iv solumedrol for ms

Well...assuming my insurance covers it I'm going to go on ACTH. I was unfamiliar with it until you guys had mentioned it. My doctors haven't used it for MS patients for quite a while because most or all tolerate the solumedrol fairly well. Wish me luck. If insurance accepts it I will start the end of this month. I'd love any feed back you guys may have on it...don't know what to expect.

I am 9 days out from getting 5,000 mgs. of IV SoluMedrol. I have had more results from a dosepack than this massive amount of steroids. It did make the inside of my mouth & lips swell and my throat felt like I was breathing fire. Gol bless MD Anderson. I wasn't able to eat either. I have RA, MS, Meniere's, and Also, if anyone out there has both RA and MS, would you please share what treatment regime you are taking? Soft hugs to all and Thank you in advance.

From what I have heard, they like to do high dose IV Solumedrol and can only be done in the hospital setting during a MS exacerbation, especially if the MRI shows enhanced lesions. That is my understanding -- I can be wrong. I do not think the medrol dose pack could touch the effects that high doses of Solumedrol IV could do. Your job will not allow you to take care of your health? Are you out of personal time off you can take or sick time? Please let us know!

i have a PICC line as I have been going through a 2 mnth relapse with my MS and I finally gave in and went to the hospital....of course it is solumedrol pumping through it but its way different than when I had an IV port last year...question though; I feel so dizzy and have feelings l want to pass out at times even though I don't pass out. is it because of the PICC with solumedrol that is giving me a different experience?

m sorry you have joined our ranks. If the doctor is doing IV solumedrol with the orders for MS, then it sounds pretty sure to me too. At this point you need to go back to the neuro and sit down and discuss treatment options. All of these symptoms you describe could be from the MS and the neuro is the right source for information. It is hard not to panic when you get this dx. Alex is so right .... breathing is essential.

ve only had one relapse, a year ago which resulted in my MS diagnosis, but I was hospitalized for the 5-day IV Solumedrol. It was 4 x per day -- every 6 hrs. The reason for the hospital stay was the need for round-the-clock infusions (no infusion center available at all hours), PLUS Solumedrol can raise blood sugar to dangerous levels, so I had blood sugar tested every 4 or 6 hrs -- got up to 145 once, and 130 twice (I'm not diabetic). I was given insulin shots then.

I have been DX with MS for 4 years now. I am not on any DMD therapy and choose NOT to be. I do not like taking any drugs that aren't absolutely necessary and the harmful side effects of the DMDs made my decision. HOWEVER, I am in a flare (or progression) for the past 2 to 3 months now with may one or two days I felt "nearly normal". I'm to the point of thinking I need relapse treatment. I have Type 2 diabetes as well so steroids can be very bad for that!

ve had a horrible experience with Solumedrol as well.....Back in March I had extreme leg and groin numbness and went on IV Solumedrol for 3 days....I had a nasty reaction to it, but it DID take away the numbness and vision problems almost immediately....Well, within 48 hours anyway..... In May the left side of my head and face went numb and because I was visiting the MS Clinic at that time, I declined the Solumedrol treatment.....That numbness didn't go away for 20 days.....

A mild episode of optic neuritis and later double vision is what got me my first MRI and Solumedrol IV. (and FINALLY dx of MS) My neuro explained that even microscopic involvement of the optic nerve can cause pain and vision problems. My vision returned to normal. I would not hesitate for a second to take steroid treatments for vision involvement. My understanding is that this treatment temporarily dampens the immune system, thus greatly slows the inflammation that does damage.

Hi Honey...I had IV Solumedrol in Oct. 2006 and again in Feb. 2007. In October, it was the most wonderful feeling to be able to function without pain again. My eye improved 100% and I felt good through it all...the downer was that it only lasted until February 2007. My symptoms from the Paratrigeminal Neuralgia came back, my eye drooped and the icepick restarted it's attack on my head. I had Solumedrol IV again for 3 days and felt great again other than the horrible taste in my mouth...

I am scheduled Monday to do an IV for three days of Solumedrol. Has anyone else done that and if so, what is your opinion. I am alittle nervous about it.

Hi - I just finished day 5 as well. I have been taking iv solumedrol for years. I ALWAYS find I feel worse before i feel better - it is like taking ivnentory of all my MS damage. But it does improve in the week following infusions and then hopefully feel better than before infusions, or at least no worse. You should feel better to travel. Rest a lot first, even if it gives you the jitters.

Hi and welcome, As far as i'm aware IV solumedrol and Copaxone are often being done together, i've never personally heard of specific interaction problems, usually the choices you get is to stay on Copaxone and do the IV Steroid (with or without oral taper) or stay on Copaxone and skip the Steroids if it's not a major relapse.

This is a good drug, but very hard on someone that is prone to high blood pressure and high blood sugar. Her first treatment with Solumedrol, did not seem to work for her, as well as it did for me. My Optic Neuritis (abbreviated- O.N.) was totally gone in 2 weeks. She said her one eye never really went back to normal. Now the other eye starts. Since the beginning of her attack, she has not been in remission yet. This is a long first attack. I pray for a remission.

coming with hat in hand is how in te world do ones manage the bizarre psychotic type side effects from the IV solumedrol? I just finished yet another five course today and frankly I had hugs melt down scared my caegiver.. and fnally made th eprimary car e doc understand thath 72 hours of mania, depression, wailing, and all that jazz was no acceptable. This is the first time I have dome them in a home setting versus in patient..could that be afcator? or am I just a little nutty...

Hi Everyone, Like a copper penny, I keep turning up. I haven't been on in a while because I had an exacerbation from the flu shot. Then, Dec. 5 I started IV soluMedrol at home. Nurse came every day and infused me for 3 days, then a nurse followed up with my sugars, etc. for another 4 days. It was great..only way to do it. Ah, but then it gets even better. On Christmas Eve, my family came over and my grandson either had a cold or the flu..By the next night I was sick..

Hello I am a 25 year old female and four weeks ago I was diagnosed with optic neuritis, I was admitted to the hospital for 5 days of IV solumedrol therapy (1000 mg a day). After the treatment my vision mostly came back and the eye pain was completely gone. At the same time I also had a burning arm pain in my right arm with numbness and tingling into my fingers. During my hospital stay I had an MRI of my head, which was normal.

Hello I am a 25 year old female and four weeks ago I was diagnosed with optic neuritis, I was admitted to the hospital for 5 days of IV solumedrol therapy (1000 mg a day). After the treatment my vision mostly came back and the eye pain was completely gone. At the same time I also had a burning arm pain in my right arm with numbness and tingling into my fingers. During my hospital stay I had an MRI of my head, which was normal.

I had a 4 day Solumedrol drip and then step down pack in February and it made me worse. All my muscles tightened up and I have more pain than I did before. Call it a major fibromyalgia attack. Even now in May, I am still as stiff and woozy as i was after the glucocorticoid therapy. Sigh. Did nothing for me that I can tell. I did sweat a lot during the treatment so maybe i lost a few toxins?

he stated that he was going to order some tests and treat me as if I have MS and do an IV infusion of SoluMedrol. I went through the week long treatment, I had a Lumbar Puncture, Evoked Potentials, bloodwork for blood cultures, Mog Antibody, NMO Antibody.

Probably my best appointment to date with my MS Neuro at Vanderbilt today. My walking has not deteriorated much in the last two years (slowed down slightly). Put me on two new medicines to see if I will tolerate them. He also want to try an course of IV Steroids to see if that will help me due to my NEW numb (r) face and other new symptoms. Have to wait on that until I get tested for Rheumatoid Arthritis first as they steroids would mess that test up.

Iv solumedrol for ms

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