hi there,
i have UC (diagnosed in 2001) and have been on asacol most of the time. however, i had about a year of experience with pentasa... the doctor at the time told me that it was the same thing as asacol, however, i found it to be less effective. another doctor later told me that they have the same active ingredient mesalamine, but pentasa reaches a different part of your track... i think asacol stays intact longer, so it gets released lower down in your system.
I have ulcerative proctitis and have to fly annually to the UK to buy pentasa suppositories at my own expense; as I am no longer a UK resident I have to pay for a private prescription. Japan has not done any drugs trials for this and prescribed oral pentasa to me, which let to an almighty flare. They prescibed pentasa liquid enemas, then steroids liquid enemas, then oral steroids all the while I am getting thinner, but puffier (thanks steroids!
Have you tried Pentasa suppositories for your proctitis? They are most effective in my case in helping to manage my symptoms.
I find that oral medication alone is not effective in treating proctitis and liquid enemas are usually effective from 20cm upwards, so they tend to bypass the rectum area where the proctitis is.
Best of luck.
As you go up in drugs, the impact and potential side effects go up (e.g. next step would be something like Imuran, then Humira). Have you gotten any blood tests recently? C-Reactive counts, Sedimentary rate, and White Blood Cell counts can be markers of imflammation or a change in something. Vitamin D will probably be low if you're not absorbing anything in your gut (i.e. frequent diarrehea).
Personally, if you're at 15x a day, I would go find a different GI.
I have been on it for the last year straight and am not totally sure how much it really works. I had some side effects from it such as nausea and hair loss to a certain extent. The nausea was fixed by taking it at night which seemed to really help.
Being on it did not eliminate me from other meds as I am currently back on prednisone 40mg for a month due to a flareup. Pentasa and Asacol never worked for me either.
I guess in short every medication works for different people in different ways.
He has taken predisone twice but we have always refused the stronger meds due to the side effects and long term effects. He is feeling so awful and he is in so much pain that we are strongly consiering the methodtrexate injections that our dr is offering. Has anyone here had experience with this medication with kids/teens?
He was under treatment and was given Pentasa granules , T PAN (40mg), Tab wysolone and Pentasa Anema. As there was no improvement. Doctor adviced to have Exemptia (Adalimumab) injection. 4 injections (40mg 8ml) was given. Next day he was having stomach pain, tight and rigid stomach, and fast breathing. He was immediately admitted in the nearby hospital and doctor found he was suffering from megacolon (toxic colon).
Has anyones RE ever discussed possible side effects to the fetus when using progesteron supplementation? I just read the insert for the gel Crinone and it mentions possible cleft palate and abdominal wall malfunctions. My RE didn't seem to know anything about this.
What it didn't give in the insert was whether the difference between those taking Crinone and those not taking it was significant.
Hi,
Oral antibiotics like metronidazole, ciprofloxacin and glutamate suppositories and butyrate enemas may be tried.
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The information provided is for patients’ education only and is not a medical advice. Always consult your personal physician for complete evaluation of your health problem.
- Ratnakar Kini M.D.
Hi!
I feel like you..very tired,irritated, and bloated stomach..It`s awful.
At beginning I thought it could be maybe early signs of pregnancy,but I started doing some research on that and I found out it`s due to the progesterone suppositories that we are taking!I think it`s early for pregnancy symptoms..But every woman is different..Hope you feel better, I am trying to survive here..
I've been taking natural progesterone (Progon B pellets,by Bezwecken) for the last 10 months and I've also tried their cream. For myself, I found that the pellets, which I let completely dissolve under my tongue works alot better than the cream to increase my progesterone levels. I've never had any side effects from this product and will continue to take it two weeks out of every month. God Bless.
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