Fibromyalgia vs lupus

Common Questions and Answers about Fibromyalgia vs lupus

fibromyalgia

I am a 26 y/o female with fibromyalgia, peripheral neuropathy, bipolar disorder, degenerative disc disease, a l-5 lumbar radiculopathy, and chronic joint paint. I went to a follow up appointment with a rheumatologist today to discuss the results of my blood work. My c-reactive protein level was 6.8, and my WBC was 2.6, and according to my lab records, has maxed out at 4.5 over the past 18 months. He said his best guess was lupus, although my ANA test was negative.
Some of the other numbers are just now starting to rise, but they are still in the normal range. I've been dx with lupus and fibromyalgia. I'm hopingsomeone with MS could expound on the joint pain. I know that joint pain is a definite symptom of lupus. As well as mouth ulcers, hair falling out, muscle pain, headaches, nausea, and diarrhea. There are 11 criteria for a lupus dx. One must have 4 in order to get dx. You don't have to have all 4 at the same time.
I HAD A POS ANA, BUT I HAVE BEEN TO 3 RHEUMATOLOGIST--ALL SAY NO LUPUS OR CTD. ONE SAYS FIBROMYALGIA, BUT THAT DOESNT EXPLAIN THE LESIONS ON THE BRAIN. I HAVE ALSO HAD A FUNNY TINGLING FEELIN DOWN MY SPINE ON AND OFF. WHAT DO YOU THINK? I HAVE A 2ND OPINION APPT IN JULY. JUST GOING CRAZY WAITING FOR A DX.
I know how frustrating it is to go through all the hoops and they still won't help you. From what I have observed, rheumatologist won't really dx lupus unless there is organ involvement. My dr. told me it is "mild" lupus and gave me plaquinel. But on my chart it says fibromyalgia is the dx. I really don't care wat the dx is, just so long as they are giving me the meds that are helping me stay out of the bed. Plaquinel gave me my life back.
Wide spread body pain is manifested in many conditions like neck pain syndrome, low back pain, local tendonitis, trauma-related pain syndromes, rheumatoid arthritis, lupus, osteoarthritis of the knee or hand, and other painful disorders. These patients have some symptoms that mimic fibromyalgia.
My doctor is sending me to be "tested" for Fibromyalgia. She has told me, and from what I have read, it is a disease that is difficult to diagnose. What test(s) do they use and how painful are the test(s)? Also, is Fibromyalgia a hereditary disease? My mother had it and my aunt has had it for the last two years. Thanks!
Sorry about the lack of paragraph breaks - I do remember that is a problem for those with MS and their vision problems...will do in the future! From this point on, as well, I will keep my chat on MS vs. lupus, however, if anyone would like any info regarding SLE, feel free to let me know and i can do so on another forum. I am amazed, however, at the similarites with regards to Dx on both - or should I say lack thereof...
said I had some abnormal reflexes and should see a neurologist to rule out MS or fibromyalgia. I found a chart online that compared fibro, ms, and lupus. (sorry, I don't recall where I saw it, so I can't share the link) I wonder if the dr. at the clinic thought of fibro in relation to the fact that I was diagnosed with Reynaud's a few winters back. On this chart, Reynaud's was a flag for fibromyalgia. I am presently on nifedipine for pain in my fingertips. In fact, one aberration (?
in my experience in talking with other patients, AI diseases rarely occur by themselves. I know many patients with multiple diagnoses - RA with lupus, RA with fibromyalgia, RA with Hashimoto's and other disorders like Sjogren's, Still's, Felty's...the list goes on. I hope this helps!
I've had fibromyalgia,then lupus and rheumatoid arthritis for 17 years.I built and ran a world wide business helping children with autism and other disabilities and illnesses.I've been in medicine and psychology and therapy for 27years.I lost my dr to a move he made to the cancer treatment center.now I hope I show cancer so I can go to him so I can be treated with trust and respect and dignity as I deserve.I have been resistant to meds and require high amounts.not my fault.
live 20 years less i could be dead by the time i'm 50 just like my parents thats so scary and something i do not intend on focusing on but we all have to die sometimes, i will look at the link but i cant understand why drs dismiss these 2 disorders when there are studys to say people can die of these disorders why are they not saying its as bad as MS or lupus why are there not drs that keep a regular check like they do with MS and lupus like if you say you have that people are poor them but if
I have question (for those who might be able to help)...i just saw another RA doc for my 2nd opinion on Tuesday and after almost an hour with us, he said that he wanted to watch me and not "put me in a box" as far as saying it's definitely RA...instead he said i have "sero-negative inflammatory arthritis" particularly in my hands, elbows and hips.
First of all have you ever been checked for Fibromyalgia? That could be the cause of a lot of the pain you are explaining. Lupus or autoimmune of some sort can too though as I can tell you differnet parts of my body hurt everyday. I think (but maybe it's because I have lupus) that you sound lore like an autoimmune patient than a lupus patient. You have a very high ANA and someone put you on Plaqunil so they must have been considering autoimmune.
'07, when I had the vertigo and hyper reflexes, it was suggested that I see a neuro to rule out MS or fibromyalgia. So far my tests have come back negative for not having MS. But the fibromyalgia thing is off the radar. Nobody's mentioned it, I haven't thought about it, didn't pursue it. Just the big MS word. (For the record, my friend has fibro and my symptoms are nothing like hers, that's why I discounted it so quickly.........) I've seen where some folks here have both.
I am sick all the time with some kind of autoimmune illness (some kind of lupus like syndrome), also have been having trouble regulating the thyroid dosage but partly because I go through long periods of not being compliant with meds (I forget, I'm too tired, etc). Also, they say I probably have fibromyalgia. Also have plantar fascitis with heel spurs. Spurs have now been found on my spine, and some spinal degeneration of discs.
I, too, have several - severe athritis in every (and yes I do mean EVERY joint), degenerative disc in my back, a couple of bulging discs in my back, lupus and fibromyalgia. So I can understand how frustrating it can be trying to determine exactly which condition is causing the pain at that moment. I agree with marycarmel about the tylenol with codeine. I also don't feel it is much more effective than plain extra strength tylenol, especially when it comes to chronic pain.
right now -- not flying off the island just yet) - doesn't have a lot of knowledge about HCV, Fibromyalgia or Interferon TX --- connections. In trying to explain to him that I believe that the current pain I'm in is Fibro and I think that the TX I took may be the culprit --- I get a glassy eyed "sure hon" look. Here, take these pills --- call me in a week if you still feel uncomfortable. And he quotes that flu like symptoms and the other "MILD" symptoms should now be gone.
He told me that due to my age (I'm only 46) and having some other health issues (lupus, fibromyalgia, asthma), he would strongly suggest going with a total knee FUSION as opposed to a total knee REPLACEMENT. He said that because I am relatively young (although I don't feel young most days) and have the autimmune problems, there is an increased chance that a knee replacement would not last very long for me and would have to be done at least one more time, if not several times.
But, overall, I do feel like I have a vague 'autoimmune' disorder, and even if the docs say that it is not 'clinical lupus' or other formal diseases, it still has all the trappings of autoimmune disease. Replies are welcome!!!
Plase take a look to this interesting article: http://www.ncbi.nlm.nih.gov/pubmed/22914311 I develop Polychondritis during the use of Allergen Immunotherapy. Be informed first and see the risk vs benefits before use AIT.
Anyway, he told me that I most definitely need to have surgery sooner rather than later and because of my age (I'm only 46) and the fact that I have some other health issues (lupus, fibromyalgia, asthma), he would strongly suggest getting a knee FUSION rather than a knee replacement.
, and all of it is low/normal. I'm wondering how much the doctors rely on bloodwork vs. clinical diagnosis vs. other.
I've been tested for everything, and essentially all that remains is MS or lupus. I don't quite meet the criteria for either! My questions specific to MS are as follows: 1. I understand that up to 25-30% of MS patients have a high anti-nuclear antibody (ANA), which is really more used for lupus diagnostics. I have no other lupus antibodies, but do have an ANA of 1:1280 which is extremely high, as anyone in the medical field will know.
For a long time they thought it was lupus, then fibromyalgia, then some sort of connective tissue disorder. Now she has Parkinsons on top of all that, and they still haven't figured out what the other stuff was, though they think it is an autoimmune thing, not fibromyalgia. Same boat I feel like I'm in, but I didnt' give up with the doctors like she did. But now that she has Parkinsons, she has to see doctors again. Maybe they'll figure her out.
I had no idea that they could be relevant because I'd lived with with them for so long. I share your concern about the lupus vs EDS issue, because the treatments for the bruising in lupus is contraindicated with EDS (particularly in the avoidance of prednisone in the latter, because it weakens the blood vessels. When I joined a VEDS support group, I found one other person, who, like us, has mouth sores with VEDS.
Hi, did we ever do this poll? If not, I'll try to revive it.
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