rebif weight loss

I would be seriously considering stopping the Rebif, since your problem resolved when you stopped for those 4 weeks.The continuing weight loss is such a worry - the diahrrea is not helping your weight. You really need to have this chat with your neuro again - maybe one of the orals would be better for you?

I'm on Rebif, which is very similar to Betaseron. I hate to tell you, but after a couple of months on Rebif I lost over half my hair -- even bought a wig. After a year or so, the hair loss slowed, but even now, 3 years later, it's not nearly the same as pre-Rebif (of course, I'm 62 yrs old & would likely be experiencing thinning hair anyway). But I never actually wore the wig.

Hey Violia! I Hate shots! I wish I could blame rebif for my weight gain but I think its cause I got too sedimentary this year... I don't switch my Rebif around though... tummy hurts so much less so I just do it there. I asked the Doc about it and well he is a doctor and so he says Oh you have to move the injection site.... I asked the Rebif ppl and they say Oh No You Have to move the Injection Site!... I had spots on my arms that wouldn't go away... well I had em on my belly too...

We did ask about the pill but it had just been released here in South-Africa and we were told it is only a third line defence medication and they do not want to put her on that and said rebif will suit her best for now. The weight is making her feel depressed and she is in tears most of the time.

He basicly told me that I should just see my neuro again and that the rebif was probably causing all of my new symptoms! I have been on rebif for 7 months! Why would it suddenly cause malar rash, joint pain and swelling, extreme hair loss, anemia and chronic diarrhea, just to name a few. Has anyone heard of rebif causing lupus symptoms? I am still waiting for blood results from that appt. They took 8 large tubes of blood, so hopefully I will get those results soon.

Yes, this is my reality. I have lost 50 pounds in the last year and I started losing before I went on meds (Rebif). The weight loss isn't a big problem in and of itself (yet), but I would give just about anything to be able to enjoy food again. My theory of the cause of this loss of appetite is a loss of some sensation in the tongue. Fingers are numb, toes are numb, tongue is numb, too.

Rebif can cause hair loss -- it did for me, starting around 6-8 weeks after I started Rebif. Hair loss lasted about 3-4 months. Also: thyroid issues can cause hair loss -- and Rebif can affect thyroid function. So get your TSH, free T3 & T4 bloodwork done -- every few months while on Rebif. I take Zinc & biotin (as well as vit D & fish oil) to help with hair loss.

t find much about this as a side effect on-line) or am I in that lucky 4% of Avonex users who have hair loss. If it is the Avonex, will it stop as my body gets used to the drug? Good God I hope so! Any insight is appreciated, as this is really stressing me out.....which can also cause hair loss!!!

It is impossible for me, or anyone, to tell whether or not you would have had your attack had rebif been started earlier. Rebif, and other injectable MS medications (the interferons), reduce risk of relapse significantly, but not by 100%, meaning that even if someone is on a medication, they could still have a relapse, but their relapse risk is just less on the interferons.

I was put into the secondary progressive group and am not sure what they will put me on. I heard copaxane makes you gain weight and leaves hard bumps on your legs. Vain, yes I know. So if anyone would be so kind as to share their experiences, I would greatly appreciate it.

Hi, I was so happy to read the news but, I'm currently on Rebif, so I don't see a reason to switch, only thing is no injecting..... And rebif does not have the hair loss, and fatal liver damage warning ....

On rebif, I have had one outbreak,2 months after starting, dr said it wasnt a Rebif failure,could still be copaxon getting out and rebif starting. But I have things under controll now, am finding out the little other side affects that escort MS tho-have had extreme fatigue, now I think my bladder has been affected, I have to go all the time. At first I thought it was a female issue, talked to the gyno last time I was there, he felt my tummy and told me everything was fine.

HOWEVER, seeing as how my MRI and CSF were extremely abnormal, he put me on Rebif, a stronger Disease Modifying Drug. During this time, I had several neurological symptoms lasting for more than 24 hours in a time of approximately 3-4 months. None of these was serious or life threatening, but nonetheless they were neurological symptoms of the kind seen in patients with M.S. According to the McDonald criteria, each episode classifies an “attack”.

Thanks, Candy. I am NOT looking forward to hair loss (hope I'll be one of the lucky ones). Sorry to hear that you're deadling with the side effects. I've heard a lot of people swearing by Biotin to combat the hair loss, but I haven't done any research to see if there exists any unbiased substantiation of those claims. Have you tried anything to fight the hair loss, and if so, have you had any luck?

cid=36 As to whether this is an increase in depression because of Rebif - hard to say. The loss of coordination - if it persists - argues against that. I hope things straighten out.

Beth, Shared Solutions hasn't been much help. They won't admit the migraines are caused by the Copaxone. I've done everything they've suggested, but when you talk to a nusre on the phone that hasn't seen you in person, I don't think they get a true image of a person my weight. I am very fine boned, but 73#s is way too thin, for a 5'2 person. All the areas are problematic to inject now-it just seems like my body is having a bad reaction to the Copaxone, itself.

5t The ventricles and cortical sulci are enlarged from mild global volume loss. Multiple punctate hyperintensities are evident throughout the deep white matter bilaterally, predominately subcortical. no abnormal enhancement corresponding to these foci. There are several periatrial foci bilaterally which are increased in number since the previous examination, however this may partially be due to the high-resolution on the current exam, on high field magnet.

I have MS and have been taking Rebif foe 7 years. It has worked very well. I just learned that my current drug insurance plan from Humana will not cover Rebif in 2015. What plans cover at least some of the Rebif cost? My copay with Humana was about $300 per month. Would like not to exceed this amount.

Yes, I am on rebif for 11 months and must take advil liquid gels To stave off headache fever that wakes me up!

Optic nuritis 2 times loss of facial movement all kinds of things. I have been on Avonex and now rebif. I recently stopped taking rebif it was making me have a fever and just feel crummy. It's been 5 week s and I feel great.I'm concerned with not taking it I may have a large relapse. Iv changed my diet all natural food any thoughts on this?? Was thinking of starting it again but just don't want that feeling.

Is anyone else on Rebif? Any pointers or tips or suggestions from people who have been on Rebif (or Betaseron or Copaxone or Avonex)? I'm a little scared to start therapy, but also excited. I'm trying to be very positive about this. Thanks!

So the ins company wont pay for Copaxone or Gilynia until my daughter first tries Rebif (i guess because its cheaper for them.) I have a concern with her being on an interferon due to the possible mental health side effects. She is already on Lexapro for anxiety and mild depression. I dont want anything adding to the issue. We have dr app tomorrow to discuss Rebif but I dont want her on it. Anyone have bad side effects with Rebif??? Any advise for me?? Thank you.

Rebif weight loss

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