narcolepsy treatment studies

Diagnosed with Narcolepsy. Have history of pituitary microadnoma high prolactin. PCOD historectamy 2002 On dostinex. Can something in my brain cause this. I am now on ritalin 20SR twice a day. Awake but body still tired. Also that thyroid medication had it irradiated a year ago Due to high levels. Is there any other answer for sleeping so much. Or am I just in denial.

A couple weeks ago i went to a big city to see a neurologist who told me I have cataplectic episodes and that I have narcolepsy. I have not had sleep studies or anything more. Could this REALLY be narcolepsy/cataplexy? Is it NECESSARY to get more diagnostic work?

I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?

I hate not knowing and trying to find ways to make it through the day. Also you might want to look at narcolepsy. I thought I might have Narcolepsy, since I have the hullicinations sometimes. When the doctor told me I had hypersomnia I asked if he was sure it was not narcolepsy. He told me one of the differences is naps help people with narcolepsy, but not those with hypersomnia. And napping never made sense to me, because it did nothing to relieve the tiredness.

This is the symptom of a sleep disorder called Narcolepsy. This sleep disorder is characterized by excessive day time sleepiness, sleep paralysis, cataplexy where the person has episodes of loss of muscle function while awake, hypnogogic hallucinations and automatic behavior. You will need to consult your primary care physician, who may schedule you for a polysomnogram (sleep test) to rule out sleep disorders and initiate appropriate therapy. Hope this helped and do keep us posted.

Hello, Lifestyle treatment of narcolepsy includes taking three or more scheduled naps throughout the day. Patients should also avoid heavy meals and alcohol, which can interfere with sleep. Drugs which have been used for narcolepsy are Modafinil (Provigil) or Armodafinil. You should try the lifestyle measures first before going in for medicines.

You may get lot more information regarding the cause, symptoms, necessary investigations and treatment of narcolepsy as you go through this link: http://en.wikipedia.org/wiki/Narcolepsy Are you suffering from narcolepsy? Take care and share your thoughts.

I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.

Narcolepsy must have catoplexy in order to qualify as narcolepsy. Sleep studies are worthless. Doctors are worthless, clueless idiots that think spending enough money to put their children through medical school is the answer to every patient's problem, so you should just go get better insurance so they can keep charging more and more.

One Patient Case Study The patient unable to do moderate work for this age of 28 Years. Easy mental & physical exhaustion for medium range of works and studies for some time. Drowsiness followed by sleep onset during morning between 8am – 5pm when tried to study. When Somebody alerted getting back to normal and sometimes not. But this is not narcolepsy as he having NO SLEEP when no study at morning or physical work.

I am 46 yrs old I have been Dx with EDD/narcolepsy and following recent sleep studies with central sleep apnoea. I have been on modofanil for 12 yrs . I am now on maximum dose of this and while it makes life semi bearable I have days where I am so tired it is difficult to describe. I have no idea wht to do next , whether to go back to sleep clinic or go see the neurologist or just soldier on . Seems to be the end result of most interventions anyways.

i sent you a message I am just getting the hang of this and I have narcolepsy would definitely like to chat

You should probably have Narcolepsy ruled out by a Sleep Specialist; Sleep Studies should be done.

At least, if you do not have narcolepsy, you can rule this out and go on from there. I have narcolepsy without cataplexy. I really do not have very many symptoms except for the excessive daytime sleepiness and occasional mild night-time hallucinations (mostly audible). Hope this helps! Good luck.

] A few months ago I had a polysomnogram and multiple sleep latency test to test for narcolepsy. I used to think the maybe I had ADD (I am still curious about this), but I'm now starting to think that my attention problems are due to sleeping issues. The specialist I went to said that my results showed that I didn't have narcolepsy and her only suggestion was to try to get on a more regimented sleep schedule.

Does anyone have any information on current or recent studies on this disease? I was recently diagnosed and would welcome any information. My T3 and T4 are normal but microsomal antibodies are 192(high). Thinning hair and weight gain are my concerns.

When I was in highschool I was diagnosed with PCOS and Narcolepsy. I recently found my sleep studies and found that the doctor said my sleeping was characteristic of Narcolepsy but he didn't think I had it. I wonder now[ if it is the PCOS as noticed a big difference in energy levels after I stopped taking birth control. Is anyone else out there suffering from debilitating lack of energy. I find I can hardly get up in the morning let alone take care of my house, husband and child.

I have been given 5 studies to choose from. They are all different and Im feeling a little overwhelmed. How should I choose? What questions should I ask?

I was diagnosed with narcolepsy at age 25, took adderall ufor 5 yrs. then stopped for 1 yr to become pregnant. I took pro vigil for appr. 6,so. W/0 any help, des. Increased med and it sent me into violent emotions. I have had a recent MRI because of headaches. I need hello. I don't want the diagnosis of narcolepsy but I can't live like this.

My journey with sleep studies began over 10 years ago, with multiple studies at 3 different labs due to insurance changes over time, different ordering docs, etc. Also, looking at data in black and white enables your research to be more targeted instead of general. When you get the copy of your sleep study results, first look for the nap study specifics, as in how many did you sleep and how many you reached REM.

Regarding genetic testing for narcolepsy, positive test results indicate a susceptibility to narcolepsy but do not definatively diagnose narcolepsy. Positive genetic tests results are used to support a clinical diagnosis of narcolepsy. We recommend that you speak with your doctor regarding your symptoms and test results as well as to discuss the most appropriate course of treatment for your specific situation. We wish you the best.

My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.

I have had narcolepsy (and sleep apnea) for a long time. I had had three bariatric surgeries over the past 14 years, and my drs have wondered if some of my meds are not being absorbed properly or at the right rate, yet no one has done any kind of 'test' to determine that. I have tried everything possible for my narcolepsy---the ritalin patches, elixir ritalin.......etc, provigil, other meds....and of course xyrem. I take dextroamphetamine daily, even though it does litte...

But, you can get some really good information on the intranet about narcolepsy, cataplexy, and sleep studies. Just make sure the website is reputable. I just want to commend you as a parent for looking further into this. My mother always just thought I was lazy. Your son is a very lucky guy to have such a cool, concerned mom! Hope this helps a little! Good luck.

Thanks for your answer. what treatment are u getting and what health complications u face? when i think of MS i get thoughts like paralysis, visual dysfunction, cognition loss etc. is it like that? I want to do my practice as a doctor and i am frightened i wont be able to continue my studies n profession ,if it is like that. kindly reply, will be waiting.

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Narcolepsy treatment studies

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