Fibromyalgia and vasculitis
Common Questions and Answers about Fibromyalgia and vasculitis
fibromyalgia
He diagnosed me with Vasculitis and stated that my Hepatitis C has caused these symptoms and the Vasculitis and in turn, is affecting my brain. My question is..... "Could the MRSA I contracted along with my Hepatitis C do all this damage to me" I have never had treatment for Hepatitis C. However, the only symptom I had for 10 yrs was a little fatigue... Untill I got MRSA.
My condition is slowly getting worse. (About every 6mnths) Will my symptoms ever level off...
Excerpts from MedicineNet -Vasculitis Symptoms, Causes, Diagnosis, Treatment, and Types...
"Vasculitis is a group of uncommon diseases, which result in inflammation of the blood vessels.
When I first got very ill in Tx and had an outbreak of Bart's lesions. It was found that the lesion was from a vasculitis. I had been misdiagnosed many years prior with Fibromyalgia. I just have a strong feeling that fibromyalgia is in realty Lyme and Bart's.
I have vitamin d defiency and I have horrible pains in every bone in my body that migrate.It's not always in the same place.It can be in my chest and back and then move into my knee caps and other places.I am currently taking a once a week vitamin I do see any difference so far but this is just week 3,I have 5 more to go.My rheumatologist says its fibromyalgia since she ruled out autoimmune disease but I am just not sure but don't know what else it could be.
One condition in older adults that causes headaches with other neurologic symptoms is vasculitis. However, the headaches and symptoms would not be episodic with return to normal as it sounds like is the case in your mother, but rather constant and progressive.
he also pointed out the purple spots on my shins and feet and said the spots might be Leukocytoclastic vasculitis. the spots range in size from a few mm to about 20 mm. prior to treatment i did not have these purple spots. the hep doc suggested i go back to the derm and have one of the spots biopsied, which i did. we are awaiting the pathology report.
has anyone else developed vasculitis during treatment?
were you prescribed oral steroids or other drugs for the vasculitis?
There are many reasons for leukocytoclastic vasculitis. If you are in a flare and developing ulcers, a punch biopsy with an immunofluorescent test will often determine what is causing this. In my case, it was cutaneous polyarteritis nodosa. Prednisone would control the flare as long as it was in my system, but as soon as it was out, another flare would begin. My disease has been primarily hereditary (50% of my family has had autoimmune disease of some type) and stress.
I would only say, doctors aren't always all that logical. The most logical thing is the most obvious thing, and the thing you did that was different was get the shot, and so that's got to be the most likely source of your problems. Anyone mention GBS? My wife's first two Moderna shots were pretty typical, pain in the arm and she slept all day both times, but the booster was a doozy. She was very sick for three days, and fainted once, fell, and injured herself in the fall.
I was informed that the small biopsy of the dark freckle on my forearm has come back as vasculitis. About a week prior to having this removed I had severe joint pain in every joint in my body and had a series of blodd tests done to test for lyme disease, rocky mt spotted fever, CMP, iron etc... The only thing that came back abnormal on my blood work was my AST/ALT because I have fatty liver disease (my numbers were 89 and 44 to be exact). As quickly as the pain came, it went away in 4 days.
If it is truly Vasculitis it can be a serious condition and is not cured by showers or baths of any sort. You need to find the right doctor to diagnose the cause of the vasculitis. If you have hep c this may be an indication that you have cryoglobulinemia. Typically the vasculitis outbreaks come and go but this does not mean the underlying disease if there is one is gone.
Still hoping to talk to someone who has Wegeners Granulomatosis, Polyarteritis Nodosa or Necrotizing Vasculitis. I would like to discuss symptoms, testing, and diagnosis. thankyou!!!!!!!!!!!!!!!!!!
has anyone done an ANA?
Another option might be CFS or fibromyalgia. I don't think anyone should rule out that there might be more than one thing going on.
you have a successive infection and you certainly could have CFS and/or fibromyalgia. It is very important to get treated right away (that is what the CFS/fibro experts are saying). There is treatment and I hope that you will join us in the fibro/CFS forum and check out our health pages. I have added names and links to some of the best fibro and CFS in the world.
Fibro/CFS forum:
http://www.medhelp.org/forums/show/44?personal_page_id=1064
Health Pages:
http://www.medhelp.
I have vasculitis for over a month now and the prednisone is not helping much. The flares occur almost every week. I had some blood work done and the only ones that came out abnormal are: ASO 800 iu, ESR 100mm/hr, Monocytes .11 (limit is .7)
Now my question is, can this be caused by HIV 7 years AFTER a possible infection?
Please help for peace of mind. Thanks to those who will answer!
I have read that vasculitis is a known symptom of Lyme, along with many other things. It is a confusing disease made worse by unreliable testing and lack of awareness in both patients and doctors. That is great that you got a diagnosis you are confident in. You are welcome to come to the Lyme Disease forum. Tell us about how you found your doctor and your expected treatment plan. We love to compare notes!
Go to the Lyme Disease forum and check out the symptoms there Fibromyalgia has similar symptoms so check them out also, there are lists of symptoms put up by other members or you can google for them.
Diabetes mellitus, vitamin B12 ,vitamin B 6 defficiency,chronic kidney disease,hypothyroidism,Lyme’s disease,fibromyalgia,vasculitis,sarcoidosis are few common possibilities. Diabetes is the commonest cause. Get your blood sugar done. If it is normal then you may need additional tests like electromyography, nerve conduction tests, tests of blood, urine, and/or spinal fluid etc. Vitamin levels can be checked with a simple blood test.
Tim
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