Fibromyalgia research mayo clinic

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fibromyalgia

627388 tn?1222201812 I am really sad to see so many negative experiences with the Mayo Clinic - which facility did you go to? I began my journey at the Mayo Clinic (Rochester MN) in May and am so very grateful for them. This was a 9 hour drive for me as well and they provided so many answers for me. I have not posted in a while but if you look at my previous posts you will see. In the last two months I have been diagnosed with MS, Epilepsy and Celiac disease.
Avatar n tn I have been at the Mayo Clinic for the last week. It has been a very pleasant experience, given my circumstances. They have been very efficient and very informative. They have treated me like a person and not just a number. I am very impressed. I am looking for some personal advice on medications. I was dx with CIS due to the fact that I am not really experiencing any symptoms other than the optic neuritis, which has resolved for the most part.
Avatar f tn My sister was diagnosed with MS (finally) after going to the Mayo Clinic. She had been trying for 2-3 years to find out what was wrong. Her doctors in Kansas were perplexed. She feels like they were not sympathetic to her pains, treating her like she was making it up. She said the doctors at Mayo Clinic are proud to the point of being pompous-but they know their stuff, so they have the right to be that way. She thinks I have MS from my symptoms, because my symptoms are so similar to hers.
Avatar f tn For any possible connection with MGUS, perhaps look into studies of the world's top MGUS and Multiple Myeloma expert, Dr. Robert Kyle from the Mayo Clinic. ( A very good friend of mine, recently diagnosed with Myeloma, has been diagnosed with FMS many years ago-Tender Point Test ) Who knows? Hope you find some answers and most importantly some solutions.
Avatar f tn Are you close enough to go to a specialty clinic, like Cleveland Clinic or any of the Mayo Clinics or universities? If you have the resources (insurance, referrals, etc...) to go, it may be wise. If you are having pain and the lumps have baffled your current doctors, I would suggest seeking the specialty/university facilities. Good luck to you, I hope it all turns out well.
2010625 tn?1329375656 I think if there is a way to support the research of fibromyalgia that we should as it is very important, to figure out the causes, and ways to find better treatments. I know at one point I was in so much pain without any pain medication, that it caused me to have an episode of dissociation. I really hope that the medical community figures it out soon, as there are so many people suffering, and will continue to suffer until they do.
Avatar f tn I was diagnosed w/ fibromyalgia 12 years ago at the Mayo Clinic - and recently returned with more - what I thought were serious - problems. Doctors there still attribute these all to the FM. They recognise it as a real illness, and admit they don't know what causes it and that it can be quite awful at times. They also believe that it often occurs along side of other autoimmune illness.
Avatar m tn • Seem to get sick from antibiotics I have been tested for a lot of things and am running out of things it could be. I spent some time at the mayo clinic seeing various specialists and was diagnosed with fibromyalgia basically because they just couldn’t find anything wrong with me so I struggle with accepting the diagnosis. All tests and bloodwork seem to come back normal except a moderately elevated anti-histone and slightly elevated liver enzymes.
Avatar f tn Deep, aching pain in a muscle Pain that persists or worsens A tender knot in a muscle Difficulty sleeping due to pain (all of the above from Mayo Clinic) Elsewhere: Many of those already suffering from the pain of fibromyalgia also suffer from myofascial pain syndrome. Myofascial pain syndrome is another form of chronic pain that can affect the entire body, particularly the face and jaw.
Avatar n tn Search on the internet for Fibromyalgia trigger points. The NIH and Mayo Clinic sites are helpful with symptom info. Write back to me and let me know how your are doing. I will watch this post.
7356842 tn?1405621443 ---Wiley (2013, November 5). Pleasure, pain brain signals disrupted in fibromyalgia patients ---Mayo Clinic (2013, October 27). Young people report worse fibromyalgia than older patients. Wake Forest Baptist Medical Center (2013, May 2). Regular, moderate exercise does not worsen pain in people with fibromyalgia. ---BioMed Central Limited (2013, March 15). Alcohol, fibromyalgia, and quality of life.
Avatar n tn I found after going through the pain clinic at Mayo Clinic, that reducing caffeine (sp); walking even through your house to start, water and a lower fat diet helped me more than any drugs the docs tried to push! It was tough for me to get going on the walking especially with so much pain, but going slow and steady got me up to 1.5 miles a day. That was harder to do than quitting smoking!!! I had a husband and kids kinda pushing me, and I guess I just had to get mad enough to do it...
Avatar f tn 2 O-Bands are considered positive by the majority of the MS world. The Mayo Clinic has started requiring 4 or more to call it positive for reasons I have never seen explained or justified. Several members of our flrum have 8 or more here. 10 is lots. " Maybe you just need an MS specialist and not a large Clinic like MC?
Avatar f tn Hello. I am new to this group. Recently diagnosed at Mayo Clinic (after 3 visits during past 4 months) with Fibromyalgia, Central Sensitization Syndrome, Sjogren's Syndrome, Dysautonomia (Autonomic Dysfunction), Migraines and Joint Hypermobility Syndrome. Today, a local rheumatologist in South Florida said "I don't support disability for fibromyalgia." After I questioned this, she said "never, ever" not even when combined with the other diagnoses and symptoms.
1830047 tn?1321671393 Now, with a diagnosis of FM, sleep apnea, PLM, and chronic migraine and some other diseases that are 'to be monitored for yearly' per the Mayo Clinic (great people) my question is when do you do further testing? I mean, according to my research anything other than my eye color can be blamed on FM. When a person has new and/or worsening symptoms how do they know when to look beyond FM?
181575 tn?1250202386 I am reposting articles / summaries on the treatment management of chronic HepB. "cajim" located these articles which are quite informative. I thought about putting them on a seaprate Health Page but didn't think it was appropriate since we didn't write them. Let's make this a sort of "Unofficial Research Thread" or "URT" for this type of information. Let's keep this URT free of comments.
136956 tn?1425609872 I am curious if there are any tests, blood markers, etc. for the disease? I want her to go to the Mayo Clinic and wonder if that is warranted? I realize we have no doctor here but you folks know a lot more about this than I do. Any ideas, comments, anything would be most helpful. She's in a great deal of pain, taking Percocet and the pain breaks right through that medicine. Thank you very much and best to all of you.
975514 tn?1325001538 section_id=27670#sec_27670 I urge you to introduce yourself below and tell us a little about what brought you to the Fibromyalgia/CFS Forum. Again, welcome to MedHelp and the Fibromyalgia/CFS forum!
143746 tn?1301278422 There is too much that needs to be done and ruled out. Thank you for the Cleveland Clinic suggestion. I might try to go there or Mayo Clinic. Thank you also for the Stanford suggestion. I'll look into that. I have already taken advantage of the financial assistance program at the emergency room of my local hospital and have had a free ER visit, but it seems like the assistance only applies to emergency room visits not not elective procedures. Please correct me if I am wrong.
1741471 tn?1407162630 “Walking and movements require a perfect and simultaneous integration of multiple areas of the brain,” says Rodolfo Savica, author of a study at the Mayo Clinic in Rochester, Minn. Studies show that changes in the way a person walks can be an early warning sign of cognitive decline. From USA Today The findings are the first to link a physical symptom to the disease, which up until now required doctors to begin a diagnosis by focusing on cognition and administering lengthy neurological exams.
Avatar f tn I am doing my own research and guiding my doctors. I'm beginning to think of going to the Mayo Clinic just to get a group who will investigate the many disabling problems supported by testing that have ended the very successful career and vibrant life of an active professional. sorry to bend your ear. Can you suggest anything?? I do so much appreciate your time to consult with a complete stranger.
543346 tn?1214461088 Hello. My name is Sarah, and I was diagnosed at Mayo Clinic on Friday with Chronic Fatigue Syndrome and Fibromyalgia. I have been sick for 4 years, and had seen 22 doctors before going to Mayo. I have been working half time and have spent progressively less time doing social things with friends. I am now back in Texas and am faced with telling my friends and family about my diagnoses, while trying to let this sink in myself!
378725 tn?1200688402 Many physicians feel that fibromyalgia is an excuse to be lazy. There is not enough research or the correct medical tests to properly diagnose this condition. It would seem that doctors would look to the one specific body organ which controls calcium in your body (4 parathyroid glands). I have hyperparathyroidism, even after surgery two years ago. I have "bone spurs" in the back of my neck.
329994 tn?1301666848 Unfortunately for me, you are the only doctor covered by my insurance so I was forced to see you again. Below is a direct quote from the Mayo Clinic regarding Fibromyalgia: Fibromyalgia is a chronic condition characterized by widespread pain in your muscles, ligaments and tendons, as well as fatigue and multiple tender points — places on your body where slight pressure causes pain. Fibromyalgia occurs in about 2 percent of the population in the United States.
Avatar n tn My DR indicated I could have Restrictive Lung Disorder also/or exercise induced asthma. So he is sending me to the Mayo Clinic in Arizona. I too am baffled by the reports. My lungs are enlarged but I have been a runner all my life/weight train/step aerobics/water aerobics/bike/climb in mts.
Avatar f tn I've bought new shoes, changed my diet drastically, detoxed my body, and so many other things to try to help. I was referred to the Mayo Clinic where I was diagnosed with evidently a derivative of Fibromyalgia called Central Sensitivity Syndrome and not given any prognosis or plan of action.
1830047 tn?1321671393 I have at least three different issues with memory. Fibro fog (or MS, whichever), possible jamais vu (per Mayo Clinic), and sporadic memory loss concerning conversations and things seen (portions or books and movies). I also have sporadic trouble understanding speech and written words as if in a foreign language. As far as I can tell none of these events last more than a couple minutes.
Avatar m tn I am not from the US or IL, so I would go to Mayo Clinic who works in collaboration with CDC (every hospital works with Mayo and CDC since they are research institutes). Please keep us updated on your condition. God Bless!
Avatar f tn Many hospitals thousands of dollars of bills drom hospitals and ER visits its been so bad. No diagnoses except fibromyalgia. even been to the mayo clinic back in jan febuary because the lumbar tap i recieved here in chicago worsened my problems so bad. couldnt walk for months. now im starting to have issues walking again. just found out i have chiari malformation 1 4 weks ago. neuroologist here said it wasnt a big deal but now that i rsearched it on my own i found out it all makes sense.
Avatar f tn Have you ever considered going to a hospital like the Mayo Clinic? I only mention them because that is where I went and can only tell you about my experience there. I went for a cardiologist but ended up seeing quite a few other docs. The cardiologist sent me to an internal med doc and my initial visit was 2 hours. It was amazing. He was very thorough and after my visit with him he scheduled me out to a few other disciplines within the Clinic.