...not trying to start an argument; I just want people to find the right information when they come to Medhelp!
Although, last week I was tested for EBV and CMV, and my blood-work came back positive for IgG and IgM in the EBV test. As a result, I do have a reactivation of the Epstein Barr Virus, which initially I had back in 2003. My next appointment is tomorrow with an Infectious Disease Doc and hopefully the treatment he recommends will be effective against this virus.. The crazy thing is Ive had this reactivation of the EBV for almost a year now and this past year has been the worst year of my life.
She was treated for 14 days with acyclovir and dexamethasone for presumed viral encephalitis. One month later, her temperature had returned to normal, and her mental status and arm strength were normal, although a flaccid paraparesis persisted. One year later, she was able to walk with the aid of a walking frame and sphincter function had returned to normal.
Although fatigue is a symptom of active EBV, I agree with PlateletGal that you should try to see a doctor for CFS.
I'm 25 years old and have had CAEBV for 10 years now, which is Chronic Active Epstein-Barr Virus. I know that isn't really something you want to read since you said you've seen a lot of chronic cases listed and it is bringing you down. Don't let it! Worry and stress over the situation will only make things worse. You need to relax.
I've been dealing with EBV for at least two years now and I hate to admit that I think I have chronic EBV. I'm male, late twenties, active, able to hold a job, try to stay health conscious with food, exercise, am a non smoker. I've experienced many crazy symptoms since getting EBV and after being tested a year later my EBV levels have not decreased at all since the beginning.
Hello all! I'm looking for any hope anyone has to share. I've truly lost any hope since I have been so incredibly sick for far too long. EBV has taken over and there's zero quality to my life anymore. I'm completely alone in this fight to recover.
Timeline:
July 2021- Starting feeling ill, intermittently. Chalked it up to stress and anxiety
September - symptoms of feeling ill become noticeably worse. Thought perhaps I came down with Covid. Tested negative.
i would check HCV and HBV PCR as well as EBV PCR. Also, I would check a CT scan or U/S of the liver. what are the alkaline phosphatase and bilirubin levels? These are not dangerously elevated so watchful waiting is reasonable.
Hi all. I’m new here. I’m a 51 yr old woman. I was just recently DXed with chronic EBV. I remember the initial occurrence. It was in September, 2011. I’ve hurt (achiness, warm, chills ever since). At that time I had severe, emotional, mental and physical stress. I had a sore throat, lymph nodes swollen and mild achiness. The pain just got worse over the next month and hung in until this day.
I’ve had numerous DXs. Most were just guesses. Only one was backed up by blood work. Thyrioditis.
Greetings Dr. HHH. Hope you’re doing good.
I had an outbreak of genital herpes 2months ago. Prompt care doctor said i might have acquired the virus just recently, 2-3weeks before . BUT, the last time that i had unprotected sex was 2years ago and THAT’S IT. That same day, my blood tested NEGATIVE on both STD&HIV. Doc said it might not be on my blood stream yet. I was given acyclovir and it healed.
1. Is this RARE or unusual it took 2years before the outbreak came out? In your 30yrs.
Which doctors or care providers are best at working with EBV cases? It seems that many care providers are not clear on how to interpret titer levels or treat this virus.
I so appreciate any help or clarity and take comfort in knowing I am not alone. Thanks for all your posts everyone!
Have you had your EBV DNA checked? Positive EBV DNA values over around 2000 in addition to mono symptoms for more than 6 months is diagnostic for CAEBV. If you do have it, you should also find out what type it is. B, T or NK. Not too many dr's know about this as it is very rare. I know because I have it and it's the B type which thankfully is the milder type. All 3 types if there's a tissue or organ involvement can will be lethal and fatal.
I've been suffering for the past few weeks with severe dizziness and tingling sensations all over my body and a constant dull ache in my coccyx. I'm feeling really unwell and wonder if it could be a reoccurrence of EBV (Glandular Fever). Which doctor would I need to consult regarding this? GPS are pretty useless.
I immediately went on 2000 mg acyclovir then switched to 2grams valcyclovir. I took this for 2-3 weeks. During this time the pain in my legs persisted along with weakness in my legs. I also started to get tingling in my arms, back, lower legs, and in my forehead and down the right side of my face. The crazy thing is my tongue also turned white during this time. I went to my primary who told me I probably had been exposed to HSV2 a long time ago and it never had been active.
Well the chronic active form seems to be mostly in children but the chronic EBV is in adults. You can get treated with Acyclovir to knock it down. I don't know if the doctor would be willing to try this or not. Also, there is some research on trying to boost your immunity with immunoglobulin or even IV immunoglobulin and alpha interferon but this is more for the active form in kids and it is still being investigated.
The first time you get infected with EBV (primary EBV infection) you can spread the virus for weeks and even before you have symptoms. Once the virus is in your body, it stays there in a latent (inactive) state. If the virus reactivates, you can potentially spread EBV to others no matter how much time has passed since the initial infection.
Diagnosis
Diagnosing EBV infection can be challenging since symptoms are similar to other illnesses.
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