Narcolepsy research studies

Common Questions and Answers about Narcolepsy research studies

narcolepsy

Avatar n tn You should probably have Narcolepsy ruled out by a Sleep Specialist; Sleep Studies should be done.
Avatar f tn Yes, it is time for me to get a new doctor and to also go and get studied again. Do you know of any research or studies being done where they need patients to study with narcelopsy? What are your thoughts about that anyway? I use to hear "studies" being done over the radio once in a while and often thought about doing something like that.
Avatar f tn A couple weeks ago i went to a big city to see a neurologist who told me I have cataplectic episodes and that I have narcolepsy. I have not had sleep studies or anything more. Could this REALLY be narcolepsy/cataplexy? Is it NECESSARY to get more diagnostic work?
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
Avatar f tn Does anyone know of any open stem cell research studies or proven successful stem cell therapy treatments to stop and/or reverse viral attacks on the human body? I heard this type of therapy is out there but don't see many studies. Not even finding studies specific to a particular virus (HSV, HPV, coxsackie, ....
Avatar f tn Diagnosed with Narcolepsy. Have history of pituitary microadnoma high prolactin. PCOD historectamy 2002 On dostinex. Can something in my brain cause this. I am now on ritalin 20SR twice a day. Awake but body still tired. Also that thyroid medication had it irradiated a year ago Due to high levels. Is there any other answer for sleeping so much. Or am I just in denial.
535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
Avatar n tn get familiar with the search capabilities at clinicaltrials.gov . Basically, enter the city you are near and the phrase hepatitis c - or some other variations to show you what may be available.
1287446 tn?1313947638 Narcolepsy must have catoplexy in order to qualify as narcolepsy. Sleep studies are worthless. Doctors are worthless, clueless idiots that think spending enough money to put their children through medical school is the answer to every patient's problem, so you should just go get better insurance so they can keep charging more and more.
867808 tn?1239482070 My journey with sleep studies began over 10 years ago, with multiple studies at 3 different labs due to insurance changes over time, different ordering docs, etc. Also, looking at data in black and white enables your research to be more targeted instead of general. When you get the copy of your sleep study results, first look for the nap study specifics, as in how many did you sleep and how many you reached REM.
Avatar f tn i sent you a message I am just getting the hang of this and I have narcolepsy would definitely like to chat
Avatar m tn For years I've suffered from superventriculartracardia. Every time I eat I almost pass out. I always have to sleep for one or two hours. I've talked to doctors and they always tell me its just my imagination. I get really tired of doctors who don't care and don't want to do any research and are looking for the easy way to get you out of their office as fast as possible.
Avatar n tn At least, if you do not have narcolepsy, you can rule this out and go on from there. I have narcolepsy without cataplexy. I really do not have very many symptoms except for the excessive daytime sleepiness and occasional mild night-time hallucinations (mostly audible). Hope this helps! Good luck.
535822 tn?1443976780 New research reported by Reuters reveals that whooping cough outbreaks are HIGHER among vaccinated children compared with unvaccinated children. This is based on a study led by Dr. David Witt, an infectious disease specialist at the Kaiser Permanente Medical Center in San Rafael, California. As Reuters reports: (http://www.reuters.com/article/2012/04/03/us-whoopingcough-idUSBRE832...
Avatar f tn This is the symptom of a sleep disorder called Narcolepsy. This sleep disorder is characterized by excessive day time sleepiness, sleep paralysis, cataplexy where the person has episodes of loss of muscle function while awake, hypnogogic hallucinations and automatic behavior. You will need to consult your primary care physician, who may schedule you for a polysomnogram (sleep test) to rule out sleep disorders and initiate appropriate therapy. Hope this helped and do keep us posted.
Avatar f tn Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include- Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.
Avatar f tn When I was in highschool I was diagnosed with PCOS and Narcolepsy. I recently found my sleep studies and found that the doctor said my sleeping was characteristic of Narcolepsy but he didn't think I had it. I wonder now[ if it is the PCOS as noticed a big difference in energy levels after I stopped taking birth control. Is anyone else out there suffering from debilitating lack of energy. I find I can hardly get up in the morning let alone take care of my house, husband and child.
Avatar f tn Does anyone know of a research study starting soon in Austin? I've never had treatment before and I am a Genotype 1a. I'd really appreciate any information anyone has for me. Thanks and May God Bless You All!
Avatar f tn Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!
382218 tn?1341181487 Just wondering why the post regarding that student's request re: their research project was removed .... did it really violate the Terms of Use? Would like to just understand. I completed the survey myself and sent the link to a friend. If anyone else would like it, I can PM the link to you. It was a few general questions about one's dx and what daily difficulties it causes, as well as questions re: what would make life easier. Wishing this student all the best with their studies.
589816 tn?1332976771 Recently the whooping cough vaccine has been shown to be the cause of an outbreak of Narcolepsy in children , do some research there was a report done on findings recently ..
Avatar f tn But, you can get some really good information on the intranet about narcolepsy, cataplexy, and sleep studies. Just make sure the website is reputable. I just want to commend you as a parent for looking further into this. My mother always just thought I was lazy. Your son is a very lucky guy to have such a cool, concerned mom! Hope this helps a little! Good luck.
1722607 tn?1335747858 I have been given 5 studies to choose from. They are all different and Im feeling a little overwhelmed. How should I choose? What questions should I ask?
Avatar f tn ] A few months ago I had a polysomnogram and multiple sleep latency test to test for narcolepsy. I used to think the maybe I had ADD (I am still curious about this), but I'm now starting to think that my attention problems are due to sleeping issues. The specialist I went to said that my results showed that I didn't have narcolepsy and her only suggestion was to try to get on a more regimented sleep schedule.
Avatar m tn influences on measurement error and participation bias in studies of sexual behavior. Psychol Bull. 1990 Nov;108(3):339–362. There is no debate (among experts) about the HIV risks associated with oral sex. The risk is so low that almost nobody who cares for HIV infected patients has ever had a patient believed to have been infected that way. Among experts, it's a semantic issue about using terms like "no risk" and "very low risk".
Avatar f tn Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
Avatar m tn Hate to tell you this but I think you need to have a more complex, expensive sleep test, believe it's called a polysonography. I too was tested and treated for sleep apnea, but nothing improved. Finally my psychiatrist suggested getting tested for narcolepsy and she talked to my sleep doctor about it. It's basically like the first test you had but they continue into the next day and do "nap studies" to see what your brain does and how quickly you fall asleep.