solumedrol ms

Hey All- I was just diagnosed with ms. My neuro is a general neuro and basically told me to research the Dmds available and to let him know what I would like to try. Searching, I found you and am excited that there is a group that may actually be able to answer some of my questions. The first thing he wants to do is put me on solumedrol for 5 days, I am not currently in a flair. Any reason I should put myself through that if I am not currently having symptoms?

I am scheduled Monday to do an IV for three days of Solumedrol. Has anyone else done that and if so, what is your opinion. I am alittle nervous about it.

A doctor told me that there was no medical evidence that showed that solumederal helped an MS relapse and that he and his wife who had MS had opted not to take this course of therapy. I am on medicare and my solumederal was dispensed at an IV lab in a hospital. My share of the cost was 280 dollar per dose. I have a porta cath and I don't know if this cost was different than if it had been given to me via an IV. How often is she thinking she might need the steroid??

m sorry you have joined our ranks. If the doctor is doing IV solumedrol with the orders for MS, then it sounds pretty sure to me too. At this point you need to go back to the neuro and sit down and discuss treatment options. All of these symptoms you describe could be from the MS and the neuro is the right source for information. It is hard not to panic when you get this dx. Alex is so right .... breathing is essential.

Okay, I've had MS for 13 years. I was just taken off Tysabri in July, I was on that for almost 5 years. I now have to go on Gylena in January, but before I start the new drug...I have to do 6 months of iv steroids. 3 days every month with NO taper! I have just finished my second round...and I'm ready to through in the towel. The side affects of the steroids are at this point almost not worth doing. They are trying to prevent a relapse since I am not on any MS therapy.

In May the left side of my head and face went numb and because I was visiting the MS Clinic at that time, I declined the Solumedrol treatment.....That numbness didn't go away for 20 days.....but it did go away.... I guess it's up to you whether you want that treatment or not...I'm not really sure what else to tell you...I just wanted to let you know that you're not alone.... Take care and keep us posted as to what the doc says....

ll channel Quix here and say what she has repeated to me over and over - if solumedrol cured MS or prevented symptoms, it would be a standard treatment for all of us. It doesn't work that way. The sm only helps to ease the effects of the sxs but does not stop them. With ON, you can wait it out or take the solu - you will still end up with the same end results. It just takes longer on your own without the solumedrol. I hope that makes sense and I did my mentor Quix proud!

Although I can’t comment directly on your diagnosis, you should be aware that most MS patients, and this is especially true for atypical MS (not meeting all of the clinical criteria for MS), and patients who have MS-like signs and symptoms have chronic infections that can also cause many other symptoms unrelated to MS.

i have mild symptoms - a bit of fuzzy memory, some word recall issues, i stare a lot, i yawn a lot, i have a few small white matter spots on my brain, one could be considered an MS lesion, and i seem to be dropping things here and there. my MS neuro also said that my right arm/hand is a bit weaker than my left. i have not been officially diagnosed. his office just called and wants me to take 1 IV treatment of solumedrol - equivalent to 1 gram of the medication.

Hi Everyone, Like a copper penny, I keep turning up. I haven't been on in a while because I had an exacerbation from the flu shot. Then, Dec. 5 I started IV soluMedrol at home. Nurse came every day and infused me for 3 days, then a nurse followed up with my sugars, etc. for another 4 days. It was great..only way to do it. Ah, but then it gets even better. On Christmas Eve, my family came over and my grandson either had a cold or the flu..By the next night I was sick..

A mild episode of optic neuritis and later double vision is what got me my first MRI and Solumedrol IV. (and FINALLY dx of MS) My neuro explained that even microscopic involvement of the optic nerve can cause pain and vision problems. My vision returned to normal. I would not hesitate for a second to take steroid treatments for vision involvement. My understanding is that this treatment temporarily dampens the immune system, thus greatly slows the inflammation that does damage.

i have a PICC line as I have been going through a 2 mnth relapse with my MS and I finally gave in and went to the hospital....of course it is solumedrol pumping through it but its way different than when I had an IV port last year...question though; I feel so dizzy and have feelings l want to pass out at times even though I don't pass out. is it because of the PICC with solumedrol that is giving me a different experience?

I am 9 days out from getting 5,000 mgs. of IV SoluMedrol. I have had more results from a dosepack than this massive amount of steroids. It did make the inside of my mouth & lips swell and my throat felt like I was breathing fire. Gol bless MD Anderson. I wasn't able to eat either. I have RA, MS, Meniere's, and Also, if anyone out there has both RA and MS, would you please share what treatment regime you are taking? Soft hugs to all and Thank you in advance.

I started rebif and solumedrol at the same time in July, but call your doctor.. Are call the MS lifelines??

ve been off the solumedrol for 8 days. I was on it for 10 for an MS attack. (a nightmare in and of itself) and my whole neck, chest, arms stomach are covered in hives. Is this from the Sol? My doctor is useless and didn't warn me about ANY of the side effects or check up on me during the treatment. I had to leave 3 messages just to get a call back when I was all done. Uuugghh I hate docs. Coming off was even worse than being on them. Rapid heart, dizziness, HOT flashes.

I had my first dose of solumedrol this morning. For a while I've had some weird tremors (with muscle contraction primarily, but also visible when I hold my hands out, to type or something). I know some fine tremor is normal, but these were more than usual. Now they're much more pronounced today. Is this a normal side effect? I don't feel particularly jittery or wired, but I know it can affect people differently.

Have you heard of the McDonald Criteria? Have you been on the MS site of medhelp? The MS community is really great on this site. They will have a lot of help for you. I would go there as soon as you can. http://www.medhelp.org/forums/Multiple-Sclerosis/show/41 Please don't sit on this. Best wishes!

Good neuro you have there to not chalk all up to MS. When did you start the Copax? All these DMDs do take time to make a difference. Hope this leaves you quickly. What are you experiencing w/this flare?

You know what, I don't truly believe the diagnosis......Don't know if it's denial, disbelief, knowing it may change again, etc... I mean, how many times have I heard, in this forum alone, that people have been told it's MS, its not MS, it's MS, it's not MS.....probably, possible, could be, maybe, I don't know....AHHHHHHHHH! Sorry.... I am waiting for a call from my Neuro, but I have a feeling it still won't be 'definitive' in his eyes....

Planning on starting solumedrol i.v. as soon as a bladder infection is cleared up. Has anyone lost hearing during an exacerbation?

Solumedrol can be an excellent way to calm symptoms down if you are being treated due to MS flair-ups. When I had my IV Solmedrol treatment, I was not able to sleep for days I was wired) and the doctor's gave me a weeks' worth of sleeping pills. The Medrol caused havoc with my blood pressure and my blood sugar.

Sweetheart, I will do a search now and see if I can find it for you. I think it's called the "History of a MS Flair-up," or something like that. I will do a search now honey. Hang on... I'm glad that I can be of some help. Do you think you are going through a flair-up of symptoms right now? What can I do to help? Will get back to you with that "article.," as soon as I find it.

I am 24 and I have MS since 08 (was on solumedrol, I always lose my vision during ms attacks ) and I have been constipation and with nonstop gas for 6 months, I have tried lots of water, fruit, fiber, vitamins, and most recently miralax which worked at first but then caused lots of blood and pain. Any suggestions on how I can stop this cycle before going to another specialist? My neuro, gyno and primary drs haven’t been helpful on this topic yet.

I am 60 and male was just dx with ms in the last 3 weeks, did the 3 day Solumedrol (wed-Fri) with some neck aches this past Saturday. Other than that I seem ok. will start my Copaxone on Feb 1st for the first time. My best to all of the folks on the forum.

Hi how are you doing? gosh i hope your doing better!! this gilenya does make are immune system weaker? i think i saw that, what do you think- just the flue? well give that baby a hug for me!! wish you well!!

Common Questions and Answers about Solumedrol ms

solumedrol