Fibromyalgia network uk

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fibromyalgia

975514 tn?1325001538 section_id=27670#sec_27670 I urge you to introduce yourself below and tell us a little about what brought you to the Fibromyalgia/CFS Forum. Again, welcome to MedHelp and the Fibromyalgia/CFS forum!
Avatar f tn It hugely under diagnosed in the UK - PM me if you need any contacts, UK websites to look at.
Avatar f tn We lived in the UK then so I paid and went privately. The neuro I saw was one of the best in the UK at that time - this is 7 years ago now - he gave me a full body examination and told me to have an MRI. He wrote to my local Doc's and told them just by looking at me he could tell that I had a demylination disease (MS).
Avatar m tn Quite simply stated lobbying is mathematically equal to corruption. Do you know that many US products sold in the UK and Europe do NOT have the same scum as in the US - research this. Do you know that Russia does not accept US meat?? If this is a surprise, start looking at alternative medicine & diets, holistic cures etc.
802547 tn?1237850517 That is why it is such a huge mistake for you to endorse Jenny McCarthy with her own show on your network. Surely you must realize that McCarthy is neither a medical professional nor a scientist. And yet she acts as a spokesperson for the anti-vaccination movement, a movement that directly impacts people’s health.
Avatar n tn I'm also in a fog and think that it's fibromyalgia. That goes hand in hand with hypothyroidism. But good luck.Maybe someone will find out what going on with all of us that are having problems with meds.
280418 tn?1306329510 , because the neurologist I saw just thought I was a faker and ran some tests but refused to see me to discuss them. Besides fibromyalgia and chronic fatigue and hormone deficiencies, no one ever came up with a tentative diagnosis before I found my way to an LLMD, so perhaps there was a whole voyage through other possible diagnoses that I missed.
Avatar m tn I am going to a specialsit clinic in the UK for Lymes and other autoimmune problems even fibromyalgia and M.E. just to see if they can find something going on. The pain gets to me somedays, but i wont take pain meds I have a high threshold for pain but somedays I feel like screaming. How can we have so much pain but have no diagnosis it is just mad. I really feel for you but try to keep positive. It sounds to me as though you have been through enough already without adding to it all.
Avatar n tn //www.medhelp.org/posts/Fibromyalgia/Fibromyalgia--Rectum-spasms--nerve-pulsations/show/1013658 Just wanted to check if you've found-out solutions for your "Obstructed Defecation Disorder" & your persistant rectal spasms. Again, my story is i was about to die because of this medical condition, as at one point i was unable to pass out for about 10 days! Then I had this BOTOX injection in my anal muscles, & my problem is almost totally solved.
Avatar f tn ok i found this on the lyrcia site Lyrica withdrawal Lyrica is a prescription drug designed to help deal with epilepsy, nerve pain from things like Shingles, and the pain from fibromyalgia. Although it is not fully understood how the combination of chemicals works to help these problems, it has been shown to be very effective. However, if you've been on Lyrica and now have to go off of it for any reason, there are some things you should know about Lyrica withdrawal.
220917 tn?1309788081 The thing is, it really is the CFS/FM thing, just getting to the cause more, in his opinion. He feels that Fibromyalgia is not a diagnosis on its own. (I have been diagnosed with Fibro years ago -- have all the tender spots -- have never been treated for it.) He feels that hypothalamic dysfunction is the underlying diagnosis for Fibro and CFS, if I understand him correctly. He didn't come right out and say that. I am guessing this is what he was getting at.
Avatar f tn I have fibromyalgia, but for the most part I manage with diet and excercise. Found this site and read about vacc's and fibro flares. Was willing to believe the vacc caused a fibro flare....but yet....a niggly feeling within that knew it was more vacc related. Then I found you :) I saw myself in each and everyone of your stories - woke my mom up and she read with me. Everything I told her and the doc's was written here, by the many posters. I am not alone.
195469 tn?1388326488 I also got in touch with people in my local district who had it too and we formed a bit of a support network. Thankfully I seemed to shake it in late 2004 but suffered from relapses since then. I think I started getting over it due to my age - I was 19 when symptoms started in earnest and 21 when I got back to full time work. I am now in a full blown episode, as you know, but the unfortunate thing is that it is not CFS - I have already seen my specialist and he has ruled this out.
Avatar f tn didn't have that luxury here in the UK, but have read it since. The treatments here run a bit behind the U.S. due to funding but grateful I'm SVR tho, but wish they had studied it longer using us as guinea pigs with a wait and see policy.... Like all stats, it looks good that they have 'cured' you but dispense with you as soon as that target is reached...I have not been followed up by my dispensing hospital..
Avatar n tn I have pain in my chest a lot. I also was diagnosed with Fibromyalgia last year. I get numb places along my jaw line on the left side of my face a lot. Anyone else with these problems? I have a gastroenterologist, however, he does not follow me a lot. After reading about the Barrett's Esophagus, (which I had never heard of) it sounds a lot like what I may have. My family doctor has even mentioned I am having sympathy pain from the gallbladder (No, this pain is very REAL).
Avatar f tn Well..I am a network engineer, and it happens I spend most of the time in server rooms. Fans blowing on my head, I felt ashamed to wrap myself in a hoodie, so I didn't, and I got very sick. I simply can't tolerate cold airflowes. We in Holland call it "tocht" I am not sure what the translation is in English. We may all think there is something wrong with us, but animals also get sick when they are exposed to "tocht".
551343 tn?1506834118 Five weeks later I had a second opinion with a leading UK MS specialist which my GP had arranged months before. he took hold of my hands and said I had done the right thing in coming to see him. In my notes he wrote "I think this is ms". I was admitted to hospital for a week with lots of testing. At the end of the week he came to see me and said I think this is ms, but it's rare. He explained it was rare as I didn't show lesions on mri but did show atrophy of optic nerve.
2214462 tn?1339431583 Australia or the UK? USA, state of New Mexico. I've *definitely* been drinking plenty of fluids. I hope I'm not drinking too many, I seem to be peeing constantly. I have not heard before about easing off of carbs or onto protein, I'll have to look it up later when I can read better. Normally I'm pretty on top of my health stuff, but spending so much of my time so out-of-it and weak has really thrown me.
147426 tn?1317269232 We also must remember that the vast majority of the some 400,000 people in the UK and US with MS were diagnosed using the older equipment. For them the new one wasn't needed. We here, who are just lacking sufficient MRI evidence are the one's most likely to benefit from use of the higher resolution machines. Final word (really??) If the signs and symptoms are suggestive and the MRI bafflingly negative - why not go for an image with a better resolution.
620923 tn?1452919248 I have fibromyalgia and in my support group it has been found that 70% of FM suffer's have cord compression in their neck and many suffer from this chiari thing. I've expeirenced numbness and tingling and painful scalp as though my scalp is alive with pain. Not a headache, but in my scalp. I get daily horrid neck/headaches. I have weakness and a cerebral palsy type gait. I've had a cervical mri where it just states sumthin like my cfs space is partially effaced or sumthin like that.
Avatar n tn when they can't find obvious abnormalities on testing. I also got the fibromyalgia diagnosis. True fibromyalgia has specific diagnostic criteria. You must have 11 out of 18 tender points for diagnosis. A lot of doctors just throw this diagnosis at you because they can't find anything else. I was diagnosed by 3 doctors with this. Not one of them checked for the tender points. Anyway, another point to remember...
Avatar n tn (well maybe not) but some of the sides are worse than when I was on it. My hep doc told me to be tested for fibromyalgia but my PCP said not to worry about it. Bull! when I hurt more now than before it is time to do something. I truly hope that your sides ease up soon.
221122 tn?1323014865 I am a UK sufferer of ectopics with missed beats which I can feel in my pulse and sometimes my chest. I was told they were benign, but at times I have been paralysed by anxiety, suffered panic attacks, almost agoraphobic, as I have struggled to accept they are harmless. I was always a 'pull yourself together' person who got on with things regardless. Until you have experienced these things it is difficult to understand the terror they bring - I certainly didn't until I had them.
Avatar n tn ) The vagus nerve also contributes to a network of nerves surrounding the esophagus (the muscular tube carrying food from the mouth to the stomach.) After taking a bite of food the vagus nerve can be stimulated by expansion of the esophagus to let food pass through causing the heart rate to slow down and light headedness results. If fainting results this condition is known as deglutition syncope which translated means swallow fainting.
Avatar m tn All i can realy say is thank god im not the only one For the last 6 months my life has been plauged by health problems this is just the last in a line of events ear infections sinus infections loads of antibiotics . I have a problem that sounds almost exatly like yours .
Avatar n tn My lungs tend to get congested easily and I have constant nasal allergies which are helped by using Nasalcrom ( a cromolyn sodium solution) sprayed up my nose. I have also been diagnosed with fibromyalgia which causes pain and stiffness. I was bed ridded with this until I went off all pain meds and started to take supplement. Metagenics is the brand of vitamins I'm taking. Folic acid is a must. Minerals and Vitamin plus extra calcium, and evening primrose oil.
Avatar f tn I really like my doctor but she seems to be going in a wrong direction with this and wants to categorize me with fibromyalgia. Thats why Id like to bring her some information and see if she'd help with the lymphokine and MELISA tests. I think those odds are just high enough so that the oral surgeon community isn't/or doesnt want to be aware of them so that it is an issue. How did the appointment with the oral surgeon go?