Solumedrol ms relapse
Common Questions and Answers about Solumedrol ms relapse
solumedrol
A doctor told me that there was no medical evidence that showed that solumederal helped an MS relapse and that he and his wife who had MS had opted not to take this course of therapy.
I am on medicare and my solumederal was dispensed at an IV lab in a hospital. My share of the cost was 280 dollar per dose. I have a porta cath and I don't know if this cost was different than if it had been given to me via an IV. How often is she thinking she might need the steroid??
The side affects of the steroids are at this point almost not worth doing. They are trying to prevent a relapse since I am not on any MS therapy. Anyone else going through anything similar? I can't handle the fatigue, shakes, fever, redness, pain, nightsweats, constipation, irritability, overall feeling of crap!
i have a PICC line as I have been going through a 2 mnth relapse with my MS and I finally gave in and went to the hospital....of course it is solumedrol pumping through it but its way different than when I had an IV port last year...question though; I feel so dizzy and have feelings l want to pass out at times even though I don't pass out. is it because of the PICC with solumedrol that is giving me a different experience?
Background-we are awaiting possible DX of MS for my 21 yr old daughter. Her symptoms for the past 3 months, are numb tingling hands all the time, it does not go away. As well as L'hermittes. So my question is would these symptoms be considered her flair ups or her attacks? And do they usually last this long? And do your attacks usually go away without meds?
I am having my first relapse and am wondering if I need to go see the neuro or if this is something I just muster through. My symptoms, while annoying, are not debilating. I've had tingling in my left leg on the front from knee to foot and back pain. This has been going on for about 5 days.
At what point should I get my neuro involved if at all? Thank you all for your help and support.
Hi and welcome,
As far as i'm aware IV solumedrol and Copaxone are often being done together, i've never personally heard of specific interaction problems, usually the choices you get is to stay on Copaxone and do the IV Steroid (with or without oral taper) or stay on Copaxone and skip the Steroids if it's not a major relapse.
I had a 4 day Solumedrol drip and then step down pack in February and it made me worse. All my muscles tightened up and I have more pain than I did before. Call it a major fibromyalgia attack. Even now in May, I am still as stiff and woozy as i was after the glucocorticoid therapy. Sigh. Did nothing for me that I can tell.
I did sweat a lot during the treatment so maybe i lost a few toxins?
ve only had one relapse, a year ago which resulted in my MS diagnosis, but I was hospitalized for the 5-day IV Solumedrol. It was 4 x per day -- every 6 hrs.
The reason for the hospital stay was the need for round-the-clock infusions (no infusion center available at all hours), PLUS Solumedrol can raise blood sugar to dangerous levels, so I had blood sugar tested every 4 or 6 hrs -- got up to 145 once, and 130 twice (I'm not diabetic). I was given insulin shots then.
Wow Lauren,
I really did not expect you to be dx with MS from what you've mentioned in your posts...............hugs!
I'm kind of gob smacked actually, considering your other test results (MRI's, nerve conductor tests etc) not being suggestive of MS, sx's being sensory, symmetrical, in all limbs and your neuro's opinion that it was peripheral nervous system too........gosh your probably breaking all the basic red flags here, so i'm at a loss on what to think or say...
Theoretically yes IF these particular symptoms are pre-existing or had worsened during an MS relapse....a relapse is basically symptom(s) return-worsen-new as in, the return of previously remitted symptoms and or the worsening of existing symptoms and or experiencing new symptoms...
Keep in mind IVSM isn't capable of getting an MSer totally back to being symptom free if they're not still in the early stages.....
I have been diagnosed with MS since 2004. I have positive spinal tap with elevated wbc, and IgG and interestingly NO oligiconal bands which are seen in 95% of MS population. , MRIs have shown multiple enhanced lesions each time I have a relapse. I failed solumedrol (steroid induced psychosis). I've been on copaxone every day since 2004. I continue to have severe progression of many symptoms esp respiratory weakness, facial weakness, leg weakness. I failed tysabri; allergic reaction.
It sounds like you are diagnosed with MS. You had your first and second attacks (or infusions) 5 years ago, but none since. Is this correct?
To address your question, it seems as though you are concerned because you didn't have complete relief after your Solumedrol this time. You improved some and then apparently stayed the same for about a month. Now you are really fatigued and the symptoms are as bad as they were before the infusion last month.
So I'm starting to not feel well like I'm about to have another relapse if that makes sense. My head is aching, my son will not sleep all night he keep waking for a drink, and my legs are feeling weak. I've been stressing and crying bcuz not happy with my life now, ok I'm done babbling. But what I wonder is instead of IV steroids, is there anything else the doc can prescribe. I don't want to have to stay in hospital and leave son.
Hi
After being hospitalized for 3 days and subsequently diagnosed with RRMs 17 months ago, my symptoms didn't go away. The only symptom that resolved was the MS hug after 11 rounds of Solumedrol. I have numb hands and numb left side, pain in the lower back and upper cervical spine, major fatique and brain fog and migraine headaches.
Last week at work, I had my first case of extreme vertigo. I almost went down to the floor.
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