fibromyalgia research mayo clinic

Has anyone from the MS forum ever seek treatment for their MS at the Mayo Clinic? If so, how was your as your experience with physicians from the clinic? I am considering driving up to Mayo at some point if my neurologist in town can't definatively diagnosis me.

Has anybody here been to the neurology clinic at the Mayo or in their inpatient pain treatment program?

Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.

I've not been to the Jacksonville Mayo or the MS clinic in Houston, I'm sorry about that. I have heard a lot of good things about the University of Texas Southwestern Medical Center at Dallas and Dr. Elliot Frohman who works there. I'm sure if you google his name you can find out much more than I can tell you about, here.

I am over the moon excited that DH got a 5-10 day appointment at Mayo Clinic - Dec. 10. Anyone have any experiences on what to expect etc?

Hello. My name is Sarah, and I was diagnosed at Mayo Clinic on Friday with Chronic Fatigue Syndrome and Fibromyalgia. I have been sick for 4 years, and had seen 22 doctors before going to Mayo. I have been working half time and have spent progressively less time doing social things with friends. I am now back in Texas and am faced with telling my friends and family about my diagnoses, while trying to let this sink in myself!

My sister was diagnosed with MS (finally) after going to the Mayo Clinic. She had been trying for 2-3 years to find out what was wrong. Her doctors in Kansas were perplexed. She feels like they were not sympathetic to her pains, treating her like she was making it up. She said the doctors at Mayo Clinic are proud to the point of being pompous-but they know their stuff, so they have the right to be that way. She thinks I have MS from my symptoms, because my symptoms are so similar to hers.

Many physicians feel that fibromyalgia is an excuse to be lazy. There is not enough research or the correct medical tests to properly diagnose this condition. It would seem that doctors would look to the one specific body organ which controls calcium in your body (4 parathyroid glands). I have hyperparathyroidism, even after surgery two years ago. I have "bone spurs" in the back of my neck.

I have been at the Mayo Clinic for the last week. It has been a very pleasant experience, given my circumstances. They have been very efficient and very informative. They have treated me like a person and not just a number. I am very impressed. I am looking for some personal advice on medications. I was dx with CIS due to the fact that I am not really experiencing any symptoms other than the optic neuritis, which has resolved for the most part.

I have just made an appointment for a full work up at the Mayo Clinic, does anyone know the tests involved and how much they charge? Thank you!

My new neuro wants to refer me to Mayo Clinic. She thinks this is definitely an autoimmune disease but doesn't think that it is MS due to the intermittent low grade fevers for no apparent reason. I haven't discounted the fact that more than one thing may be going on. Anyway, saw that JH has the big autoimmune disorder research center and wondered, if this is what we're looking at, if it might be the better place to go. Any comments??? Thanks!

been on disability ever since. anyhoo, there is a fibromyalgia clinic in Tucson, AZ that seems to be part of a family of FMS/CFS clinics all over the US. Their approach is more holistic and I don't know if they use narcotic pain meds as part of their treatment protocol. I was not able to get my BCBS to cover the cost of a visit to them, so i have not been yet. I think I'll just suck it up and pay the cost myself just to go see what they have to offer.

A while back I entered the patient scholarship opportunity for the Social Media conference at Mayo Clinic. You may have even been one of the many people who ‘liked’ me through Facebook. They awarded three scholarships for the patient/caregiver and one companion to attend the conference. I was not one of the three people selected to attend, but I did reach out to the winners with my congratulations.

ve bought new shoes, changed my diet drastically, detoxed my body, and so many other things to try to help. I was referred to the Mayo Clinic where I was diagnosed with evidently a derivative of Fibromyalgia called Central Sensitivity Syndrome and not given any prognosis or plan of action.

I went to the Mayo Clinic in AZ in January - hoping to find some answers. I will say that it is a very well run facility - but don't pin your hopes on a big "well known" facility to solve everything for you. The neurologist that I saw at the Mayo clinic didn't want to see my timeline or my list of symptoms - although at the end of my initial appointment, he did take my list of symptoms to include in my chart.

Maybe I was too harsh about Mayo. To be fair to Mayo Clinic, I do think they do have some very good doctors there, maybe it's just hard to get a neuro diagnosis - as it seems to be most other places in this country - so what's new? I did really think the Mayo radiologist who looked at my films was excellent - he found a couple of things the original outside radiologist did not notice such as brain mass loss.

Hello. I am new to this group. Recently diagnosed at Mayo Clinic (after 3 visits during past 4 months) with Fibromyalgia, Central Sensitization Syndrome, Sjogren's Syndrome, Dysautonomia (Autonomic Dysfunction), Migraines and Joint Hypermobility Syndrome. Today, a local rheumatologist in South Florida said "I don't support disability for fibromyalgia." After I questioned this, she said "never, ever" not even when combined with the other diagnoses and symptoms.

m curious as to why so many people are against the Mayo Clinic? I myself am a patient there currently undergoing diagnostics, though I received a clinical MS diagnosis upon first appointment in November, at this time my other cranial issues and viral issues are also being examined. My Neuro there was able to detect issues in one visit that other facilities could not in several other states- including Stanford Over the course off seven years.

Have since been to mayo clinic. I have Fibromyalgia, POTS, Elher-Danlos, Myalgic Encephalomyalitis, SEID to go along with the Celiac and Hashimotos that I already knew about. Wow, I was not expecting that. The first doc that looked at me 6 years ago ruled out the fibro as I didn't have the tender points. Either they developed later or he didn't know how to test for them, this time around I had almost all of them so easy diagnosing.

Truthfully, I've heard one of the best MS Clinics in the US is the Mellen Center at Cleveland Clinic. You might try checking out http://www.mscare.org They list all the clinics available, etc. My neuro said the clinic at Cincinatti isn't that great but thinks Cleveland Clinic is really good. I've never heard of the Mayo Clinic being highly rated for MS, but more for heart desease.

I have mitral valve regurgitation (moderate to severe) and have done some research on the best surgeons for valve operations. The Mayo clinic have very good surgeons and the valve surgeon has puplically stated the biggest problem he sees is that the patient waited too long. The problem can be the stenosis of the valve opening is narrower than normal and restricts blood flow with each heartbeat and the result is an enlarged left ventricle that will reduce conmtractility.

I will probably eventually add some of this information to the Health Pages, but I haven't reviewed any of it yet. But I do want to share this information with all of you, so you can check it out. These are online videos from a conference held last fall in Salt Lake City, Utah.

Fibromyalgia research mayo clinic

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