I suffer from Trigeminal neuralgia since 2005. For first few years I didn't have to take any meadication. Since 2010 attacks were frequent. I am on Tegretol 50mg am & 50 pm. The side effects are terrible,feeling extremly tired & also feeling low.
Some times I have to increase the dose& it's unberable.Is there alternative?
There is a chance of a misdiagnosis here if Tegretol is not working. It is the gold standard for treating trigeminal neuralgia. If it is not working, it may possibly be pain of some other cause. The neurologist may be able to help you sort this out.
I may have trigeminal neuralgia in the mandibular branch. Severe pain in the lower gum area but it is on both sides which has my PC doctor, my neurolgist, my pain management dr, my neurosurgeon and my accupuncturist all baffled. Meanwhile, I am on Lyrica, which is becoming ineffective, Vicodin, which does not help much, and Ambien to knock me out at night to get some sleep. Is anyone out there who has experienced such a problem that can head me in the right direction? I am losing hope.
Carbamazepine (Tegretol) was first used to treat trigeminal neuralgia in the 1990s. Because of its success in treating that painful condition (which is very difficult to treat), it was then used to treat all kinds of neuropathic pain.
While it may be useful, there are more modern medications that may help if you have a neuropathic pain problem -- for instance, Neurontin (gabapentin) and Lyrica (pregabalin).
However, I had the same symptoms you were having and was diagnosed with Trigeminal Neuralgia. Its where one or more of the three main nerves in your face cause nerve pain, or neuralgia. The first nerve lays across the eyebrows, the second lays across your cheek bones and the third nerve lays across the chin. My doctor put me on Lyrica and Klonopin and it seems to help a little, although the pain does intensify and the pain medication does not work for it since it is nerve pain.
Could compression or stretching of the trigeminal nerve during surgery cause damage which is causing this neuralgia and head ache. I have no infection and normal blood counts. After trying two steriod dose packs and a Zpack suggested by my neurosurgeon, I went to a general practioner to make sure I had no infection or other cause. Except having high blood pressure, which I usually have low blood pressure, everything was within normal limits. I feel the BP is due to pain.
I have recently been diagnosed with atypical trigeminal neuralgia , I have severe crushing pain top and bottom of my right jaw pain into the cheek and across to my nose, ear ache and some neck pain. All the pain is in the right side and stops exactly in the middle of my face. (I dont get a headache with it . the attacks have lasted up to 12 hours with no reprieve until i got some tablets from my doctor.
Already she had two pain blocks, neither worked at all and now they want to do a Radio Frequency abrasion - I am concerned about her diagnosis, atypical trigeminal neuralgia -- being treated like the regular Trigeminal Neuralgia, the pain symptoms do not match -- did yours start this was and progress into the trigeminal neuralgia
They have all her dental recorrds, even an MRI plus another ct from emergency room earlier this year, and all the records from the pain clinics -- yet pain symtoms
,
She flew on a plane a few days later and thought her tooth would explode
Pain continued in the tooth with the root canal, was sensitive to heat and cold, and I put ambsol on that tooth only with a q-tip, she felt the liquid on the tooth with the root canal and it was painful, a few weeks later and another root canal, then a crown and two bite gurards in 2 months and still the pain continued -- pain is located on left side of face lower jaw (where the root canals were) later after trips t
Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
Hello all. My neuro has never actually said I have trigeminal neuralgia, he's treated my imaginary facial pain with various anti-seizure meds, recently I have used the diabetic med, lyrica, which works.
Question I have is, if bilateral trigeminal neuralgia is only common in ms, why can't THAT be a diagnostic aid, much like optic neuritis?
Should I have asked him to NAME my facial pain? To get him to admit something is up with me?
I have been suffering with Trigeminal Neuralgia since 2006. I have done some reading that states people do take flexeril. Is this med helpful for nerve pain?
t want to operate on me through MVD because my pain is bilateral and my pain syndrome is not that of trigeminal neuralgia. My pain specialist suggested a sphenopalatine ganglion block (a surgical invasive procedure) but my mum wouldn't hear of it.
I feel a little less pressure when I tilt my head backwards, and can feel the nerves in my nose vibrating more intensely when I massage the back of my head.
I have suffered a lot alot through the 1.5 yr, but the pain remained the same.
For those of you with trigeminal neuralgia, would you mind me asking you what it feels like? I have been assuming, for a while, that what I have in my face is bilateral trigeminal neurlagia. But, perhaps I'm wrong.
Your symptoms do not exactly match the clinical picture of trigeminal neuralgia but you should continue with the treatment and do notgo in for complicated details.The treatment consists of medicines, surgery, and complementary approaches.
For more information refer http://www.ninds.nih.gov/disorders/trigeminal_neuralgia/detail_trigeminal_neuralgia.
Do you think this can still be Trigeminal Neuralgia? Is a neurologist the best type of Doctor to seek treatment from?
Thank you again.
I suffer from constant pain - pain specialists here have tried injections - burning the nerve, botox and every possible drug - Lyrica, indomethacin, neurontin, dilantin, elavil - opiates make it worse (trileptal was the only one that helped but lowered my sodium to 118 within 48 hours at just 300 mgs a day) 3 neurologists have suggested just living life out on klonopin but i refuse (high gaba covers the pain - ironic - depakote and tomomax make it worse.
I have Trigeminal Neuralgia. I have had MVD surgery on both sides yet it returned on one side. I have been told by several dr's that there is no pain management for it and that surgery to sever the nerve is all that can be done. I am currently highly medicated and struggling to work. Please let me know if any meds anyone has found succesful. I have tried, amitriptylene, neurontin, toradol, dilaudid, dilantin, oxcarbazapine, and more!
i have a reaserch on mangment of trigeminal neuralgia , but i cann't know until now which the best medical or surgical treatment and i couldn't found which have high rate of recurrance.
I use it for Trigeminal Neuralgia.
I currently take 600 mg 3x a day.
It has helped with SOME of the nerve pain in my lower back too.
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