fibromyalgia treatment mayo

I have seen my PCP, many specialists that she has referred me to and gone to the Mayo Clinic as a final resort. I was diagnosed with Hashimoto's thyroidits and several stomach ulcers and FMS. Upon my discharge, I was referred to a physical medicine dr at Mayo. Over many exams sensitivity abnormalities were found in my legs, ie patches of numbness which no one could place.

Has anyone from the MS forum ever seek treatment for their MS at the Mayo Clinic? If so, how was your as your experience with physicians from the clinic? I am considering driving up to Mayo at some point if my neurologist in town can't definatively diagnosis me.

Hi, welcome to medhelp. One of the primary characteristics of fibromyalgia are trigger points. I believe there are 18 trigger points. If you are newly diagnosed you may want to check out http://chronicfatigue.about.com/od/whatisfibromyalgia/a/fibrosymptoms.htm just so you can see how much fibromyalgia effects the body. I thought it was helpful. It also has a list of associative disorders such as irritable bowel syndrome, etc...

widespread pain, disturbed sleep, and exhaustion from head to toe shortness of breath, numbness and tingling sensations, muscle weakness I get pain in my neck, like muscle stiffness and that comes and goes leg cramping, fatigue, trembling nausea I also had weakness in the left arm, pain and numbness as well I was suffering from migraines and one had caused an anxiety attack Fatigue, muscle weakness, trembling muscles, some muscle spasms, cramping in my right calf, tingling in hands feet and

Hello. My name is Sarah, and I was diagnosed at Mayo Clinic on Friday with Chronic Fatigue Syndrome and Fibromyalgia. I have been sick for 4 years, and had seen 22 doctors before going to Mayo. I have been working half time and have spent progressively less time doing social things with friends. I am now back in Texas and am faced with telling my friends and family about my diagnoses, while trying to let this sink in myself!

s too far for typical treatment care but sometimes the docs around here have ties to Mayo and use consults with the Mayo docs to help in their treatment of local patients. A friend of mind went through treatment with the docs at Gundersen Clinic in LaCrosse...about 90 miles from Milwaukee. The Gundersen docs did consult with Mayo during her treatment.

Hi! I've been to Jacksonville, Mayo twice. Since I live in the Southeast I know a lot of people who have been there and had great success. My mother had carotid artery surgery a few years ago - very risky surgery - turned out great. She is going back in Nov. to have the other done as it is more than 75% blocked. She also had a hole in her retina or cornea, I can't remember which, repaired - and that went well too. My luck at Mayo has been so/so.

My doctors are considering a diagnosis of fibromyalgia, contingent upon the results of a recent biopsy to determine if Sjogren's is a factor. Can fibromyalgia be the cause of my symptoms that cycle (recurring fevers, rash, fatigue, pain, blurry vision, and numbness in hands and feet)? I've heard of it being a factor in regard to fatigue and pain, but am unsure about vision, rash, numbness, and especially fevers.

Have since been to mayo clinic. I have Fibromyalgia, POTS, Elher-Danlos, Myalgic Encephalomyalitis, SEID to go along with the Celiac and Hashimotos that I already knew about. Wow, I was not expecting that. The first doc that looked at me 6 years ago ruled out the fibro as I didn't have the tender points. Either they developed later or he didn't know how to test for them, this time around I had almost all of them so easy diagnosing.

I agree that there are lots of opinions on Mayo good and bad. My husband went to the Mayo in Rochester Minnesota and it was a giant waste of time and money. The doctors acknowledged that he was developing a neurological disease but would not intervene and said to "come back when you get worse". No thanks. They are a bunch of arrogant pompous over rated specialists. Is there any university medical school hospital near you in another state??

Hello. I am new to this group. Recently diagnosed at Mayo Clinic (after 3 visits during past 4 months) with Fibromyalgia, Central Sensitization Syndrome, Sjogren's Syndrome, Dysautonomia (Autonomic Dysfunction), Migraines and Joint Hypermobility Syndrome. Today, a local rheumatologist in South Florida said "I don't support disability for fibromyalgia." After I questioned this, she said "never, ever" not even when combined with the other diagnoses and symptoms.

I had only once tested my hbsag quantity since my diagnosis two years ago. The test was done a few weeks ago and came out about 17000iu/ml. In other words quite high, that should warrant treatment immediately, in my opinion, though my dumb doctors won't put me on treatment yet. But I'm going to fight them and insist that I need antiviral treatment.

I think one of the main issues some people have with Mayo is its conservative approach to treatment. Mayo claims that in early MS with mild symptoms, no treatment is necessary. This flies in the face of what is generally agreed to by other MS facilities, that treating MS early provides patients with the best chance of slowing down the disease process, minimizing the number of releases in RRMS, and mitigating permanent neurological damage.

I forgot to mention in my other thread that I'd been to my rheumatologist last week. He brought up fibro again. He did another torture session: testing the hot spots that go along with fibro. He said I have widespread muscle pain. No duh. Lol! He also surprised me very much. He said, "I do think you've got a touch of Fibro going on, unless it's being caused by your Chiari Malfitmation." I just about fell off my chair when he said that. Lol!

I went from .69 to 4.75 after a partial thyroiectomy and was CLEARLY very hypo for me!!!!! normal range DOES NOT mean normal for everyone! I must be below 1.5 or at 1.0 is my bodies magic number! I am on synthoid therapy and feel great when my numbers are in line! find a doctor who listens to your symptoms! I had a mayo clinic endo who tryed to tell me my severe depression almost sucidal was not thyroid related beacuse I was within normal range! oh no!

Amazing A friend of mine has a diagnosis of MS. But All of us think it's lymes. She went to Mayo And got told fibromyalgia; which I also have. i can't get into my ---heart damage, brain lesion ,spect scan ,etc maybe another time but I'm fed up. Is it Fibro, is it CFS , OR lyme Help!

s a big question and too much for me to answer on here. I was diagnosed with Fibromyalgia 4 years ago. You may want to check out one of my fav. Fibro sites www.immunesupport.com . They have tons of info on FM as well as chronic fatigue and the like. The site has symptom lists as well as current research, treatments, etc. and may offer you a starting off point.

Has anybody here been to the neurology clinic at the Mayo or in their inpatient pain treatment program?

Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.

Fibromyalgia treatment mayo

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