enbrel jra

We whoed her to the best doctors here, and all of them say that it looks like she has JRA and want her to start on Enbrel. But I am really worried about the diagnosis. The blood results are not bad, Reumo factor is negative, CT showed the liquid in the knew but for me difficult to translate everything else. But I waana say that there is no marker whic hwould show that it JRA. No infections identified. What to do?

i might have JRA (Juvenile Rheumatoid Arthritis) and it's really starting to bother my everyday life. Is there a treatment or anything i can do to help it?

Thank you, I look forward to doing what I can to help people navigate this often confusing and scary journey. A little about me: I'm Carolan, 50 years old, dx'ed with JRA at age 5. Luckily (?) for me my disease was more the slow, grinding, chronic type than the more aggressive type. I had my first joint replacement, the left hip in 1997 at age 37, and since then it's been a steady parade of surgical tweaks.

My husband has had JRA since he was 7. He is now 27. He had his hips replaced at 16. He has the systemic version of this disease, and it isn't pretty. Last april we spent the entire month in the hospital with pancreatius. He has had his gall bladder removed and is on Creon-10 which from my understanding is a pancreatic enzyme. I guess my question is my hubby has been on prednisone and plaquenil. He takes hydrocodone for pain which is usually severe. The doctor has suggested Humira.

I was diagnosed with JRA when I was 2. It started in my foot, moved to my left knee, and stayed there. It was pretty bad - I limped everywhere, it always hurt, and my poor muscles in that leg were weak. It started to get better slowly when I was about 9, and by the time I was in high school, it was almost normal. When I was 15, though, it came back worse than ever.

My son has had bad joint problems since the fifth grade, even ending up in a wheel chair for awhile. They said he had JRA. It affects his hands, feet, ankles, and other joints. He has trouble getting over any illness and is prone to infections, but this is better now that he's off the enbrel. He's 25 and very active. He controls some symptoms by eating healthy and supplements. He thinks he has an auto-immune disorder, but not RA. Just something for us to consider.

I am now 33 and my rheumy does not believe it to be RA for sure now since after all these years I lack the deforming joint damage. He said they believe that jra sometimes transforms itself into ra in adults and sometimes can transform itself into lupus. Has anyone else ever heard of this? I never had.

Hello, I have RA but know that we have a few members with children with JRA. Can you tell us more about your daughters symptoms and history? What tests have been run with what results and what treatment plan is being prescribed?

From what you are reporting I would think that the JRA has reared it's ugly head. Many adults to experience a reoccuranc of their JRA. RA can cause pain, stiffness, immune problems (difficulty healing), numbness, tingling and many more symptoms. I would suggest seeing a neurologist to rule out any conditions like MS. I would also suggest getting a bone density scan to see if you have or are at risk for osteoporosis. Additionally I would see a rheumatologist.

I would hope that it was all related to the bad viral infection and still let the doctor follow up with tests for JRA. If it is JRA, it is best to catch it and treat it early. Please keep us posted on how he is doing and what the doctor finds.

weird, never thought that enbrel would be a cause of hpv. I have developed hpv before starting on enbrel. what connection is there between the two?

AROUND THREE YEARS AGO I WAS HAVING FLARE UPS AND MY DOCTOR ALSO ME ON ENBREL, WORKED VERY GOOD FOR THE RA BUT MY NOW MY THROAT IS ALWAYS SORE AND CONGESTED WITH PHELM. THIS YEAR I'VE SEEM NUMEROUS DOCTORS ENT, GENERAL ALERGIST AND EVEN HAD SINUS SURGERY FOR 30 GRAND, NOTHING FIXED THE THROAT PROBLEMS. I SEEM MY RA DOCTOR THE OTHER DAY AND ADVISED HIM I'M GOING TO GET OFF OF THE ENBREL AND SEE IF MY THROAT CONDITION IMPROVES. HE DID NOT THINK THAT WAS THE PROBLEM.

Doctor, I would like information related to Enbrel and MS. I used Enbrel for less than one year. I now have demylination of the cervical spinal cord, both optic nerves, plaques in my brain, numbness in leg and balance problems. I am now fifty eight. Symtoms started at age fifty six with numbness in leg and balance problems. I have been told it looks "MSish." Questions: now that the new symptom of, the optic nerves being demlinated, is it MS?

I have been told to get off Enbrel for needed gallbladder surgery. My problem is that when I get off Enbrel, every joint in my body swells, turns red, hurts unbearably and locks up. I become completely bedridden and cannot get dressed or go to the bathroom without help. My blood tests show that, even with the Enbrel, my c reactives and other immune response numbers are very high. They tell me that they will give me prednisone to help with the reaction.

She has extreme joint pain in her lower back and hips. In 2008, she was diagnosed with JRA, but the doc. told us that it was the kind that young children "grow out of". Starting in March, we have seen MANY specialists (immunologist, rheumatologists and infectious disease). She has normal CBC's and her SED rate and CRP's are within normal ranges. Her ANA, however, is elevated.

I have had Rheumatoid Arthritis since I was 19 years old. I'm now 32 and pregnant. I've been giving myself shots of Enbrel to control it since 2001. When we started doing IVF treatments to get pregnant, I went off of the Enbrel. For the first two trimesters, my RA seemed to go into remission and I didn't need any treatments - which was a MIRACLE! Now I'm starting my third trimester (I'm 27 weeks) and I am starting to have ALL SORTS of complications with my joints.

I have had Rheumatoid Arthritis since I was 19 years old. I'm now 32 and pregnant. I've been giving myself shots of Enbrel to control it since 2001. When we started doing IVF treatments to get pregnant, I went off of the Enbrel. For the first two trimesters, my RA seemed to go into remission and I didn't need any treatments - which was a MIRACLE! Now I'm starting my third trimester (I'm 27 weeks) and I am starting to have ALL SORTS of complications with my joints.

s Thyroiditis and started taking 5mcg synthroid per day. She also has JRA and is currently taking 2 ml of Embrel per week. She is 16 and very active; swims, plays soccer and runs track. She is complaining about her heart racing, not sleeping and hair loss. Is the heart racing part of getting the synthroid regulated? Would taking the meds in the morning help? Any diet or vitamin recommendations?

I have had moderate to severe RA for 5 years. Take Enbrel once a week and am supposed to take 5mg. injectible of methotrexate weekly. I had gone without the methotrexate for at least six months and have not noticed any difference at all. I am scared to death of the methotrexate. Can anyone explain why my doctor wants me to continue it if it does not seem to make a difference? I do great on the Enbrel by itself, but am sure there are reasons, I just don't understand!

My doctor wants to put me on Enbrel but i am nervious about it. All the reading i do about it suggests that the cure is worse then the disease and it seems that the risk of getting cancer, lupus or the like is extreamly high (higher then the other injectables). I am no stranger to biologics, my doctor had me on Raptiva (before they pulled it) and i loved it. Completly cleared me with no side effects and even kept me clear for 2 years after i stopped using it. But Enbrel scares me.

Hi I have been on Enbrel injections for over 4 years and i can't praise the drug enough fantastic results - i have the chance to visit family in Australia for 4 months when i retire in 18 months time the only obstacle is my medication and how would it work with my getting enbrel injections and it is a long flight - is there a solution around this problem

d like info on natural enbrel alternative.

I have been taking Enbrel for 5 years. I am 57 years. In the last year I have developed a head tremor which is getting progressively worse.

m convinced that there is a correlation between these things and the Enbrel. Have any other Enbrel users been diagnosed with any of these inflammatory diseases? My gut feeling is that the Enbrel truly is the cause, but it has worked so well on my joints, I'm hesitant to try anything else. My Rheumatologist is going to argue with me about my hypothesis, but I know my body. Can anyone give some insight?

I was worried that my daughter would develop JRA like my husband did, and he told me that although there was a chance, it was not a significant chance. Please someone correct me if I am wrong. As far as treatment, I do not know where you live, but I STRONGLY suggest a big teaching hospital. My husband was dx at 7. He had a whole slew of drs and nurses, and if someone didn't have an answer, someone else did. That would be my advice. Hope that this helps you.

one year of Enbrel injections. Although the Enbrel may have lessened the pain and progression. other side effects and basically an unwell feeling. dizziness. sinusitis. Pain in eyes. If this is as good as it gets. there must be something better. anyone else been here and found something better?

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