Let me tell you, the pain is like having the worst sunburn you have ever had and then going back into the sun
. I could be doing nothing and the
burning is just there, if I go outside and the sun hits me it hurts, if the air conditioning touches my skin it hurts. Clothing, jewelry, bedding, it all is very sensitive to the skin. Then there's the numbness, tingling so bad that if I put my feet together they feel as though they are vibrating.