Enbrel and the sun

Common Questions and Answers about Enbrel and the sun


Avatar f tn I always hated it but now I love it! LOL). I took ALOE VERA and did HANSI method, which is the same as Enbrel but with different name as I live in Uruguay - South America. I have mentioned Enbrel to some girls on a Facebook GM group we have. I hope this helps!
176838 tn?1211463974 I was first dx'd with fibro and then it was taken away when the swelling of the joints started and the daily fevers. I have Still's disease and it is a rare arthritis, it just took forever to get dx'd with it. Do you have fevers or rashes of any kind? I have on my profile all the info about Still's, your welcome to check it out. Hopefully your labs will pinpoint the direction of a dx. It takes awhile to get some of them back so hang in there and hang out with us here on the forum.
388154 tn?1306365291 Its a skin condition thats causes painful blisters and sores. Sun aggravates the condition so I am always hiding and fearful of sunshine. I've had two phlebotomy to reduce my iron level but the sores are still appearing. My hands and face are scarred up from this. All the doctors say this is not Interferon related but I disagree and believe my liver was over worked processing the drugs and could not process the iron, which is why I have PCT.
775302 tn?1253104105 I have gone through several coarses of Peg Interfeuron, Riboviran and so forth, The side effects were so bad , I lost my hair, I had chills and shakes and vomiting and aches and it felt like the worst flu ever. I made it through a Year once, the other two times I had to stop the treatment because ( this is just my opinion) the doctor was sick of hearing me complain about how crappy I felt. I have so much more to say but I'm a bit overwhelmed by actually finding this site.
149918 tn?1208132344 For those not familiar with psoriasis, the sun in *most* cases is your friend and savior. The risks of skin aging and uv exposure is more than compensated for by the relief of suffering. Mother and her husband obviously understand this. However, as stated, my UVB Narrow Band light therapy triggered another skin condition -- Rosacea. Was it UVB Narrow (as opposed to regular sunlight) or was it the treatment drugs or was it a combination?
Avatar n tn However, your dr may be onto something with Lupus. Sun exposure causes me to have extreme breakouts, migraine, unbelievable fatigue, and the swelling and joint pain increase, along with a giant red welty butterfly rash on my chest.
766574 tn?1238469073 Just like at the Dead Sea spa in Israel I called and asked what there treatment was and then just did it myself at home. Sun, mud, sea salt bath and message. Also, I would think about what foods your eating. Your okay. I healed it- it's your nervous system. Don't be angry, or upset --relaxation.
Avatar f tn I would also take an over the counter folic acid supplement on the days I didn't take mtx or the prescription folic. Don't take the folic acid and mtx at the same time. They compete for the same chemical receptors in the body so taking them together makes them both work less well. Take the mtx then the folic 24 hours later. Sometimes I would feel very tired for a day after I took it, but sometimes I felt fine. Other patients report profound fatigue that might last a few days, others don't.
217229 tn?1192766004 Patients with PCT often present with blisters and vesicles on the dorsal aspects of the hands, forearms, back of the neck and face. These lesions develop in areas that are exposed to the sun and that sustain minor trauma. Increased facial hair and pigmentation changes are also noted. In some patients, as the injury becomes chronic, scarring, alopecia and thickening of the skin may occur. The skin lesions may be further complicated by deposition of calcium and formation of non-healing ulcers.
Avatar f tn I didn't have much nausea as long as I took the pills with food, and I still have my hair. However I am quite fair and pretty intolerant of sun and heat. I never leaver the house without sunscreen. I never had mouth sores, but for a few months my tongue felt a little sore and swollen, however this hasn't been a problem since. You'll be given a companion prescription of folic acid, which is taken 24 hours after you take the mtx. The folic acid will help relieve side effects.
Avatar m tn I actually just forced myself to ignore it long enough to let the scratches heal, and the darn thing seemed to dry up and go away. But I'm still on tx and my skin's still very dry and very prone to itching if I decide to scratch. Good luck in finding relief.
Avatar n tn I think everything is over and I clean up. I walk out of the toilet and in about 2 minutes time the stomach cramp and the fainting sensation comes back (I've fainted only once to date from this and was out for about 15-20 minutes). 6. When I get back to the toilet I have a really violent Diarrhoea episode in pure liquid state.
Avatar n tn With the Enbrel I am almost a normal person other than the left over damage in my wrist and left foot and all these neurological symptoms of numbness, tingling, burning and a little pain. Please post back.
Avatar f tn Let me tell you, the pain is like having the worst sunburn you have ever had and then going back into the sun. I could be doing nothing and the burning is just there, if I go outside and the sun hits me it hurts, if the air conditioning touches my skin it hurts. Clothing, jewelry, bedding, it all is very sensitive to the skin. Then there's the numbness, tingling so bad that if I put my feet together they feel as though they are vibrating.
422104 tn?1209767504 I have a lap top too and don't know what I would do without it. Was rainy here all morning and the sun just came out so I am going to wake the snoring beagle and go for a walk down to the beach. Think I told you I am off all week, start my new job next Monday. Using this time to get my S____ together! Wrote up a healthy eating and exercise plan that I will stick to, just to be able to stand up from the couch without grunting is a miracle.
Avatar n tn But, that and the mono just don't seem to cover the length of my symptoms. The infectious disease dr told me it was all allergies (hard to believe b/c I've had seasonal-type allergies my whole life) and the rheumatologist said it was reactive arthritis but from what I've read that has to do with mostly STD's and I've been tested (negative) for everyone of them under the sun. My CRP was 29.4, rheumatoid factor was 29.7 and ESR was 20.
Avatar m tn The nerve pain has gotten better. I no longer have the "sun burn" feeling. I just have numbness and pain if the area is touched as well as the electric shock feeling. The shocks are the worst since they come out of no where and literally make me cry out. I have to rub my thigh or even hit it when it happens to make it stop. Walking makes the shocks come on more frequently.
Avatar f tn I take Methotrexate and Enbrel injections weekly but the RA is not under control yet. I have a great hubby and son that are very supportive, my mother lives across the street and my Pastor lives next door so I am very blessed with lots of help. I recently quit smoking cigarettes (5 days now) whoo hoo!
Avatar n tn It spread through out all my legs and the spread to my arms. I had a biopsy done by the derm. and it's gotten to the point she can't do any else for me. My choices are to deal or get off the tx. V.L. has gone from 3,210,000 to 4,700. So, I've decided to DEAL. Has anyone gone through this and if so, any suggestions? Thank You, I just found this site. I also found a few support groups that I am realizing I really need. I'm going tonight for the first time.
Avatar f tn My youngest daughter went to Mayo Clinic - they take a team approach and look at everything; all of the doctors on the team that reviews your case communicate with each other. She was very impressed. If that is an option for you you might give them a try. I have severe Arthritis and it is all over me - which causes all sorts or issues and problems. Then again, some of your issues might not be related to Arthritis.
394687 tn?1290924440 The only issue I have with it is how it effects your baseline and in my case the 2 week and 4 week PCR. Since I am on bio's for the RA (Enbrel) and am soooo sick and symptomatic I may only be able to do 4 months of tx (am 2b). So it will be very good to know if I was UND at 2 or 4 weeks. CMCH - I have lots of info on the RA connection. I have had severe RA for 14 yrs - 15 surgeries...but since I have been chronic the last yr my pain and destruction has doubled.
Avatar n tn 5 log drop (before this I haven't been tested, the doctor wanted to wait). So now he has upped the the PegIntron shot from .04 to .05 and kept the rib at 1000. I have lost 20 pounds so that should help. So after a month, he wants to check again and if I haven't done the log drop, he wants to discontinue treatment. I have no unbearable sx, just a little tired and weak and little things. He tells me that daily shots of interfergen for a year is the next thing. (I am 1b, stage 2...
Avatar m tn I have seen this same scenario many times and in the end the pocket book of the infected person is a whole lot lighter, their liver damage worse and the alternative medicine bank accounts keep growing by leaps and bounds. Big pharma is rich too but they do cure us. Very happy you are SVR.
89592 tn?1391278022 94 this is not a correct way to call a test, there are so many antibodies in hbv infection, can this be hbsab instead of hbcab igm?do you have the results with you and the name of the test, the range with the units, machine used for the test?
Avatar m tn I am new to this site, but have been diagnosed since 2008, although I believe I caught the dreaded virus in 2002 through accidentally pricking myself while helping my boyfriend cap his Enbrel needles. He went on the horrible interferon in 2009 and almost died and did not get cured. We are also "waiting" for them to iron out the wrinkles because I witnessed first-hand how the Hepatologist and everyone lied to him about his failed treatment.
Avatar f tn An alternative to the mentioned systemics are a newer class of drugs called biologics such as Etanercept (Enbrel) which is given as self-administered injections. I have heard good and bad on Enbrel, but the best advice was to only use it as a last resort since it's also an immunosuppresive and may interact with the tx drugs in some unknown way. The advantage is that it appears not to be liver toxic. My first derm suggested Enbrel but I declined.
459853 tn?1283144114 Then when I have 'flare-ups', it seems like every joint in my body hurts, even the arches of my feet! My toes pop and my ankles hurt and burn to the touch. The I recently noticed a rash on my face over my cheeks and nose. I first thought it was from the cold weather, like wind burn, but it never went away. Some days it looks worse than others.It doesn't itch and there is no flaking skin like with dry skin....I'm including some pics to see what you think...
131817 tn?1209532911 I had been given neupogen before and since, the Neulasta and did not have the same effects and bone pain (mostly in the legs)as with neulasta. I un-scientifically decided that it was the pegylation that cuased the nasty sides. And, Neulasta is MUCH more expensive than neupogen. The more it costs, the worse you feel - sounds about right. I'd rather have more frequent shots of neupogen than fewer shots of Neulasta..
250084 tn?1303311035 You hit the nail on the head - my doc just called and said the same thing about dehydration and I think I have lost track of drinking - need to mark the bottles I guess. He also thinks we may have to lower the Peg just a bit. He thinks the Enbrel (Biogenetic TNF blocker for RA) that I am taking is acting like a booster shot - so I am flat out after it on Wed night as well as after the Peg on Monday - so never get any relief.
394687 tn?1290924440 (very bad history here) It's just so complicated with the heart issues and the Enbrel and the RA, not to mention still on 5 mg of prednisone and all my other fun problems - my history on my profile is an interesting read. That's why I research - Docs just can't figure me out. (I have 10 docs and fortunately great insurance) I had complete work ups before tx on my heart etc.