solumedrol and ms

Hey All- I was just diagnosed with ms. My neuro is a general neuro and basically told me to research the Dmds available and to let him know what I would like to try. Searching, I found you and am excited that there is a group that may actually be able to answer some of my questions. The first thing he wants to do is put me on solumedrol for 5 days, I am not currently in a flair. Any reason I should put myself through that if I am not currently having symptoms?

ve had a horrible experience with Solumedrol as well.....Back in March I had extreme leg and groin numbness and went on IV Solumedrol for 3 days....I had a nasty reaction to it, but it DID take away the numbness and vision problems almost immediately....Well, within 48 hours anyway..... In May the left side of my head and face went numb and because I was visiting the MS Clinic at that time, I declined the Solumedrol treatment.....That numbness didn't go away for 20 days.....

i have a PICC line as I have been going through a 2 mnth relapse with my MS and I finally gave in and went to the hospital....of course it is solumedrol pumping through it but its way different than when I had an IV port last year...question though; I feel so dizzy and have feelings l want to pass out at times even though I don't pass out. is it because of the PICC with solumedrol that is giving me a different experience?

ve been off the solumedrol for 8 days. I was on it for 10 for an MS attack. (a nightmare in and of itself) and my whole neck, chest, arms stomach are covered in hives. Is this from the Sol? My doctor is useless and didn't warn me about ANY of the side effects or check up on me during the treatment. I had to leave 3 messages just to get a call back when I was all done. Uuugghh I hate docs. Coming off was even worse than being on them. Rapid heart, dizziness, HOT flashes.

Given that Lyme disease can cause all of the symptoms of MS, and can cause similar damage on MRI, I'm not sure that I follow your neuro's logic. I also had two "MS-like" brain lesions, and several non-specific ones as well. I was 28 at the time of my scan. I have zero medical training and am in no way trying to diganose you or say that you have Lyme. I of course couldn't know such things!

ll channel Quix here and say what she has repeated to me over and over - if solumedrol cured MS or prevented symptoms, it would be a standard treatment for all of us. It doesn't work that way. The sm only helps to ease the effects of the sxs but does not stop them. With ON, you can wait it out or take the solu - you will still end up with the same end results. It just takes longer on your own without the solumedrol. I hope that makes sense and I did my mentor Quix proud!

Help! I've had numbness on left side of face and complete loss of hearing in left ear (except for a high pitched ringing) for 4 weeks. I had vertigo for the first 2 weeks. Planning on starting solumedrol i.v. as soon as a bladder infection is cleared up. Has anyone lost hearing during an exacerbation?

Solumedrol is known to cause problems with the A1C counts - increases in sugar levels on steroids are common. Were you predisposed to diabetes before you were diagnosed with MS? It may be just coincidence that your sugar is up, but well worth having the discussion with your doc. Can you get information from SS about the 1% and share that with your neuro? If you suspect the copaxone is to blame, your instinct might be right. Is the oral med you are referencing a drug for sugar control?

Sometimes steroids can make things worse. They do not help MS. They at best give relief from inflammation. There is also a rubberband effect when you get off of them where symptoms are worse. Doctors use them basically because they have nothing better to offer.

Hi and welcome, As far as i'm aware IV solumedrol and Copaxone are often being done together, i've never personally heard of specific interaction problems, usually the choices you get is to stay on Copaxone and do the IV Steroid (with or without oral taper) or stay on Copaxone and skip the Steroids if it's not a major relapse.

Does anyone have type 1 diabetes and notice that MS affects their blood sugars? For example has it med it harder for you to control, or does it start to go crazy before or during a flare? I am trying to see if maybe there is a pattern... If you feel that it does affect your sugars if you don't mind sharing how it does I would really appreciate it!

I was diagnosed in 2000 with MS, and for years I have been getting IV Solu-medrol treatments every other month, for three days. Is it possible this affects my menstrual cycle? Can Solu-medrol cause not building up the endometrium? Don't worry, I have had all tests: blood, bone density, ultrasound, pregnancy, and I am very healthy: un-pregnant, taking birth control, and so on. I "only" have MS. My period doesn't happen and I am way too young for menopause.

A doctor told me that there was no medical evidence that showed that solumederal helped an MS relapse and that he and his wife who had MS had opted not to take this course of therapy. I am on medicare and my solumederal was dispensed at an IV lab in a hospital. My share of the cost was 280 dollar per dose. I have a porta cath and I don't know if this cost was different than if it had been given to me via an IV. How often is she thinking she might need the steroid??

m sort of in the same place as QTPieRN433 as to sudden diagnosis of MS and being put on SoluMedrol. Just got a diagnosis on 1/5/10. Lulu54's comment is very encouraging: "Remember, please, that today's MS is nothing like it was 20 years ago. With treatment, you stand a pretty good chance of living a long, relatively healthy life." Thanks everyone for sharing on this site. It helps a lot!

Nancy, thank you for explaining. I haven't been tested yet for the JCVirus and really don't want to be. I feel this is my last chance to stop the damage MS is doing to me. I guess when they do test I will have to face reality. I am so sorry you are back where you started. I hated my normal, too. I will be sending strength your way.

Although I can’t comment directly on your diagnosis, you should be aware that most MS patients, and this is especially true for atypical MS (not meeting all of the clinical criteria for MS), and patients who have MS-like signs and symptoms have chronic infections that can also cause many other symptoms unrelated to MS.

i have mild symptoms - a bit of fuzzy memory, some word recall issues, i stare a lot, i yawn a lot, i have a few small white matter spots on my brain, one could be considered an MS lesion, and i seem to be dropping things here and there. my MS neuro also said that my right arm/hand is a bit weaker than my left. i have not been officially diagnosed. his office just called and wants me to take 1 IV treatment of solumedrol - equivalent to 1 gram of the medication.

We’re always happy to see new faces even though it’s sad we all end up gathering here to deal with MS. I hope you hang around and we get a chance to know you better and help you through the rough times as you start living with MS.

Hi Everyone, Like a copper penny, I keep turning up. I haven't been on in a while because I had an exacerbation from the flu shot. Then, Dec. 5 I started IV soluMedrol at home. Nurse came every day and infused me for 3 days, then a nurse followed up with my sugars, etc. for another 4 days. It was great..only way to do it. Ah, but then it gets even better. On Christmas Eve, my family came over and my grandson either had a cold or the flu..By the next night I was sick..

A mild episode of optic neuritis and later double vision is what got me my first MRI and Solumedrol IV. (and FINALLY dx of MS) My neuro explained that even microscopic involvement of the optic nerve can cause pain and vision problems. My vision returned to normal. I would not hesitate for a second to take steroid treatments for vision involvement. My understanding is that this treatment temporarily dampens the immune system, thus greatly slows the inflammation that does damage.

So we were getting all set up to start my second infusion when I told my Dr. that I had spoken to the new patient intake coordinator today for the ms specialist I am going to see and that, unbelievably my appt is NEXT FRIDAY!!! Both my gp and I were expecting a couple of months out.

I started rebif and solumedrol at the same time in July, but call your doctor.. Are call the MS lifelines??

I asked him what kind of MS I have, and he told me that because of my age and the MRI information, he thinks I have relapsing-remitting MS. I've seen him before, but took the MRI two months later than I should have. His demeanor was different this time. He said "Do you accept that you have MS?" and I responded that I did.He said I needed three days of solumedrol at 1000 mg each day to close my blood brain barrier and selected Tysabri as the MS drug I will be taking.

I just finished a course of 5 days of IV solumedrol for my MS. I am very concerned about the severe depression I am experiencing. Any information?

Involuntary movement in thumb, where it pulls involuntarily into my palm, and I have severely reduced coordination in my right hand. As an MS patient, I was treated with Solumedrol 2 weeks ago, with no improvement, in fact seemingly worse symptoms now. Is there anything else this could be other than an exacerbation?

I'm surprised you're as able to keep up with everyone as well as you do! Anyway, I'm not sure if I have said or not. :-) I can't remember much these days. I saw the MS specialist a few weeks ago and I had noticable neurological signs, she said pertaining to my cerebellum, pons, and c-spine. I won't bother repeating all of them here, but she did ask if I wanted to try a dose of iv steroids at that time.

I had one of two treatment options IV solumedrol again or I could try oral prednisone, this is the option I choose for now, because I had many side effects from the solumedrol. I had to go on insulin, it made my gallbladder go bad and I had to have it removed, I also developed hospital acquired pneumonia from my immune system not working, and I also had lots of problems sleeping. Also this time I have heaviness in my legs with muscle twitching.

Solumedrol and ms

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