Fibromyalgia mayo clinic

Common Questions and Answers about Fibromyalgia mayo clinic


627388 tn?1222201812 I am really sad to see so many negative experiences with the Mayo Clinic - which facility did you go to? I began my journey at the Mayo Clinic (Rochester MN) in May and am so very grateful for them. This was a 9 hour drive for me as well and they provided so many answers for me. I have not posted in a while but if you look at my previous posts you will see. In the last two months I have been diagnosed with MS, Epilepsy and Celiac disease.
486038 tn?1300066967 I've not been to the Jacksonville Mayo or the MS clinic in Houston, I'm sorry about that. I have heard a lot of good things about the University of Texas Southwestern Medical Center at Dallas and Dr. Elliot Frohman who works there. I'm sure if you google his name you can find out much more than I can tell you about, here.
Avatar n tn I have been at the Mayo Clinic for the last week. It has been a very pleasant experience, given my circumstances. They have been very efficient and very informative. They have treated me like a person and not just a number. I am very impressed. I am looking for some personal advice on medications. I was dx with CIS due to the fact that I am not really experiencing any symptoms other than the optic neuritis, which has resolved for the most part.
Avatar f tn I have POTS and am supposed to go to the Mayo Clinic in Minnesota this winter. I'm curious who has been to Mayo before and how their experiences went. Did you use the POTS clinic part of it or something else? I am also curious because I am mainly going to see if any doctor can figure out the underlying cause of my POTS (my current doctors are not interested in testing for any possible causes of it). Should I go to the POTS clinic part of it or should I just see a general doctor there?
Avatar n tn Thankfully my regular physician is not giving up on me and I just got the call from him today that he is going to refer me to the Mayo Clinic up in Rochester. I just hope that they can sort this all out. Has anyone ever had anything like this happen to them or something similar? My luck is i'll be one of those Mystery Diagnosis' It's very frustrating to say the least.
Avatar f tn My sister was diagnosed with MS (finally) after going to the Mayo Clinic. She had been trying for 2-3 years to find out what was wrong. Her doctors in Kansas were perplexed. She feels like they were not sympathetic to her pains, treating her like she was making it up. She said the doctors at Mayo Clinic are proud to the point of being pompous-but they know their stuff, so they have the right to be that way. She thinks I have MS from my symptoms, because my symptoms are so similar to hers.
Avatar f tn For any possible connection with MGUS, perhaps look into studies of the world's top MGUS and Multiple Myeloma expert, Dr. Robert Kyle from the Mayo Clinic. ( A very good friend of mine, recently diagnosed with Myeloma, has been diagnosed with FMS many years ago-Tender Point Test ) Who knows? Hope you find some answers and most importantly some solutions.
98474 tn?1240108874 I am sorry to say that I did not come home with one. The Mayo Clinic is wonderful and we met so many nice health care workers there. Everyone seemed happy to work there and were very caring people. The system they use is also amazing and very impressive. In my case, there are a few things I would do different if I were to return there for medical care. When I first called to make an appt, I wanted to see a neruo, cardiologist, and rhemy. They scheduled me for all of that plus a phyc.
Avatar f tn in any search engine on your computer you will find numerous articles and information on it. The Mayo Clinic also has a wonderful description of it along with treatments and medications. In reality for many people being finally diagnosed with "Fibromyalgia" was a relief as they had been told by dozens of doctors that all of the pain and symptoms were all "in their head" and it was an awful and frustrating feeling.
444414 tn?1376579695 I have seen my PCP, many specialists that she has referred me to and gone to the Mayo Clinic as a final resort. I was diagnosed with Hashimoto's thyroidits and several stomach ulcers and FMS. Upon my discharge, I was referred to a physical medicine dr at Mayo. Over many exams sensitivity abnormalities were found in my legs, ie patches of numbness which no one could place.
Avatar f tn Finally ! I am so happy to see that the Mayo Clinic and American College of Rheumatology lists complementary medicine as other therapies that may benefit fibromyalgia. I know "alternative" medicine (AKA: pre-western medicine) has been a blessing for me. I work not only with my specialist, but also with an alternative medicine practitioner as well and thank God for both of these compassionate, educated men.
Avatar f tn I have gone to every type of doctor, including Mayo Clinic in AZ. No one is able to look beyond Fibro. They keep sending me to a Psych. I am not crazy. Question Where can someone go who is having problems and is not getting anyone to look deep into it until we find the answer?
Avatar f tn It turns out that she has spina bifida, Chiari, and that her sacroiliac joints are fused together, indicating a spondylitis disease like I have too. She's being sent to Mayo Clinic. I am sooooo glad that I talked to her about Chiari. She's finally going to get appropriate treatment after all these years.
Avatar f tn Are you close enough to go to a specialty clinic, like Cleveland Clinic or any of the Mayo Clinics or universities? If you have the resources (insurance, referrals, etc...) to go, it may be wise. If you are having pain and the lumps have baffled your current doctors, I would suggest seeking the specialty/university facilities. Good luck to you, I hope it all turns out well.
Avatar m tn I did call the Mayo Clinic in Phoenix. That is always an option for me too.
2010625 tn?1329375656 I was just wondering what causes Fibromyalgia? Can Anxiety, Depression/Bipolar, IBS, or Genital Herpes cause it?
Avatar f tn I was diagnosed w/ fibromyalgia 12 years ago at the Mayo Clinic - and recently returned with more - what I thought were serious - problems. Doctors there still attribute these all to the FM. They recognise it as a real illness, and admit they don't know what causes it and that it can be quite awful at times. They also believe that it often occurs along side of other autoimmune illness.
Avatar m tn • Seem to get sick from antibiotics I have been tested for a lot of things and am running out of things it could be. I spent some time at the mayo clinic seeing various specialists and was diagnosed with fibromyalgia basically because they just couldn’t find anything wrong with me so I struggle with accepting the diagnosis. All tests and bloodwork seem to come back normal except a moderately elevated anti-histone and slightly elevated liver enzymes.
Avatar f tn Deep, aching pain in a muscle Pain that persists or worsens A tender knot in a muscle Difficulty sleeping due to pain (all of the above from Mayo Clinic) Elsewhere: Many of those already suffering from the pain of fibromyalgia also suffer from myofascial pain syndrome. Myofascial pain syndrome is another form of chronic pain that can affect the entire body, particularly the face and jaw.
Avatar m tn Also, people with Diabetes sometimes also have this. The mayo clinic website has good info on it. My Doctor actually printed the info he gave me directly from their website. It may be worth looking into, especially since you have other symptoms and it can be related to other conditions. You may want to ask for a referal to a gastroenterologist. As far as the other symptoms, I have yet to be dx with fibromyalgia, so I'm probably not the best person to answer your question.
267076 tn?1270677931 Yeah, the heavy feeling in arms in legs just wears me all out. The Dr said I need to lose weight because of my fatty liver. I'm going to try the Mayo Clinic Diet and see what happens. I'm also going to try to get more exercise. It will be hard because of the pain but worth trying. I don't like to take drugs so am trying to find natural things or suppliments to take for the pain and other things. I also have a curve in my spine which may be part of the pain.
Avatar n tn Search on the internet for Fibromyalgia trigger points. The NIH and Mayo Clinic sites are helpful with symptom info. Write back to me and let me know how your are doing. I will watch this post.
439629 tn?1213939866 ), OCD, Edema (Current unexplained problem causing great pain), and more! I've been to numerous doctors, the Mayo Clinic, and several churches. I'll try anything. I'm very interested in the knowledge that you've collected regarding CFS, Fibro, autoimmune.....especially when in common with symptoms/diseases/syndromes mentioned above. One other important consideration is that I had Mono at 16-17 yrs. I've researched a great deal and can not find POST mono difficulties/problems/etc.
Avatar m tn We all go through several doctors before we get diagnosed. Try Mayo Clinic they will diagnose you correctly and you won't have to keep wondering what it is that you have or if your doctor diagnosed you correctly. That is what I did and thats how I finally found out it was fibro. You sound just like me a year ago i was trying to figure it all out myself as well....the thing is ...
7356842 tn?1405621443 ---Wiley (2013, November 5). Pleasure, pain brain signals disrupted in fibromyalgia patients ---Mayo Clinic (2013, October 27). Young people report worse fibromyalgia than older patients. Wake Forest Baptist Medical Center (2013, May 2). Regular, moderate exercise does not worsen pain in people with fibromyalgia. ---BioMed Central Limited (2013, March 15). Alcohol, fibromyalgia, and quality of life.
Avatar n tn I found after going through the pain clinic at Mayo Clinic, that reducing caffeine (sp); walking even through your house to start, water and a lower fat diet helped me more than any drugs the docs tried to push! It was tough for me to get going on the walking especially with so much pain, but going slow and steady got me up to 1.5 miles a day. That was harder to do than quitting smoking!!! I had a husband and kids kinda pushing me, and I guess I just had to get mad enough to do it...
Avatar f tn Quix, you are not the only one who is confused! I left Mayo with the diagnoses of Fibromyalgia and there was no mention about physical therapy - Neurontin or Baclofen during my visit. It was only 5 weeks later (after two phone calls to Mayo) that I received the written report which indeed mentioned them. (BTW, my referring physician never received a copy of the report and I had to bring in mine for him to photocopy.
Avatar f tn 2 O-Bands are considered positive by the majority of the MS world. The Mayo Clinic has started requiring 4 or more to call it positive for reasons I have never seen explained or justified. Several members of our flrum have 8 or more here. 10 is lots. " Maybe you just need an MS specialist and not a large Clinic like MC?
Avatar f tn Hello. I am new to this group. Recently diagnosed at Mayo Clinic (after 3 visits during past 4 months) with Fibromyalgia, Central Sensitization Syndrome, Sjogren's Syndrome, Dysautonomia (Autonomic Dysfunction), Migraines and Joint Hypermobility Syndrome. Today, a local rheumatologist in South Florida said "I don't support disability for fibromyalgia." After I questioned this, she said "never, ever" not even when combined with the other diagnoses and symptoms.