Narcolepsy symptoms mayo clinic

Common Questions and Answers about Narcolepsy symptoms mayo clinic


Avatar f tn 6mm pineal cyst. My General Practioner at Mayo Clinic Scottsdale told me the MRI was negative, the pineal cyst wouldn't cause my symptoms and that was it. I went home and Googled pineal cyst & my symptoms match that of a symptomatic pineal cyst. I made an appt with the Neurology dept at Mayo but my GP put in comments that my Opth and Neuro-Opth appts returned negative results (not true) and so did the MRI.
1264955 tn?1381782221 Has anybody here been to the neurology clinic at the Mayo or in their inpatient pain treatment program?
Avatar m tn Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.
582396 tn?1259863489 I am over the moon excited that DH got a 5-10 day appointment at Mayo Clinic - Dec. 10. Anyone have any experiences on what to expect etc?
627388 tn?1222198212 Has anyone from the MS forum ever seek treatment for their MS at the Mayo Clinic? If so, how was your as your experience with physicians from the clinic? I am considering driving up to Mayo at some point if my neurologist in town can't definatively diagnosis me.
Avatar f tn I have just made an appointment for a full work up at the Mayo Clinic, does anyone know the tests involved and how much they charge? Thank you!
Avatar m tn Truthfully, I've heard one of the best MS Clinics in the US is the Mellen Center at Cleveland Clinic. You might try checking out They list all the clinics available, etc. My neuro said the clinic at Cincinatti isn't that great but thinks Cleveland Clinic is really good. I've never heard of the Mayo Clinic being highly rated for MS, but more for heart desease.
Avatar n tn Mayo Clinic doesn't list arm weakness as a symptom of Bell's palsy. Can you tell me your source of that information?
Avatar f tn However that does not preclude therapeutic trials as have been recommended to you at the Mayo Clinic. You might also want to ask your Mayo Allergist if there are yet other drug therapy possibilities that might be worth a trial.
237053 tn?1258828426 I went to the Mayo Clinic in AZ in January - hoping to find some answers. I will say that it is a very well run facility - but don't pin your hopes on a big "well known" facility to solve everything for you. The neurologist that I saw at the Mayo clinic didn't want to see my timeline or my list of symptoms - although at the end of my initial appointment, he did take my list of symptoms to include in my chart.
Avatar f tn You can go online and register or call to set up appointments at Cleveland Clinic and the MAYO Clinic. MAYO has three clinics in the U.S. You do not need a referral to get in to either of these clinics. I have also heard of people the drive there and tell them their symptoms and sometimes they get in right away. So, you might want to consider checking them out online and trying to set up an appointment. I hope this will help you, as I know how frustrating this can be and disabilitating.
729135 tn?1247495402 Over time, diagnoses sometimes change when additional evidence or symptoms appear. Regarding genetic testing for narcolepsy, positive test results indicate a susceptibility to narcolepsy but do not definatively diagnose narcolepsy. Positive genetic tests results are used to support a clinical diagnosis of narcolepsy. We recommend that you speak with your doctor regarding your symptoms and test results as well as to discuss the most appropriate course of treatment for your specific situation.
1225331 tn?1333365769 Maybe I was too harsh about Mayo. To be fair to Mayo Clinic, I do think they do have some very good doctors there, maybe it's just hard to get a neuro diagnosis - as it seems to be most other places in this country - so what's new? I did really think the Mayo radiologist who looked at my films was excellent - he found a couple of things the original outside radiologist did not notice such as brain mass loss.
Avatar f tn I decided that I should travel to the United States and hopefully get a diagnosis. I know that Mayo clinic and Cleveland clinic have a good dysautonomia clinics but I don't know which one should I choose so I would appreciate any suggestions !!! Also I know healthcare in the US is so expensive and since I don't have insurance I wonder how much such a visit to one of those hospitals will roughly cost ?I know it's hard to tell but I'm asking for a roughly cost. Thanks.
Avatar f tn m worried that I might have narcolepsy or MS. Can someone with narcolepsy please tell me about their symptoms, especially leg jerks, muscle sensations, chills, fatigue? It would help me a lot.
1166523 tn?1264364643 Hi janereed, I went to the Mayo Clinic in Rochester, MN in Oct 09. When I first walked in it was a dr that was training to be a consulting dr and he told me that they believed I had a stroke and that I was gonna stay like I was without improving. Well I blew up at him because he hadn't even examined me or anything. And all my other dr's from home had ruled out a stroke and said MS. Well the consulting dr. (Dr. Keegan) came in and did an examination and was very nice.
Avatar f tn I have POTS and am supposed to go to the Mayo Clinic in Minnesota this winter. I'm curious who has been to Mayo before and how their experiences went. Did you use the POTS clinic part of it or something else? I am also curious because I am mainly going to see if any doctor can figure out the underlying cause of my POTS (my current doctors are not interested in testing for any possible causes of it). Should I go to the POTS clinic part of it or should I just see a general doctor there?
Avatar n tn I have been at the Mayo Clinic for the last week. It has been a very pleasant experience, given my circumstances. They have been very efficient and very informative. They have treated me like a person and not just a number. I am very impressed. I am looking for some personal advice on medications. I was dx with CIS due to the fact that I am not really experiencing any symptoms other than the optic neuritis, which has resolved for the most part.
Avatar f tn I also had a mulititude of symptoms with no diagnosis. I went to the Mayo clinic in Florida and had the best experience. I started with an internal med doctor who listened and I was in his office for 2 hours. From there, he sent me to different specialities all within the clinic. They have people that do all this for you and although it takes time, usually over days--they were extremely efficient and did their best to schedule quickly and to work with me.
1745492 tn?1320198340 I have symptoms that some people say are consistent with narcolepsy. However, all I have seen are people with severe narcolepsy, and I'm not as bad as them. I do have very vivid dreams that can be stressful to me. I can write whole books on my dreams because they are so vivid. They are so stressful sometimes that I wake up sweating. I can fall asleep quick. As in I can take an short nap, say an hour, and still dream. I do not sleep well at night and have very interrupted sleep.
Avatar f tn m curious as to why so many people are against the Mayo Clinic? I myself am a patient there currently undergoing diagnostics, though I received a clinical MS diagnosis upon first appointment in November, at this time my other cranial issues and viral issues are also being examined. My Neuro there was able to detect issues in one visit that other facilities could not in several other states- including Stanford Over the course off seven years.
1166523 tn?1264364643 I will be going to the Mayo Clinic if FL to their MS specialist to confirm or deny MS in Feb. I am very excited about , hopefully, getting some answers. Has anyone here been to the Mayo Clinic? I was wondering what to expect and if anyone knew anything about Dr. Sheuster (sp?). I will be seeing her. Thanks!
Avatar f tn My sister was diagnosed with MS (finally) after going to the Mayo Clinic. She had been trying for 2-3 years to find out what was wrong. Her doctors in Kansas were perplexed. She feels like they were not sympathetic to her pains, treating her like she was making it up. She said the doctors at Mayo Clinic are proud to the point of being pompous-but they know their stuff, so they have the right to be that way. She thinks I have MS from my symptoms, because my symptoms are so similar to hers.
Avatar m tn m getting depressed and irritated over all of these symptoms with no answers and Mayo Clinic basically told me in the ER yesterday there was nothing else they could do at this point since all the tests are negative. I am on my second Neurologist. MS is apparently now ruled more out then in, and I'm ok with that, but does anyone have any suggestions on where I go from here? Any there any differentials I should be looking into.