solumedrol for ms

I am scheduled Monday to do an IV for three days of Solumedrol. Has anyone else done that and if so, what is your opinion. I am alittle nervous about it.

I have a lot of things going on and the doctors are trying to figure it all out. They have said MS is a possibility. Thanks for replying to my previous question.

HI EVERYBODY I KNOW IS BEEN A LONG TIME,JUST FEELING INDER THE WEATHER ALOT LATELY ON FRIDAY OCT 16 THEY ARE GOING TO START ME ON CHEMOTHERAPY NOVANTHONE I was just wondering if any body got that done for MS and what are the results and side effects thank u for your help hand have a bless day

Well...assuming my insurance covers it I'm going to go on ACTH. I was unfamiliar with it until you guys had mentioned it. My doctors haven't used it for MS patients for quite a while because most or all tolerate the solumedrol fairly well. Wish me luck. If insurance accepts it I will start the end of this month. I'd love any feed back you guys may have on it...don't know what to expect.

m sorry you have joined our ranks. If the doctor is doing IV solumedrol with the orders for MS, then it sounds pretty sure to me too. At this point you need to go back to the neuro and sit down and discuss treatment options. All of these symptoms you describe could be from the MS and the neuro is the right source for information. It is hard not to panic when you get this dx. Alex is so right .... breathing is essential.

ve had a horrible experience with Solumedrol as well.....Back in March I had extreme leg and groin numbness and went on IV Solumedrol for 3 days....I had a nasty reaction to it, but it DID take away the numbness and vision problems almost immediately....Well, within 48 hours anyway..... In May the left side of my head and face went numb and because I was visiting the MS Clinic at that time, I declined the Solumedrol treatment.....That numbness didn't go away for 20 days.....

This is a good drug, but very hard on someone that is prone to high blood pressure and high blood sugar. Her first treatment with Solumedrol, did not seem to work for her, as well as it did for me. My Optic Neuritis (abbreviated- O.N.) was totally gone in 2 weeks. She said her one eye never really went back to normal. Now the other eye starts. Since the beginning of her attack, she has not been in remission yet. This is a long first attack. I pray for a remission.

In your shoes I wouldn't do the steroids. Your symptoms don't warrant them, though maybe in the future they will. There's a real downside to steroids (see Health Pages), not the least of which can be osteoporosis, so they should be used only when absolutely indicated, not to test a strange theory your neuro has. Steroids reduce inflammation. They help in lots of diseases, not just MS, so they are of no diagnostic use.

Although I can’t comment directly on your diagnosis, you should be aware that most MS patients, and this is especially true for atypical MS (not meeting all of the clinical criteria for MS), and patients who have MS-like signs and symptoms have chronic infections that can also cause many other symptoms unrelated to MS.

Hi Everyone, Like a copper penny, I keep turning up. I haven't been on in a while because I had an exacerbation from the flu shot. Then, Dec. 5 I started IV soluMedrol at home. Nurse came every day and infused me for 3 days, then a nurse followed up with my sugars, etc. for another 4 days. It was great..only way to do it. Ah, but then it gets even better. On Christmas Eve, my family came over and my grandson either had a cold or the flu..By the next night I was sick..

I see a lot of people going on solu-medrol lately, some multiple courses within a short period of time. This really concerns me, especially in regards to the potential serious side effects - some which I have experienced personally. My neurologist is very conservative about prescribing solu-medrol He's explained to me that he doesn't give steroids for sensory symptoms like tingling or feeling numb unless it is a new symptom. He orders an MRI to see if there is any change.

I red an article on MS and there is a new controversial drug for MS called Tysabril. It claims to reduce vision loss. I know nothing about it but maybe someone in the community does.

From what I have heard, they like to do high dose IV Solumedrol and can only be done in the hospital setting during a MS exacerbation, especially if the MRI shows enhanced lesions. That is my understanding -- I can be wrong. I do not think the medrol dose pack could touch the effects that high doses of Solumedrol IV could do. Your job will not allow you to take care of your health? Are you out of personal time off you can take or sick time? Please let us know!

Steroids do not alter the course of disease they only help at the time for symptoms. A person can have MS and not use steroids. I do not know about the other illnesses. Steroids work on inflammation. May be benadryl would help the steroids. I get it with steroids. Dose packs are very different than IV steroids. Did they do a taper with you with the IV and was it at the beginnig you swelled or later?

I started rebif and solumedrol at the same time in July, but call your doctor.. Are call the MS lifelines??

i have a PICC line as I have been going through a 2 mnth relapse with my MS and I finally gave in and went to the hospital....of course it is solumedrol pumping through it but its way different than when I had an IV port last year...question though; I feel so dizzy and have feelings l want to pass out at times even though I don't pass out. is it because of the PICC with solumedrol that is giving me a different experience?

ve been off the solumedrol for 8 days. I was on it for 10 for an MS attack. (a nightmare in and of itself) and my whole neck, chest, arms stomach are covered in hives. Is this from the Sol? My doctor is useless and didn't warn me about ANY of the side effects or check up on me during the treatment. I had to leave 3 messages just to get a call back when I was all done. Uuugghh I hate docs. Coming off was even worse than being on them. Rapid heart, dizziness, HOT flashes.

I had my first dose of solumedrol this morning. For a while I've had some weird tremors (with muscle contraction primarily, but also visible when I hold my hands out, to type or something). I know some fine tremor is normal, but these were more than usual. Now they're much more pronounced today. Is this a normal side effect? I don't feel particularly jittery or wired, but I know it can affect people differently.

Hello I am a 25 year old female and four weeks ago I was diagnosed with optic neuritis, I was admitted to the hospital for 5 days of IV solumedrol therapy (1000 mg a day). After the treatment my vision mostly came back and the eye pain was completely gone. At the same time I also had a burning arm pain in my right arm with numbness and tingling into my fingers. During my hospital stay I had an MRI of my head, which was normal.

Good neuro you have there to not chalk all up to MS. When did you start the Copax? All these DMDs do take time to make a difference. Hope this leaves you quickly. What are you experiencing w/this flare?

ve had numbness on left side of face and complete loss of hearing in left ear (except for a high pitched ringing) for 4 weeks. I had vertigo for the first 2 weeks. Planning on starting solumedrol i.v. as soon as a bladder infection is cleared up. Has anyone lost hearing during an exacerbation?

Solumedrol for ms

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