I have been told to get off Enbrel for needed gallbladder surgery. My problem is that when I get off Enbrel, every joint in my body swells, turns red, hurts unbearably and locks up. I become completely bedridden and cannot get dressed or go to the bathroom without help. My blood tests show that, even with the Enbrel, my c reactives and other immune response numbers are very high. They tell me that they will give me prednisone to help with the reaction.
m convinced that there is a correlation between these things and the Enbrel. Have any other Enbrel users been diagnosed with any of these inflammatory diseases? My gut feeling is that the Enbrel truly is the cause, but it has worked so well on my joints, I'm hesitant to try anything else. My Rheumatologist is going to argue with me about my hypothesis, but I know my body. Can anyone give some insight?
you might want to check out this study that was recently completed - A Crohns study using low dose Naltrexone. If you scroll down on the site posted you can read about it and also see the pictures. Please check it out for yourself.
http://www.lowdosenaltrexone.org/
Also, here is the 2008 Conference. http://www.ldninfo.org/conf2008.htm
If you don't have time to look at the 2nd site in entirety, I would suggest scrolling down to Dr.Berkson's Presentation.
Did your doctor prescribe it to you for this? If not, STOP right now...'experimenting' with prescription medications, which are extremely addictive can NEVER have good outcomes.
They all have reported feeling better daily - this off label approach is a God Send! Now I will finish out the 12 weeks - they will do the viral load test again at that time and then 12 weeks post treatment test again to declare me officially SVR!!!
NO HORRIBLE INTERFERON OR RIBAVARIN THIS TIME FOR ME!!
My Doc took me off them to since i been on Enbrel and I don't know why but i think i should be on them.
I'M A MALE 59 YEARS OLD BUT WITH A VERY ACTIVE LIFE STYLE. I;VE HAD RA FOR 25 YEARS, STARTING TAKING METHOTREXATE ABOUT 5 YEARS AGO WITH PREDIZONE FROM TIME TO TIME. AROUND THREE YEARS AGO I WAS HAVING FLARE UPS AND MY DOCTOR ALSO ME ON ENBREL, WORKED VERY GOOD FOR THE RA BUT MY NOW MY THROAT IS ALWAYS SORE AND CONGESTED WITH PHELM. THIS YEAR I'VE SEEM NUMEROUS DOCTORS ENT, GENERAL ALERGIST AND EVEN HAD SINUS SURGERY FOR 30 GRAND, NOTHING FIXED THE THROAT PROBLEMS.
I have had moderate to severe RA for 5 years. Take Enbrel once a week and am supposed to take 5mg. injectible of methotrexate weekly. I had gone without the methotrexate for at least six months and have not noticed any difference at all. I am scared to death of the methotrexate. Can anyone explain why my doctor wants me to continue it if it does not seem to make a difference? I do great on the Enbrel by itself, but am sure there are reasons, I just don't understand!
d like info on natural enbrel alternative.
I have been taking Enbrel for 5 years. I am 57 years. In the last year I have developed a head tremor which is getting progressively worse.
s are interesting to say the least, I had only been on the Enbrel 4 weeks when he said he wanted to take me off of it and try Remicade or Humira. I work in the medical field and researched the heck out of the Enbrel before I started taking it, risk outweighing the benefits etc, it also said it could take up to 3 months to work so I insisted he allow me to give it the full amount of time to work. When you have the time I would love to know the exercises you do.
Just started taking Enbrel self injection, haven't had RA meds since August. Feeling lighted a bit and very anxious. Is this normal and will it fade as time goes on?
my grandmother has arthritis, rheumatoid arthritis, and she gets injections of something called "enbrel" maybe ask your doctor about this? also she has to walk everyday or she stiffens up...there are some meds available for rheumatoid arthritis, but i am not sure if they work on osteo-arthritis...ask your doc about this med called enbrel...worth a shot...no pun intended...GL!!!
when she gets bad she will also get shots of cortizone...
Ativan
Benadryl
Bethanechol
Buspar
Compazine
Domperidone
Erythromycin
Kytril
Marinol
Meclizine
Octreotide
Phenergan
Reglan
Remeron
Scopolamine
Tigan
Vistaril
Vitamin B6
Zofran
I currently am taking Ativan, IV Benadryl, Zofran, Domperidone, and Vitamin B6.
Hello there,
I am 24 years old male I was recently diagnosed with Reiter's Syndrome (Reactive Arthritis). I am positive for HLA-B27 antigen. It's been almost one month since the first swelling and before that I had Chlamydia. My symptoms so far are swelling in knees, elbow, ankles, toes, wrist, fingers, and I think in my spine too, and of course, pain and stiffness. I didn't have any other problem from the list of problems that come with Reiter's.
weird, never thought that enbrel would be a cause of hpv. I have developed hpv before starting on enbrel. what connection is there between the two?
t stay on it very long until I have an infection and have to go off for awhile. Enbrel seemed a little nicer but not quite enough to control my disease. Its a fine line. I also live on 15 mg Prednisone a day, more or flares. I have lesions in my bowel from the disease that need to be controlled or my bowel has to be taken out soon. But again, lesions, then infection, lesions, then infection. The Lord giveth and The Lord taketh away; BLESSED BE THE NAME OF THE LORD!
Recently, the RA flared up and my doctor added Enbrel. I have severe headches and feel like my heart is beating so fast that i get dizzy. The doctor thinks that this is because I am on yet another medication and my body has to adjust. Is anyone familiar with this drug? Has anyone gone as far as to have a second opinion for their RA? I just find it scary to give you one drug to have to counteract side effects with another. Then they add more.
A friend of mine has PA and has been taking Enbrel for years and she is in great health now. I started taking it 14 weeks ago after being so miserable for 4 years. I feel the best I have since getting sick 4 years ago. I urge you to speak to your Dr. about it. Take care.
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