What tablets are you taking?
I suffer from Trigeminal neuralgia since 2005. For first few years I didn't have to take any meadication. Since 2010 attacks were frequent. I am on Tegretol 50mg am & 50 pm. The side effects are terrible,feeling extremly tired & also feeling low.
Some times I have to increase the dose& it's unberable.Is there alternative?
I started taking Tegretol for Trigeminal Neuralgia, and now my neurologist has me taking it at a low dose three times a day for the nerve pain in my leg (from my waist to my foot).
The generic name for it is Carbamazepine. My PCP thinks of it as a fairly benign medication with relatively few side effects, though you do need to have blood work done, since it's possible it can lower your white count. I've taken it for quite a while, and my blood work is always fine, normal.
is there any way to manage trigeminal neuropathy (not neuralgia)? I regularly get 2-3 extreme episodes a month. There is constant pain in my entire head ,face and throat. When it flares up it lasts 3 days before I can actually talk or drink much.Cannot be effectively treated is the answer I have received from my pain specialist. Have gone off all narcotics, opiods, etc.
I too suffer from facial numbness known as Trigeminal neuralgia( the R. side of my face tingles, mynose lip and teeth go numb,too. In addition, I have Cervicogenic Headaches and Occipital neuralgia, Debilitating Pain that radiates from the base of my skull, to my forehead and behind my R. eye. I need a surgery called Occipital Nerve Decompression, featured on "Good Morning America", but not covered by my Insurance.
Hello unnerved,
Trigeminal nerve which is responsible for sensations of the face. The cause trigeminal neuralgia is probably a blood vessel pressing on the trigeminal nerve. Tumors and multiple sclerosis can also cause it, but in some cases the cause is unknown. The pain is sudden, severe, electric shock-like, stabbing that is typically felt on one side of the jaw or cheek.
Hello,
In your case, I think that it can be trigeminal neuralgia. Trigeminal neuralgia is very painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
There is a chance of a misdiagnosis here if Tegretol is not working. It is the gold standard for treating trigeminal neuralgia. If it is not working, it may possibly be pain of some other cause. The neurologist may be able to help you sort this out.
However, I had the same symptoms you were having and was diagnosed with Trigeminal Neuralgia. Its where one or more of the three main nerves in your face cause nerve pain, or neuralgia. The first nerve lays across the eyebrows, the second lays across your cheek bones and the third nerve lays across the chin. My doctor put me on Lyrica and Klonopin and it seems to help a little, although the pain does intensify and the pain medication does not work for it since it is nerve pain.
I may have trigeminal neuralgia in the mandibular branch. Severe pain in the lower gum area but it is on both sides which has my PC doctor, my neurolgist, my pain management dr, my neurosurgeon and my accupuncturist all baffled. Meanwhile, I am on Lyrica, which is becoming ineffective, Vicodin, which does not help much, and Ambien to knock me out at night to get some sleep. Is anyone out there who has experienced such a problem that can head me in the right direction? I am losing hope.
my daughter has had 2 surgeries for pituiatry tumour, radiotherapy, she still has remnant tumour, (Acromegaly) but also has facial ear and neck pain, which prof says is because tumour is pressing on trigeminal nerve, tried amytrplin, never worked, 3 weeks ago prof put her on Pregabalin, small dose then up to 300 a day, within a few days of upping the dose, she has been in more pain than ever, crying, agitated, and said she thought she had pain before, but now this is unbearable, they have told
Hello all. My neuro has never actually said I have trigeminal neuralgia, he's treated my imaginary facial pain with various anti-seizure meds, recently I have used the diabetic med, lyrica, which works.
Question I have is, if bilateral trigeminal neuralgia is only common in ms, why can't THAT be a diagnostic aid, much like optic neuritis?
Should I have asked him to NAME my facial pain? To get him to admit something is up with me?
Carbamazepine (Tegretol) was first used to treat trigeminal neuralgia in the 1990s. Because of its success in treating that painful condition (which is very difficult to treat), it was then used to treat all kinds of neuropathic pain.
While it may be useful, there are more modern medications that may help if you have a neuropathic pain problem -- for instance, Neurontin (gabapentin) and Lyrica (pregabalin).
I have been suffering with Trigeminal Neuralgia since 2006. I have done some reading that states people do take flexeril. Is this med helpful for nerve pain?
My GP gave me 2 weeks worth of samples of Cymbalta 30mg, saying it'll help with management of my chronic pain.
I already take Wellbutrin 150 XL once a day, would it be safe to take both together?
I had a bad reaction to Paxil and Lexapro made me oh so sleepy, worried about Cymbalta being the same way....
If anyone tried it or been taking it, please share your experience.
Thank you!
For those of you with trigeminal neuralgia, would you mind me asking you what it feels like? I have been assuming, for a while, that what I have in my face is bilateral trigeminal neurlagia. But, perhaps I'm wrong.
Already she had two pain blocks, neither worked at all and now they want to do a Radio Frequency abrasion - I am concerned about her diagnosis, atypical trigeminal neuralgia -- being treated like the regular Trigeminal Neuralgia, the pain symptoms do not match -- did yours start this was and progress into the trigeminal neuralgia
They have all her dental recorrds, even an MRI plus another ct from emergency room earlier this year, and all the records from the pain clinics -- yet pain symtoms
I have Trigeminal Neuralgia. I have had MVD surgery on both sides yet it returned on one side. I have been told by several dr's that there is no pain management for it and that surgery to sever the nerve is all that can be done. I am currently highly medicated and struggling to work. Please let me know if any meds anyone has found succesful. I have tried, amitriptylene, neurontin, toradol, dilaudid, dilantin, oxcarbazapine, and more!
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