Fibromyalgia in the news

Common Questions and Answers about Fibromyalgia in the news


Avatar n tn If you have already tried a slew of medications and the Savela is the diamond in the rough, then consider having a discussion with your doctor about a medication you can take before bedtime to counter the effects of the Savella so that you can get some sleep. Sleep deprivation often makes chronic pain worse. It is important to get a good night's sleep so that you body can recharge and heal itself so that it will function better the next day.
Avatar m tn I have fibro also... the good news is that after 18 has gone into remission. IT CAN go into remission. As mahd said you have to take it easy on how much you do as far stress goes. Pace yourself. Calcium supplement and diet help emensly. Try Not to "own" the label of "fibromyalgia" aceptance to the best of your ability is key. Best to you.
Avatar n tn I had that a month ago, I woke up screaming in the middle of the night, I felt like something was closing in on me, like I was buried alive...I woke up with my heart racing and screaming. Scared the dickens out of my husband! lol These are night terrors. They may be due to stress, of course if you have fibro, you're under a lot of constant stress! Pamee, just to ease your mind, why don't you have a heart check up? I did - it really eased my mind knowing I don't have heart disease.
Avatar n tn Fibromyalgia & Fatigue Centers Applaud CDC's Heightened Efforts to ... 20061103T153100-0500 ADDISON, Texas, Nov. 3 /PRNewswire/ -- The Center for Disease Control (CDC) together with the National Institute for Health today announced a four million dollar research program to study the causes and possible treatments for Chronic Fatigue Syndrome (CFS). The CDC also announced an accompanying national education campaign to raise public awareness of this rapidly growing illness.
Avatar f tn When I asked if it could be MS he said no, the lesions for ms are in a very specific area of the brain. He finally agreed to give me a spinal tap based on the lesions and the symptoms. I am now awaiting results from the spinal tap. For those of you who have been diagnosed with Fibromyalgia how did you arrive to a place where you were certain it was that.
709619 tn?1230165075 The pain is worse and spots on my back are aggravated in the mornings. The pain is crawling up my legs and knees and hips. I'm pretty miserable. I don't have insurance so I thought I could find some help here. Anyone have suggestions? this seems very long. Today is especially bad. I'm using a rolling walker to get around.
Avatar f tn Thanks for the info Dusty. I do live in the states-in the midwest. I appreciate this forum. I have been reading quite a bit. this seems to be such a frustrating condition, not only because of the symptoms but because of how hard it is to get a dx and treatment.
Avatar f tn In last five years I was told I have hardening of the arteries of the brain and now PAD in my legs. Is this the same as ischemia.? Neuro said I have low blood oxygen flow to leg muscles because of PAD. Maybe with low blood flow to brain my brain cells transmit pain messages to muscles in rest of body? Who knows?
551343 tn?1506834118 OK I get really confused about the pain found in MS, some neurologist still say there is no PAIN in MS, then on the news in the UK there is this lady who went to court about assisted suicide as she wants to be able to go to Switzerland for assisted suicide and not have her husband arrested, WHEN THE PAIN of her PPMS gets too much for her to bear. Then there is the pain in Fibromyaligia and M.E. When I talk to people who have FM & M.
1852058 tn?1320162300 The Western blot is useless if the bacteria is in the tissues, not the bloodstream. PLUS, the immune system is so overwhelmed, it dosent know what antibodies to make since the surface proteins are changing so often. Listen to my advice, I'm not a Dr but I have been through what you have and am getting better. Also, get a HHV6 IFA test for antibodies and a CD57. HHV6 virus reactivates when you are immunosuppressed and causes MS like symptoms.
Avatar f tn There are many conditions with similar symtomology. The fact that you had many issues with the Interferon, does not surprise me. The good news is that the side effects are only permanent in about 1%. From 3 months and up is the typical time before the side effects start to subside. Did you get diagnosed by a Rheumy for both conditions? Have you ruled out Lyme and Mycoplasma infections or co-infections? In more cases than not, these are present in people that have been diagnosed with FMS.
163305 tn?1333672171 There's a little boy who was injured in Hurricane Sandy in 2012, when a tree fell through the roof of their home, onto his head. His parents were experimenting with an oxygen chamber. I haven't heard recently how it's working out, but I have to wonder if that could be treatment for a variety of conditions.
Avatar f tn yesterday night at quarter to one after switching off the light I started to see very bright lights then after that i started to feel those needdles,tingling sensations again,scent getting sharper and on the top of that starting to see ants everywhere I simply went mad. I rush to the hospital as my temperature was dropping and had to stay there for the night. In the morning i saw a psychiatrist who diagnoses me with Formication I was in Shocked!!
Avatar f tn If you don't have access to a warm pool, find one. That was the only time I had any relief, when i was laying in the warm water. The most important things are first, make sure any medicines you might be taking are as safe as possible for the baby. If you are able to go without then do so. Second, research which medicines react poorly with Fibro when you are in labor. Don't assume your doctor knows how your Fibro impacts the baby's birth.
1340994 tn?1374197577 In a recent study, the cause of fibromyalgia is actually an abnormality in the palms of patients' hands. It was found that patients with fibromyalgia have an enormous increase in the number of sensory nerve fibers within the blood vessels of the skin on the palms of their hands. So the next step is to find out why there are so many of these nerve fibers. It's a start!
Avatar f tn Aside from reductions in pain, patients in the tai chi group reported improvements in mood, quality of life, sleep, self-efficacy and exercise capacity," Yeh's team wrote in a commentary in the same journal. "The potential efficacy and lack of adverse effects now make it reasonable for physicians to support patients' interest in exploring these types of exercises, even if it is too early to take out a prescription pad and write 'tai chi,'" they wrote.
Avatar n tn Hello, I was extremely ill 2 yrs ago and the Doctors ran lots and lots of tests but could not find what was wrong... I was in horrible pain in all my joints, swelling in the joints and my face looked like it was ready to explode!! I was being pushed around in a wheelchair... I then started losing my vision... It was kinda like looking thru oil in water... I was scared to death!!! My husband and I were driving home and it was like a light bulb went off in my head...
1145347 tn?1315802019 Kinda like the chicken and the egg- which came first- It was believed that depression caused Fibro. They still play on this...But in my exprience? The pain and fatigue wins well over the depression. For this reason, I don't like to take their anti-depressants. I don't need mind control- I need releif, and they have yet to show me a drug that will actually work. Lyrica and Savella- all hype. Sorry to hear you have Fibro. I don't wish it on my worst enemy.
Avatar f tn BTW- I am on lyrica and it does help a little...I can't handle the side effects if I take it in the day though so I only take it at night. I suspect that if I could take it in the day that the pain would be less. But, I take what I can I have to function for my kids. Have they mentioned any treatment for you?
Avatar f tn I wonder if I should go off the Lyrica? I was diagnosed with fibromyalgia 40 years ago. I have lumps in all the adipose tissue on my body. They are extremely painful and I have bands of them everywhere. My hips and lower back hurt so bad I can't walk more than a few steps. Some of the lumps are so big that you can see them like on the back of my neck. If you press on me anywhere you can feel them.I think that I have Dercum's but my rheumatologist said he has never seen a case of Dercum's.
358699 tn?1297650042 I had testing done at the Pacific Fatigue Lab in Ca, and they did say that the burning is a lactic acid response, and that ME/CFS sufferers, for some reason, should never do aerobic exercise as we build up lactic acid, unlike other people who can maintain low levels of aerobic exercise for long periods. Since fibro and ME/CFS seem so closely related, I suspect it is a similar problem.
Avatar f tn should i add magnesium and calcium along with the multi vit.? could the klonipin that i am taking be causing toxicity in me? would this be enough to cause a flare? see, thats why i need your experience, from all of you, i have SOOOO much to learn...i remember reading about toxicity...but guess i would have never really thought of it concerning my current meds... i was told by my doctor that cymbalta is good for fibro sufferers, which is why i take that? any thoughts?
Avatar m tn My symptoms include unilateral weakness, twitching and cramps. the weakness started in the lfet leg and now is in left hand and arm. I also have tremor in left hand and arm. Last night half of my head went numb and left arm all the way to left pinky finger was numb and stiff. This sounds very different form other people who are experiencing fibro. I would just like some reassurance. I am terrified it is ALS/MND or another horrible neurological illness.
678449 tn?1263558216 7 months later I am up to 3-4 times per week 40 minutes in the pool (walking only) 15 minutes in the sauna. I lost 25 pounds to date. I feel like a new person. My pain is definitely still there and for the rest of my life and I have finally accepted it I will have pain but I will live my life, confident, aging with better health than I thought was possible. I take supplements and get B12 shots monthly. I drink 98 ounces of water daily. All of this lessens my need for a lot of medication.
Avatar f tn This is just against the virus itself in the bloodstream. And yes, in all that I have read and read on boards like this, many immune symptoms can resolve once the virus is eradicated. That's my sincere hope as well, as I have one more week to go on S& O. The good news is that sometimes a gnarly immune response *could* be protecting the liver in some cases. Perhaps why many report no Hep c symptoms, at all...yet they get a more progressive form of the disease, little immune response.
394017 tn?1255018132 I'm getting an understanding of the procedures I will face but am worried and the fatigue that I have read is associated with the radiation treatments. Also, although I have not had many flares since starting Lyrica, I had one 3 days after getting the mammogram results. I'm concerned about all of this bringing on more flares of pain. I'm trying not to have a "pity party" but I am having feelings of "enough already"!
Avatar n tn Could this pain be fibromyalgia even though it is now only under my ribcage,or could the exposure to the mold have damaged my lungs.I have had xrays of my lungs as well as a pulmonary function test.Both were ok.Any suggestions would be greatly appreciated.I do feel better than I ever thought I would After being so miserable for so long,but now I want this other pain gone too. This discussion is related to <a href='/posts/show/741389'>Rib Cage Pain</a>.
975514 tn?1325001538 The term has gotten a bad rap in the fibromyalgia community because it's been used to suggest our symptoms are the result of somatization, which means "physical manifestations of a psychological illness." On its own, however, the word somatic does not imply a psychological basis. The full article on the new criteria isn't yet available for free online, but a PDF of an appendix including these criteria is.
Avatar n tn Have you gone to a neurologist? Mine spicificly asked me if I felt like I had a band around my chest. If not please look into it.