provigil and lupus

hey guys. has anyone ever heard of,or taken provigil? kristens lupus doctor prescribed her provigil for the constant fatigue being that it is the most debilitating of all her symtoms minus the depression and anxiety which is becoing controlled with the treatent facility that she is in. i read a lot about it and it said that it was much less likely for it to be addictive. also, it doesnt work from the nervous system so it wont make her really jittery.

hey guys. thnk you for all the info about lupus and your encouraging words. her doctor that will be treating the disease is starting her on provigil. i did some research online and it seems to be pretty safe and has a lower probability of addiction is far less than the other options... the constant fatigue seems to be her biggest day to day issue. minus the depression and anxiety but that is getting much better since she went into treatment...

m glad your doc is treating the fatigue, but I wonder why the Ritalin instead of the usually more favored Provigil. Have you tried and failed Provigil or something? Yes, people have been helped by Ritalin and it's (better, I think) cousin Adderall for the symptoms of Cog Fog and the ADD it can cause. I'll be interested in hearing how well it works for fatigue. I thank the stars for you finding such a good doctor. They are a treasure!

Got Provigil post to do (its my MIRACLE drug, and yes I take it with multiple chronic health problems incl high BP take betablockers, epilepsy, hypothyroidism, diabetes, sle lupus and DSPS which Provigil REVERSES

Feb Mayo Clininc Visit: ANA low positive titer, they say no clinical significance; Rheumatologist did lupus panel and other autoimmune tests - all negative. Neuro did exam and "could not diagnose an underlying neurologic disease. Attributed all of my symptoms to Fibromyalgia and said that I just have an extreme case of it. I am going to post more about the neurology report in my next post with some questions. Thanks for taking the time to review my case!

s a new version of the drug they want the patients to try it and you can see if it works for you. i have lupus so i know what you mean about being exhausted continuously and i will also be starting chemo for it soon so they may also keep me on it for that. i wish you the best and hope you find something that makes you better...

I'm late here but have tried it for fatigue - maybe should try again, only took it once or twice and didn't seem to affect me. I am not dx with MS, but have fatigue and CNS symptoms from lupus.

The medications I have used are provigil and adderall, and I don't take them every day, so tracking them would be helpful. (I currently take provigil.) Tracking the degree of sleepiness is also helpful, since I am sleepy almost every day and a yes/no doesn't do much. Others with narcolepsy might benefit from tracking sleep paralysis but fortunately I don't have that problem. That being said, I really like all the trackers here.

Anybody know if there is any problems taking tramadol and provigil together?

I do use OTC sleep aids like you said and i think for now i will continue, i have some ambien, but i will keep it to use when i need it, since i had to beg for it. I dont want to use it all the time anyway. And i use 200 mg of provigil now, and i sometimes i could use a bit more. But i try to stick with 200 mg.

I finished the morning news, all my emails, and looked up numerous Provigil articles and discussions online in less than an hour. Normally this would take me several hours. I can't make any more comments as it is much too early to make a legitimate diagnosis, but I can honestly say so far, would recommend you do whatever you need to do in order to get it approved by your insurance so you can try the medication. I am confident you will not be disappointed. Good Luck!

m experiencing from the RA and FMS with Provigil (for fatigue) and Effexor XR (for pain). What do you all think?

t know anything about them, but was just reading a different post regarding a person with MS taking Provigil, and now I am wondering about it in regards to the fatigue some of us with Lupus, Sjogrens, etc. have. Just a suggestion to maybe talk with your Dr. about it...I do know that it can take up to 6 months to note the full benefit (if there is any) of the Plaquenil...as I am only on my 2nd month, I can't tell any difference, either...yet.

I don't have MS but I have had experience with real Provigil and fake Provigil BCBS won't cover Provigil, even with dramatic results of a sleep study and literally my going to sleep at the wheel.Even with excessive caffeine I never woke up and most of my days were spent napping. The authentic Provigil samples from the Doctor and the Modafinil, manufactured in Canada, sold at Walmart in US (BUT THE PILLS ARE STAMPED PROVIGIL) are not the same.

I still feel pressure in my temples and forhead even though I have stopped taking Provigil. Can you have withdraws from Provigil?

My muscles tremor when over exherted and I need Provigil to get out of the bed and drive and function without fear of falling asleep ...I've been taking provigil with great success however, I am having a hard time with insurance filling it with new Medicare ins. restrictions and pre auth's required etc.

This is very important as most drugs for CFS have direct effects on neurotransmitters such as Cymbalta, which is a Serotonin–norepinephrine reuptake inhibitor and Provigil, which is a dopamine transporter re-uptake inhibitor.

s been an issue with me for more than 10 years, but the last 2 months I was really bad and just being awake for more than 5 hours wore me out. He prescribed Provigil and I've read some of the threads on it and it sounds very promising. My question is, is it something you can take daily indefinitely? Or are you supposed to just take it when you need it (which would be daily for me!) I hope my insurance will cover it because I'm not diagnosed with ms or anything.

I started taking provigil yesterday and wow I cant believe the energy I scrubbed the shower down washed the cabinets down went food shopping then took dog to dog park for 4 hours then home and dinner usually just one of these activities wipes me out . I am glad that I have energy but I feel jittery my legs feel like they are going hundred miles and hour and I am stuttering badly in the am I think I am trying to talk faster then I can get it out.

Is anyone familiar with the drug provigil or monafinil for enery and depression...? It is a drug for narcolepsy....wakes me up but not sure about use during tapering tabs...

I used to love going to Seattle and climbing up and down all those hills; I once walked from lower Queen Anne to the Woodland Park Zoo, walked around there, and walked all the way back. Those days are gone, but I would like to try it in a car someday just to measure how far I went (not to mention elevation gain and loss) I live down in Portland, but I've been to Seattle many times. I'm glad you got to enjoy it.

then he would take ambien/lunesta to go to sleep. all of the provigil and ambien/lunesta samples would always be gone from the drug room at the office i worked at and they were not going to the patients...

Hi Corrie, Thanks so much for input. After some waiting, some calls, neuro wants me to stick with it since it's helping fatigue and try a lower dose so I am doing that now and it's better so far and still effective without the sudden heart poundings! So we'll see how it goes. Do you mind me asking why you stopped it after a year? Did you no longer need it or did you try something else? Ison't know how you would know you no longer need it unless you come off it.

But, there is a strong case for you to stay on it, and not try the others. i.e., vulnerability to adverse reactions and what that can do to you and MS in terms of set backs and exacerbations.

Provigil and lupus

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