Narcolepsy study
Common Questions and Answers about Narcolepsy study
narcolepsy
The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy.
Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
First of all, I'm sorry the doctor who ordered your testing didn't go more in depth in explaining the results to you. The information I'm going to give you here is based strictly upon the diagnostic criteria for different conditions; doctors use a combination of test results and diagnostic guidelines AND clinical expertise to reach diagnosis and treatment decisions, so there is no guarantee that this information pertains to your case in particular.
Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study).
Dr.
Sleep paralysis is a very common feature of narcolepsy. How old are you? I was convinced I had narcolepsy when I went but I ended up having periodic limb movement disorder. It's where you kick your legs and move your arms all night long. Every time I would get into REM, I would kick my legs or move my arms and it would jerk me out of it. That's what caused me to remember my dreams vividly. I would wake up mid REM cycle.
ve been reading about narcolepsy, and although my sleep study did not indicate anything about it, I find one of its symptoms prevalent in my experience. Often, I seem to dream right when I fall asleep - not after the 90 minutes it's supposed to take to reach REM. I know this is true because sometimes I'll wake up only about a half hour after falling asleep, having already dreamt. Does anything other than narcolepsy cause this?
Ideally you would have an overnight sleep study followed by an all day nap study to be assessed for narcolepsy. It is possible to have other sleep disorders that result in symptoms that mimick narcolepsy. That happened with me. I may still have a mild case of narcolepsy, but the worst of the symptoms have responded to treatment of the other disorders.
I personally would want to know if I was in danger of having a sleep attack and hurting myself or someone else.
I have to do a sleep study next month to see if I have narcolepsy..... that is actually what introduced me to this site, I am doing a sleep journal. I did not realize until last night how many dang times I wake up at night. My doctor mentioned Ritalin. I am so worried about taking meds, I am so close to getting my 8 year old off Ritalin by going organic. I am also finding it oh so hard to keep up with 2 boys that are very high in energy.
The sleep doctor who diagnosed his narcolepsy can answer this based on the sleep study that was performed for the diagnosis.
Dr.
You might want to inquire about having a full sleep study to rule out sleep apnea and/or narcolepsy. The sleep paralysis, hallucinations, and daytime sleepiness are hallmarks of narcolepsy. Narcolepsy isn't just suddenly collapsing in a state of sleep. I tell you this not as a medical professional, but as a person with narcolepsy. Best wishes.
He said he wants to do some more testing on me, an EEG and a nap study, as well... to make sure nothing else is going on... since usually with narcolepsy, you're sleepy all the time, and I am not. So, I was just wondering if this is just something that may be connected to chiari.
I was diagnosed last year with trigeminal neuralgia and occipital neuralgia, after being is such severe pain forever... and neuro after neuro not wanting to believe me. I kept being diagnosed with a migraine.
Have you consulted the sleep specialist to get the sleep study? Hope you have got lot of information on the narcolepsy. Thanks to mastkids for having shared his experience and valuable thoughts. Hope you too are able to get adequate sleep and following up with your doctor. Here are few aspects of the treatment and hope you follow few tips. Ref: http://www.emedicinehealth.com/narcolepsy/page4_em.htm
Share your thoughts and keep updating. Take care.
I only know that when Jules got the diagnosis of Narcolepsy/Cataplexy I looked up whether they were associated with MS and saw that there were several reports of people with MS having the two. But, now I have seen the new study that shows that narcolepsy is an autoimmune disorder, so I do not know how to answer your question.
Murph65 is right on. Proper diagnosis of narcolepsy requires a specific type of sleep study, but it's not something your family doctor will administer. Suggest to your doctor a referral to a sleep specialist, who can handle the sleep study. This is the only way to be sure.
Good luck!
At 16, my daughter finally had a sleep study. She met the criteria for narcolepsy. What I find puzzling is that her sleep problems were already there in infancy. She did not sleep excessively at first -- just very erratically, in short pieces of time. Even at 6 months old I could put her on her back and she would suddenly be asleep for 5-15 minutes (in the middle of an activity).
1- Can a BABY have narcolepsy?
i sent you a message I am just getting the hang of this and I have narcolepsy would definitely like to chat
In my first sleep study, I came in for a night study and then stayed the next day for the daytime study (5 naps). The second study was only done during the day. The second study only consisted of 4 studies because they said it was clear I had narcolepsy and there was no use in doing the last nap.
Now, I don't know how people with narcolepsy usually sleep at night, but once I am asleep I am pretty much 'dead.
I was diagnosed with narcolepsy at age 25, took adderall ufor 5 yrs. then stopped for 1 yr to become pregnant. I took pro vigil for appr. 6,so. W/0 any help, des. Increased med and it sent me into violent emotions. I have had a recent MRI because of headaches. I need hello. I don't want the diagnosis of narcolepsy but I can't live like this.
After months of this happening I went to a sleep Dr and had a sleeo study done, they informed me of what I had and that my tonsils were blocking my airways. After getting my tonsils removed my sleep problems got a lot better, although I always talk in my sleep. When I started getting older I began seeing things, I would be asleep with my eyes open and see the ceiling falling on me, babies falling from curtains, and sometimes people in my room.
I am by no means an expert, but only know about the symptoms of narcolepsy since I just had a sleep study a few days ago. The tech explained that a common misconception is that narcolepsy is just basically "falling asleep in your cereal bowl". It is not however. The major symptom is EDS, excessive daytime sleepiness. Since it is a neurological disorder, your brain keeps telling your body it is tired regardless of how much sleep you get.
I finally went in for a sleep study and was diagnosed with narcolepsy! Narcolepsy is really rare, but at least a sleep study will rule out or confirm narcolepsy, sleep apnea, restless leg syndrome, and probably other conditions as well.
Good luck!
You need to see a physician Sleep Specialist.
1.You could have sleep apnea and would be ''cured'' by using a CPAP machine when you sleep.
2.You could have a form of narcolepsy which could also
be diagnosed by a Sleep Specialist.
3. You could have another type of a rare daytime sleepiness disorder named IH (Idiopathic Hypersomnia) which usually appears in your age group and older.
actigraphy, polysomnogram, and multiple sleep latency test. Yo can read more about this through this link: http://www.mayoclinic.org/narcolepsy/diagnosis.html
Take care and keep us posted.
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