All other tests and antibodies were negative, SED rate was normal, liver and kidney chemistries normal, C-reactive protein normal, no anemia, CBC normal, etc.
Doc wants me to start Asacol but the side effects seem worse than my mild diarrhea. Question is, should I take the anti-inflammatory to try and stop the autoimmune process? The rheumy thinks this could progress to Crohn's, Colitis or autoimmune hepatitis someday. Has anyone out there had issues taking Asacol?
He went through many tests and they finally diagnosed him with Crohn’s Disease. We have tried several different treatments and nothing seems to be working. However, he also still has many symptoms that are unrelated to the Crohn’s Disease and they are now testing him for other diseases which may be Lupus, MS and or Rheumatoid Arthritis.
t get the diarrhea under control soon you may have to go back to the Asacol. The longer you have active disease the more it can hurt the lining of your bowel and possibly result in what happened with me. My son now has colitis (much worse than what I had in the early stages) and they put him on Imuran (an immune suppressant) and he has been in complete remission for the last year.
Pay attention to what is going on and if it gets real bad you must get back to your gastro doc.
He was switched from Asacol to Pentasa when his liver enzymes were slightly elevated. He was on a steroid for the first 2 years after he was diagnosed. He hasn't been on a steroid since 2006, when he was diagnosed with Diabetes. The Steroids are more for the flares, the Pentasa is used more as a maintenance drug. He is also on Purinethol, which is chemotherapy agent, to help decrease abnormal growths. Good luck.
I think the real name of what I have is microscopic ulcerative colitis. I get really bad kidney pain from the Asacol so they switched me to Apriso and I just took as many pills (up to 4 max) a day as I could tolerate. Had to balance a fine line between feeling ill from my disease and feeling ill from the meds but recently (last 3 weeks) I have been able to take the full dose every day without any pain so I guess my body adjusted to the medicine.
See your doc and keep your head up.
Has anyone tried Lialda? Does it perform any better than Asacol? How much more is your co-pay for Lialda than Asacol. I want to ask my doc to make a switch.
My daughter has Crohn's disease and had it about 1 yr at least.At 1st she would go to bath rm and it was all blood for quite awhile then they did biopies and found crohns.Shes on asscol meds( not sure spelling) and predisone. She been on predisone since July as when she gets off she starts up again.The dr wants her to take med..6MP and she scared and won't do it.She needs to get off predisone and 6mp causes cnacer and lose ur hair her pharmist told her.
Had coloscopy in August-showed some mild inflammation in ilieum and rectal area-was put on Asacol. Asacol helped the rectal pain but RLQ pain continued. Went back to ED in Nov for severe RLQ pain. CT and bloodwork normal. I had changed from Asacol to Pentasa the week before and the rectal pain had come back-significant burning pain. Went to another doctor and had more bloodwork-borderline IBD tests. Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain.
i was prescribed asacol 2x 400mg, 3 times a day for two weeks. after this time i was also diagnosed with CKD at stage 3a with a GFR of 53 and a creatinine clearance of 87.14ml/min.
i took asacol again for one month at a reduced rate of 1x 400mg, 3 times a day (3-4 tablets recommended for prevention of relapse).
then i stopped taking it for 2 months.
i took asacol again at 1x400mg, 2 times a day for 2 months.
A related discussion, <a href="/posts/Gastroenterology/Asacol-800/show/1876778">Asacol 800</a> was started.
after being diagnosed with uc he was placed on asacol 1200mg. 3 times a day, prednisone a couple of times last year, entocort most recently, and asacol enemas at night at times. Just recently he started getting muscle cramps, flu like symptoms with bronchitis and had a glucose level of 169, and a cholesterol level in the high 160s as well. He had had an alkaline phosphate level up to almost 600 for years and stays very fatigued and in pain. i am so worried about him. he is overweight.
Hi everyone:
I am newly diagnosed Crohn's disease. Crohn's is actually my seventh disease. I have diabetes, diabetic neuropathy, Addison's disease, carcinoid syndrome, intersticial lung disease and sirosis of the liver. I had a colonoscopy done in Boston a month ago and learned that all the pain I have been having in my stomach (which they kept testing me for diviticilitis (sp?) for the last year was in fact Crohn's.
Diagnosed w/ Ulcerated colitus -Asacol prescribed. Have had disease since I was 16 -- I'm now 61. The days and weeks of diahrrea limit my life and activities. Outside of Colostomy, I know there is no cure, but can taking over the counter drugs like acidolphus bring any relief. Taking Immodium Ad only adds to the problem with severe stomach cramps. I know steroid treatment is out there, but not looking forward to side effect.
DO you have any diarrhea with pain around your belly button area or joint pain? I take Imuran and Asacol with the occasional prednisone and that seems to be working well. It's hard when doctors change I also recently just had to take my bx results to another gastro because my current one, he's great, he retired damn it! But it's almost like you have to start over with them it's so frustrating.
I have noticed that my asacol is not breaking down and is being passed in my stool! Is their a reason for this? What can/should I do?
I do still take Asacol because I look at controlling the inflammation as being very important. Her symptoms may have subsided, but you don't want the disease to do further damage to her digestive system...so that would be my only fear of not taking a medical treatment.
It sounds like you have a good combination of supplements going.
I have been on it, but for me it did not do anything, but I have a really bad case of crohn's. I have been on every medication in the book except for remicaid which they are doing next, but here are some of the meds that seemed to help me the most.
entocort
prednisone 40mg daily for 1 week, then 30 a day for a week, 20mg a day for a week, 10mg a day for a week 5mg a day for a week.
Hi Doc:
So I've had stomach issues ever since I can remember. Bad cramping, diarrhea..etc. 5 years ago i started to get this discomfort in my upper right abdomen that came and went without any obvious reasoning and was certainly effected by my posture. Oh and i always, since I was 19, had this retrosternal pain that was explained as chondritis. This pain can be manipulted by me and reproduced by pushing or changing position.
20+ years ago I was an energetic, vibrant career woman. I gave birth to a child in 1988 and soon after began feeling just not up to par. I was having increased fatigue and also an increase in my appetite w/o weight gain but did notice paler more frequent, voluminous stools. My GP referred me to a gastroenterologist who found no conclusive causes for my symptoms after checking blood work and a stool culture.
I have a NEW G.I. doc who keeps referring me to a colonoscopy and an MRCP before she decides to do anything but I've had a flare-up of UC for a month and need some relief. Today I saw a whole Asacol HD tablet excreted and the G.I.doc said "that's ok--it's still absorbed." Ok--so now I must be reasonable and ask a question as how is it absorbed when NONE OF IT--repeat, NONE OF IT---is degraded at all? This woman doesn't get it. Anyway, what should I do now?
Is there a program where my son can get help with his Rx for asacol? He does not have insurance.
My 12 year old daughter has juvenile diabetes at 6 yrs. and was recently diagnosed with Crohn;'s disease. I would like to know if there are any other children that have these two Chronic illnesses. She also has acid reflux.. I would like to know how long it takes for her to overcome a flare since she has been on medication for about 3mths. and is still vomitting clear stomach fluids.
Hello,
The symptoms are definitely suggestive of kidney disease. You should get an ultrasound kidneys and kidney function tests done to confirm the diagnosis.
It is very difficult to precisely confirm a diagnosis without examination and investigations and the answer is based on the medical information provided. For exact diagnosis, you are requested to consult your doctor. I sincerely hope that helps. Take care and please do keep me posted on how you are doing.
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