Fibromyalgia and vasculitis

Common Questions and Answers about Fibromyalgia and vasculitis

fibromyalgia

Pathogenic mycoplasma infections causing FMS ( mycoplasmas can take over the immune system ) and a huge disease menu caused by prolonged JNK gene activation from cocaine use -primary- and other factors-secondary- as follows: JNK activated conditions.
I was diagnosed with vasculitis and fibromyalgia about a year and a half ago after bad joint pain, a positive ANA and then waking up with no feeling on my left side (Dr. initially thought it was a stroke and/or lupus). I have been through every battery of tests you can think of. Currently on Prednisone and Imuran, and seems that I can't go below 50 mg. Imuran without adverse reaction. At one point I was on 60 mg. of Prednisone and 100 mg. of Imuran.
I was diagnosed with vasculitis and fibromyalgia about a year and a half ago after bad joint pain, a positive ANA and then waking up with no feeling on my left side (Dr. initially thought it was a stroke and/or lupus). I have been through every battery of tests you can think of. Currently on Prednisone and Imuran, and seems that I can't go below 50 mg. Imuran without adverse reaction. At one point I was on 60 mg. of Prednisone and 100 mg. of Imuran.
When I first got very ill in Tx and had an outbreak of Bart's lesions. It was found that the lesion was from a vasculitis. I had been misdiagnosed many years prior with Fibromyalgia. I just have a strong feeling that fibromyalgia is in realty Lyme and Bart's.
I haven't had regular medical care but have had several doctors quickly call my joint pain fibromyalgia and send me on my way with whatever pain medication. I've also been spacey all my life, forgetful. Clumsy. I went to my GP to ask if I could have ADD. He prescribed Zoloft because I was still breastfeeding my 10 month old son and he said it would be safer. However, November last year all my symptoms came to a head.
He diagnosed me with Vasculitis and stated that my Hepatitis C has caused these symptoms and the Vasculitis and in turn, is affecting my brain. My question is..... "Could the MRSA I contracted along with my Hepatitis C do all this damage to me" I have never had treatment for Hepatitis C. However, the only symptom I had for 10 yrs was a little fatigue... Untill I got MRSA. My condition is slowly getting worse. (About every 6mnths) Will my symptoms ever level off...
Tim, I don't believe we met last year when you were here and I was new to this MS stuff as well. I'm sure Q will appreciate knowing your dx. I just did a look at CNS vasculitis and am wondering if you had a brain biopsy for the final diagnosis? Have they started treatment for you? I would be curious to know more details if you are willing to share. I'm glad you got a dx and now know what you are facing.
you have a successive infection and you certainly could have CFS and/or fibromyalgia. It is very important to get treated right away (that is what the CFS/fibro experts are saying). There is treatment and I hope that you will join us in the fibro/CFS forum and check out our health pages. I have added names and links to some of the best fibro and CFS in the world. Fibro/CFS forum: http://www.medhelp.org/forums/show/44?personal_page_id=1064 Health Pages: http://www.medhelp.
when i have an episode i also feel very irritated and stressed out and it usually starts in the afternoon.also get migraines and have receding but not inflammed or bleeding gums I am thinking now it is all Hep C related.maybe some type of immune response to the virus?
This seems to keep happening even though I am decreasing and weaning off the prednisone. I am now having the vein bulging and pain in my legs and feet as well as having horrible pain in the kidney area. Any suggestions? or did anyone ever get a diagnoses? This discussion is related to <a href='/posts/show/510834'>Temporary Bulging Veins w/ Pain</a>.
A user asked a question about the list of conditions associated with HLA-B27. It was never answered. This is by no means a full list; however, it does contain lupus.
My neurologist did the MRI because symptoms I was having indicated possible MS, since it didn't show that and due to all my symptoms, we believe I have fibromyalgia. I have been previously labed as Chronic Fatigue Syndrome and tested positive for Epstein Barr. I also have peripheral neuropathy. I hope this helps answer your questions and thank you so much for your answer to mine.
-Tumor -medication side effects -central nervous system infections (meningitis) -CNS vasculitis (which often shows up on MRI but sometimes requires an angiogram and lumbar puncture for diagnosis) -neck problems (as in cervicogenic headache which causes predominantly pain at the back of the head) -bleeds in the brain -clots in the veins in the brain (called venous sinus thrombosis, best diagnosed with a test called MRV.
I also have other autoimmune illnesses and fibromyalgia, so I understand how you feel about not knowing what symptom to attribute to which affliction. Sometimes, you just don't know and there is no answer. Mostly though, you just treat the symptom, cuz that's all the docs know how to do, at least that's how it's gone in my case. I hope you find your answers. I'll be thinking of you, and to Karajo, thanks so much for your knowledge on Lyme.
I have an awesome Dr that said that may be part of it but there is something that causes fibromyalgia. I have so many different symptoms and they change from day to day. I've been in hospital and have had to leave my job because of whatever this is and memory problems. At one time was taking between 30 - 40 pills a day with 8 different drs. I am sure you have forund out that every different symptom has a different dr to see. I have changed the approach to drs.
Other causes include, but are not limited to, migraine, multiple sclerosis, other demyelinating disease, and inflammatory processes such as vasculitis, but these would have to be taken in the right context of the patient. Obviously some of these are much more serious than others.
Personally, I think there is no such condition as fibromyalgia and chonic fatigue and its just a cop out diagnosis to keep them in the business of cashing in on my pain and symptoms thru unnessary surgeries, tests, and proceedures, not to mention the BIG PHARMA bonuses they get from dolling out drugs that havent been approved thru the FDA by way of "free samples!
My chronic pain started within a week of starting Pegasys/Ribavirin and having peripheral neuropathy (cryoglobulinemic vasculitis related) greatly exacerbated. My neurologist and pain management specialist agreed on 1200mg Neurontin per day and 15mg Oxycodone per day. This combination works far better than the 40mg of Oxycontin I was on for the first couple of months. Some people, like myself, can't take NSAID's (non-steroidal anti-inflammatory drugs like aspirin, ibuprophen, vioxx, etc.).
I experience unusual burning, tingling, prickling throughout the body, but it all started with what felt like joint swelling and pain similar to fibromyalgia. That has disapated to some degree; now I have sharp shooting pains and the parenthesis. My problem is it is on both sides of the body and I get it everywhere. I get the slight burn or tingly sensation on my face but it is right around the chin on both sides like a chin strap.
I went, ALL blood work was normal, and I had pain in joints, but no swelling. The rheumie said fibromyalgia and put me on Celexa for pain. Well, it helped a bit, and I felt better for a while, but never was completely without symptms. I just kind of dealt with it - slept a lot, took alot of Ibuprofen, etc.
The docs said this time I definitely have an autoimmune disease, it's not fibromyalgia, since there are a lot of other things going on besides joint and muscle pain. *sigh* Fibromyalgia ain't that great of a diagnosis either, but well, you just gotta make lemonade out of the lemons in life... or make some sangria with them.
He could not find anything specific, said may be fibromyalgia. HELP. 1) Could I have a connective tissue disorder (Lupus, vasculitis, rheumatoid, etc) even though the blood has come back normal twice? 2) Could this be stress related? 3) What 'neuritis' could cause the 7th 8th cranial nerve to be slightly larger? 4) Do you feel like MS can really be eliminated? 5) could this be fibromyalgia? 6) Could I have had an adverse reaction to Tequin, and if so when will all this stop?
In the last year my skin has loosened - top layer can be pinched and stays - dry and wrinkled.,alot of muscle loss.Hhistory of balance issues muscle weakness and pain for 15 yrs. EVPs originally showed delays in legs and eyes but mri was clear.Demyllenating disorder was tentative diagnosis.In time infections became common with hypersensativity to antibiotics(serious reactions ie hepatatic,Pain in muscles became severe about 3 yrs ago.
regional enteritis) Chronic Obstructive Pulmonary Disease (COPD or emphysema) Depression, Endometriosis, Fibromyalgia, HIV/AIDS, Infertility Irritable Bowel Syndrome (IBS), Multiple Sclerosis (MS) Murine Inflammatory Bowel Disease, Myalgic Encephalomyelitis (ME) Obsessive Compulsive Disorder (OCD), Parkinson’s Disease Pemphigoid (blistering skin disease), Premenstrual Syndrome (PMS) Polycystic Ovarian Disease (PCOD) or Syndrome (PCOS) Polymyalgia Rheumatica (PMR), Primary Lateral Sclerosis
(BTW, angiogram today showed that everything is in perfect order, but cardiologist said that still doesn't rule out vasculitis and is sending me to JH's vasculitis clinic. So ridiculous! I will go to be on the safe side, but I am so over "mystery diagnosis 2011-13" that I am ready for my padded room! Focusing on the good news: the vasculitis scare got me to quit smoking, which I had no intention of ever really doing, to be honest. Though the cravings are getting bad, I'm done!
Several diseases/categories that I did not see represented are seizures/epilepsy, vasculitis and Wilson's disease. There is a category of epilepsy called Rasmussen's encephalitis that is more common in children, but can have adult onset as well.
The damage that occurs in the blood vessels results in a disease process called a 'vasculitis', and bleeding or clotting in the brain or other vital organs may occur. Loss of fluid from damaged vessels can result in loss of circulation to the extremities and damaged fingers, toes or even limbs may ultimately need to be amputated.
My 16yr old daughter has been having a lot swelling and pain in her ankles, fingers and wrists. There is a lot of arthritis and lupus in my family-and I think she may be getting one of those conditions...but her blood work has all been normal. Most evenings she also develops hives on her back and arms. I've taken her to ER, but we still don't know what's causing these ods symtoms.
He asked if I had seen a rheaumatologist and if fibromyalgia was considered and I told him I had seen one and they said, its not fibro. and vasculitis was also written off. So to end the conversation he threw at me CENTRAL SENSITIZATION SYNDROME !!!!!!!!! What the heck is that??
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