All other tests and antibodies were negative, SED rate was normal, liver and kidney chemistries normal, C-reactive protein normal, no anemia, CBC normal, etc.
Doc wants me to start Asacol but the side effects seem worse than my mild diarrhea. Question is, should I take the anti-inflammatory to try and stop the autoimmune process? The rheumy thinks this could progress to Crohn's, Colitis or autoimmune hepatitis someday. Has anyone out there had issues taking Asacol?
i was prescribed asacol 2x 400mg, 3 times a day for two weeks. after this time i was also diagnosed with CKD at stage 3a with a GFR of 53 and a creatinine clearance of 87.14ml/min.
i took asacol again for one month at a reduced rate of 1x 400mg, 3 times a day (3-4 tablets recommended for prevention of relapse).
then i stopped taking it for 2 months.
i took asacol again at 1x400mg, 2 times a day for 2 months.
Has anyone tried Lialda? Does it perform any better than Asacol? How much more is your co-pay for Lialda than Asacol. I want to ask my doc to make a switch.
All other tests and antibodies were negative, SED rate was normal, liver and kidney chemistries normal, C-reactive protein normal, no anemia, CBC normal, etc.
Doc wants me to start Asacol but the side effects seem worse than my mild diarrhea. Question is, should I take the anti-inflammatory to try and stop the autoimmune process? The rheumy thinks this could progress to Crohn's, Colitis or autoimmune hepatitis someday.
I'm thinking about consulting a naturopathic doctor.
A related discussion, <a href="/posts/Gastroenterology/Asacol-800/show/1876778">Asacol 800</a> was started.
I do still take Asacol because I look at controlling the inflammation as being very important. Her symptoms may have subsided, but you don't want the disease to do further damage to her digestive system...so that would be my only fear of not taking a medical treatment.
It sounds like you have a good combination of supplements going.
I think the real name of what I have is microscopic ulcerative colitis. I get really bad kidney pain from the Asacol so they switched me to Apriso and I just took as many pills (up to 4 max) a day as I could tolerate. Had to balance a fine line between feeling ill from my disease and feeling ill from the meds but recently (last 3 weeks) I have been able to take the full dose every day without any pain so I guess my body adjusted to the medicine.
See your doc and keep your head up.
I have noticed that my asacol is not breaking down and is being passed in my stool! Is their a reason for this? What can/should I do?
The Gastro doc wants to treat me with Asacol, but I am suffering from CKD GFRaround 45%.......I told doc and he said ok entercort would be the alternative. that is also an issue as i am a diabetic I have read that just taking imodium and fiber works quiet often also pepto bismol is this correct, Immodium is what i have been using for the last four years any where from 1/2 a pill per day to 1 pill depending if I have not had a movement for day then i back off until I do.
I have a NEW G.I. doc who keeps referring me to a colonoscopy and an MRCP before she decides to do anything but I've had a flare-up of UC for a month and need some relief. Today I saw a whole Asacol HD tablet excreted and the G.I.doc said "that's ok--it's still absorbed." Ok--so now I must be reasonable and ask a question as how is it absorbed when NONE OF IT--repeat, NONE OF IT---is degraded at all? This woman doesn't get it. Anyway, what should I do now?
Is there a program where my son can get help with his Rx for asacol? He does not have insurance.
I continued to bleed even while taking Asacol. Because my iron and crit was normal no one was concerned. I was what everyone considered a very healthy person, besides rectal bleeding. By mid July I decided to try another GI. Two to three weeks before, I started getting symptoms of blurred vision, left arm heaviness, hair loss, weakness, nausea all the time, dizziness, sensitivity to noise, and very heavy head. I started forgetting things feeling like I was loosing my mind.
The idea is to get off the steroids asap but make sure the bleeding is stopped. The other thing is to increase the Asacol right away to get the UC under control and adjust her dosage to manage it. If she is still having trouble then she needs to treat it from both ends, so get her GI to prescribe an enema nightly with her regular Asacol orally but it's very important to get her off the prednezone. It's bad taking it continuously.
He was switched from Asacol to Pentasa when his liver enzymes were slightly elevated. He was on a steroid for the first 2 years after he was diagnosed. He hasn't been on a steroid since 2006, when he was diagnosed with Diabetes. The Steroids are more for the flares, the Pentasa is used more as a maintenance drug. He is also on Purinethol, which is chemotherapy agent, to help decrease abnormal growths. Good luck.
From the posts I read it seems that many were taking above the max dose 4000 mg of acetaminfen daily. Irreversable liver/kidney damage has always been a big concern to me which is why I never exceed the 4000 mg a day. I just had blood drawn yesterday & will nervously await the results. If they tell me my enzymes are higher it will be easier to quit. I think. Have any of you had any damage to liver/kidney damage as a result of your vicodin use?
Had coloscopy in August-showed some mild inflammation in ilieum and rectal area-was put on Asacol. Asacol helped the rectal pain but RLQ pain continued. Went back to ED in Nov for severe RLQ pain. CT and bloodwork normal. I had changed from Asacol to Pentasa the week before and the rectal pain had come back-significant burning pain. Went to another doctor and had more bloodwork-borderline IBD tests. Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain.
Hello Ursamere.
As you probably know, we're not physicians here, but are happy to share our experiences with you so you can explore the ideas further with your diabetes team. I'm also a long-time DMer - about 35 years.
5.6 is an excellent a1c and as one who's not (yet) achieved an a1c under 6, I admire the work & discipline it takes to achieve that.
Try to stay away from dairy, alcohol, grains (have rice instead). If you can figure out what triggered the flare, that would be helpful so you know to avoid it in the future.
I just got bloodwork back saying my EFGR is 50
Has always been >60
I am embarrassed to say I don't even know if the old one was normal or not, no md ever said I had a kidney issue, I just finished 12 weeks of treatment and am undetected but now I am freaked out by these kidney numera
I wrote my md but have not heard back yet
Doesn't anyone know or understnad this, I am having trouble understanding what I read from google searches
Thanks CH
The only way to truly ease your mind is by being totally honest with him/her. I have liver damage and kidney damage due to drugs stage 2 liver stage 3 kidney.. if your liver were damaged and you had a flare your belly would be extended/pain upper right you would be lethargic/vomiting.. other symptoms but these being severe.. It is not fun and I would not wish it on anyone.. I contracted hep C from slamming and further continued the damage through pills/alcohol..
[1]
Stage 2
Mild reduction in GFR (60-89 mL/min/1.73 m2) with kidney damage. Kidney damage is defined as pathologic abnormalities or markers of damage, including abnormalities in blood or urine test or imaging studies.[1]
Stage 3
Moderate reduction in GFR (30-59 mL/min/1.73 m2).[1] British guidelines distinguish between stage 3A (GFR 45-59) and stage 3B (GFR 30-44) for purposes of screening and referral.
Recommended
