news

ve read those links and it says that Finland was quite concerned as 75% of their kids were vaccinated and 67 of them developed narcolepsy. Bad news for Finland! Maybe it was environmental as well?

Narcolepsy is one of the "approved" diagnosis, but only if you've tried other (cheaper) drugs and couldn't take them. Aren't insurance companies a kick in the pants? Unfortunately, my doc doesn't have samples; I got a coupon from the drug company for a trial prescription. 100 mg. worked great! This will work out, I know it will. If all else fails, there's Ritalin or Adderall, if my heart rate doesn't hit the roof.

I know somebody posted where to go to find out about the research that is going on, and what clinical trials we may be able to get into... but my brain isn't working today and I can't find the post. Somebody please give me that web site. I'd really appreciate it.

Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include- Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.

Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!

Recently the whooping cough vaccine has been shown to be the cause of an outbreak of Narcolepsy in children , do some research there was a report done on findings recently ..

Is the methamphetamine for recreational use? Because then honestly, the length of time to "abstain" would be forever. I use a medication (prescription) for narcolepsy and they are letting me take it right up to the morning of my upcoming surgery. Surgery involves more than just the anesthesia. There is the pain management afterward and there are issues involved if someone is addicted to something like methamphetamine. It's like smoking.

This is known as narcolepsy, there are treatments for it, so perhaps you can do some research on that topic and see if it matches up with you, and also the info sites will tell you the kind of doctor who is best equipped to help you with this. Sorry I don't know much more than that.

I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.

Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".

Unfortunately the only way you can change you facial muscles in excercise, that took me years to figure out!! There seems to be little research into bells palsy as no one seems to know the cause. Did you have an epidural? If yes I think you may not have 'bells palsy' but damage to the nerves caused by medical negligence. I have researched this for 11 years and although only a lay man with no medical training I believe you need to demand some answers.

there is a woman that has visual lasting effects and has spoken publicly....here is a link to some of her info I am sure with more research u can find more info regarding her and the condition. http://en.wikipedia.

s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.

New research reported by Reuters reveals that whooping cough outbreaks are HIGHER among vaccinated children compared with unvaccinated children. This is based on a study led by Dr. David Witt, an infectious disease specialist at the Kaiser Permanente Medical Center in San Rafael, California. As Reuters reports: (http://www.reuters.com/article/2012/04/03/us-whoopingcough-idUSBRE832...

I've never really heard much about mycoplasma infections. (And I'm a nurse.) I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!

Gene therapy has potential, not to recreate lung tissue but to reduce the airway inflammation that results in emphysema, be it smoking-induced or other. Research is underway on gene therapy but the results thus far have been very disappointing. The adaptation to chronic residence at high altitude has been studied extensively. You are correct in stating that bigger lungs have nothing to do with it and that has been well known for nearly 100 years.

Narcolepsy! i am a 28 year old male who literally just started having the exact symptoms you described about 8 months ago. After several test and doctors visits i was diagnosed with sever narcolepsy, with catalepsy. Its common for the symptoms to come on suddenly between the ages of 15-30. I encourage you to research narcolepsy and if it has the ring of truth go see a neurologist.

She needs a true chiari specialist to help guide her,....we do have a list of the members Drs for her to use to research to find the Dr just right for her. Also she needs to educate herself as to what the Drs should be doing for her so she knows a good Dr when she meets them...there r related conditions to chiari and they will need to be ruled out. The bells palsy may be something related to her chiari I have heard of someone else that did have it with chiari as well.

I was diagnosed with Bells Palsy in 2000, and given the same prescription, but with a lot of research and asked the doctor if it could be trigenimal neuralgia. Turns out I did. However, in 2010, I had what seemed like a stroke, but found out this Monday was MS. I had a second seizure and lost sight in my left eye. No bueno. Don't ever settle for what they tell you. You need to always search and ask questions.

I am in my forties, female, and a nearly lifelong sufferer of sleep paralysis. So many times I have tried to research the problem online, and the general ignorance, lack of interest and false conceptions of this actually quite common condition is disturbing. What annoys me most is when it is connected to anxiety, mental states, youth, etc. I have endured this problem for decades, and it is worsening as I get older.

Here is one optimistic news about the ongoing research to find a cure for hbv. "Tavis, who is professor of molecular microbiology and immunology at Saint Louis University, says his team has built a warhead that will kill the virus; now, it's time to design a cruise missile that will deliver the drug." http://www.eurekalert.org/pub_releases/2015-12/slu-ngs121415.

//www.sleepfoundation.org/narcolepsy/what-narcolepsy/are-there-different-types-narcolepsy She has a hard time staying awake during the day without medication. This is called type 2 narcolepsy as well. https://www.mayoclinic.org/diseases-conditions/narcolepsy/symptoms-causes/syc-20375497 My sister in law as I said takes medication that allows her to be functional during the day and go to work and drive and all of that important stuff.

I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?

Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.

Narcolepsy research news

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