Ddavp surgery
Common Questions and Answers about Ddavp surgery
ddavp
I had my surgery in Aug 2001, and for the first year or so the DDAVP was good, then slowly it began to change. I started with the nazal spray however, that was like sucking gasoline up my nose, then I switched to the pill form. I have asked if it is possible to have this healed, and they tell me no, however, I pray that it will cease. Anyway I hope to talk again with you, it is just wonderful to finally speak to someone who id DI, I just can't tell you.
Hi again,
It may be that you do not need the DDAVP any more? Yes, it is more common for people to have it temporarily after a surgery or TBI and then it clears up.
But then there are folks who do have it forever. I was in the hospital a few years ago for a surgery. I was catheterized and my urine went into a container. The nurses were shocked when they saw that i urinated ~ 3 gallons a day!!! needless to say DDAVP was ordered.
Hiya,
I read your post. My surgery recovery took about 3 months. But the hormone part can take a year, and will require periodic changes for the rest of your life. I also have DI. I hate it!!! At the beginning you have to be very careful about using too much DDAVP. I've seen many doctors since my surgery, and they do not understand the extreme thirst that we go through. They also tend to over medicate us. So make sure that you take periods in between doses to get rid of extra fluids.
One of the ways we would try to determine this was by prescribing DDAVP (if there were not any issues that would prevent using it). Desmopressin (trade names: DDAVP, Stimate, Minirin) is a synthetic replacement for vasopressin, the hormone that reduces urine production. It may be taken nasally, or as a tablet. Lack of the hormone vasopressin is more common in men than in women. Typically, those that do not produce enough will "correct" by the end of puberty (19-25 years old for men).
The tumor was germinoma. Yes u are right it was the optic nerve. I don't know for sure if my pituitary gland still functions I take ddavp, I also took growth hormones in the past and I take l cortef. But I'm not sure. Thanks so much I have a docs visit soon and Ill ask him more about my tumor. Thanks again for your help. And about the scar tissue he wants another MRI and then him and other docs will decide to do a biopsy or something els.
however, lately I have to urinate constantly and have headaches a lot like I did b4 surgery. I do remember my endo telling me something about frequent urination and giving me shots in the hospital because of frequent trips to the potty. I don't remember why or what caused the urination and am tired of getting up every hour at night to pee. should I be concerned?
My question is I have asked her endocrinologist to prescribe DDAVP for her to take during several camps she has this summer. He will not because of a chance she could have a seizure. I can't remember the exact reason but it does have to do with her diabetes and how DDAVP interact in a diabetic's body. He said the chance is very low, but possible. Could you give me your thoughts on a Type 1 diabetic using DDAVP.
she will have 4 packets of oatmeal and a glass of milk in the am. Another possible symptom is nocturnal enuresis. She is on DDAVP at night .05 mg X approx. 4 months. If I remember to wake her up around 2am she may be dry, before the DDAVP she was going through 2 goodnights diapers a night... if I didn't change it midway she and the bed would be completely soaked.
Anyway, her Thyroid was hyperactive, and she is allergic to Milk and Eggs (she did have hives when we were at the Dr).
There was a small piece of the tumor left behind but six months ago I had a MRI and it had not grown since the MRI that was done post surgery. I am currently on 50 mcg levothyroxine and my endo told me all my other tests (six months ago also) were normal. Since surgery I have been extremely thirsty and urinating a lot. Originally I was on DDAVP nasal spray to control it but the doctors told me I don't need it anymore.
We have a 7 year old colllie just diagnosed with Diabetes Insipetes (nephrogenic). Vet recommends treatment with ddavp eye drop. All the information we can find says that this is "very expensive". Can you give us a ballpark of what this actually means for annual cost of care? What are the implications of leaving this untreated if she has on going access to fresh clean water?
There is a drug called Desmopressin (DDAVP) it reduces urine production at night. But drinking too much liquid with the medication can cause problems, and Desmopressin should be avoided if you have symptoms such as a fever, diarrhea or nausea. Be sure to carefully follow instructions for using this drug.
Desmopressin is given orally as a tablet and is only for patients over 5 years old.
I have used a nasal spray (DDAVP) for three weeks, but the bleeding did not stop. I tried doubling up on the nasal spray since I was prescribed the wrong strength, but it did not help. I had my second Depo Provera shot on December 7. I thought it would help make the bleeding stop, but I am still bleeding. I have also tried a estrogen pill I was prescribed, but it has not helped.
I know I will have light bleeding on the Depo Provera, but is it normal to be bleeding for 37 days?
So I have to take DDAVP most of the time now. Before I used to be able to get away with only taking it at night. Maybe this is part of what is going on. I don't really have answer per se, but just an idea on why it might fluctuate more if u have it.
t tolerate the medication and my tumor shrunk but my prolactin levels were still around 200-250. After my surgery my prolactin level went up to 550. They put me back on medication (dostinex) two weeks later my prolactin is still around 250.
It usually suppose to go down but in my case still too high..anybody has any suggestion, comment.
ive never went this much during the night..i had to go get on some meds called ddavp to slow it down so i can sleep..
I had a hemotologist rule out vonwildebrands - but they decided that I had something, but they did not know what it was - so they called it idiopathic thromocytopathy (not thrombocytopenia, which is the normal disease) as my platelets just do not clump. Before surgery I get DDAVP to clump.
I know of another Cushing's person with periods that are horrid - she gets them twice a month.
An idea... And you need not have every symptom to have Cushing's either.
I also had low iron.
He also mentioned that she might have a missing hormone but more tests need too be done. In the meantime he has prescribed DDAVP, saying that this might help and if it does she will need this drug support for her entire life.
Hi, I was just diagnosed with a 6 mm HGH pituitary tumor and am being scheduled for surgery at Vanderbilt University Medical Center in Tennessee. I have been told that 3 to 4 pit surgeries are performed there per week. Am I with a good hospital for this? I have been reading everything I can get my hands on regarding my condition and am so happy I found this site.
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