narcolepsy mayo clinic

6mm pineal cyst. My General Practioner at Mayo Clinic Scottsdale told me the MRI was negative, the pineal cyst wouldn't cause my symptoms and that was it. I went home and Googled pineal cyst & my symptoms match that of a symptomatic pineal cyst. I made an appt with the Neurology dept at Mayo but my GP put in comments that my Opth and Neuro-Opth appts returned negative results (not true) and so did the MRI.

Has anyone from the MS forum ever seek treatment for their MS at the Mayo Clinic? If so, how was your as your experience with physicians from the clinic? I am considering driving up to Mayo at some point if my neurologist in town can't definatively diagnosis me.

I have just made an appointment for a full work up at the Mayo Clinic, does anyone know the tests involved and how much they charge? Thank you!

I am over the moon excited that DH got a 5-10 day appointment at Mayo Clinic - Dec. 10. Anyone have any experiences on what to expect etc?

Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.

Has anybody here been to the neurology clinic at the Mayo or in their inpatient pain treatment program?

However that does not preclude therapeutic trials as have been recommended to you at the Mayo Clinic. You might also want to ask your Mayo Allergist if there are yet other drug therapy possibilities that might be worth a trial.

I've not been to the Jacksonville Mayo or the MS clinic in Houston, I'm sorry about that. I have heard a lot of good things about the University of Texas Southwestern Medical Center at Dallas and Dr. Elliot Frohman who works there. I'm sure if you google his name you can find out much more than I can tell you about, here.

Truthfully, I've heard one of the best MS Clinics in the US is the Mellen Center at Cleveland Clinic. You might try checking out http://www.mscare.org They list all the clinics available, etc. My neuro said the clinic at Cincinatti isn't that great but thinks Cleveland Clinic is really good. I've never heard of the Mayo Clinic being highly rated for MS, but more for heart desease.

I decided that I should travel to the United States and hopefully get a diagnosis. I know that Mayo clinic and Cleveland clinic have a good dysautonomia clinics but I don't know which one should I choose so I would appreciate any suggestions !!! Also I know healthcare in the US is so expensive and since I don't have insurance I wonder how much such a visit to one of those hospitals will roughly cost ?I know it's hard to tell but I'm asking for a roughly cost. Thanks.

Mayo Clinic doesn't list arm weakness as a symptom of Bell's palsy. Can you tell me your source of that information?

Maybe I was too harsh about Mayo. To be fair to Mayo Clinic, I do think they do have some very good doctors there, maybe it's just hard to get a neuro diagnosis - as it seems to be most other places in this country - so what's new? I did really think the Mayo radiologist who looked at my films was excellent - he found a couple of things the original outside radiologist did not notice such as brain mass loss.

t hear back from them right away - I requested an appointment with the Mayo Clinic and it was almost a year before I heard back from them! If your current docs office does the request/referral, though, it should go a lot faster.

Cleveland Clinic and Mayo Clinic are obviously both top-flight medical centers, so the choice between the two would not be so much "which is better, Cleveland or Mayo;" it would be which one has a doctor or program that is more specialized to what you need.

A while back I entered the patient scholarship opportunity for the Social Media conference at Mayo Clinic. You may have even been one of the many people who ‘liked’ me through Facebook. They awarded three scholarships for the patient/caregiver and one companion to attend the conference. I was not one of the three people selected to attend, but I did reach out to the winners with my congratulations.

I just read that the Mayo Clinic in Arizonia is denying medicaid patients due to low reimbursments. They have to pay cash. Any thoughts?

I went to the Mayo Clinic in AZ in January - hoping to find some answers. I will say that it is a very well run facility - but don't pin your hopes on a big "well known" facility to solve everything for you. The neurologist that I saw at the Mayo clinic didn't want to see my timeline or my list of symptoms - although at the end of my initial appointment, he did take my list of symptoms to include in my chart.

My new neuro wants to refer me to Mayo Clinic. She thinks this is definitely an autoimmune disease but doesn't think that it is MS due to the intermittent low grade fevers for no apparent reason. I haven't discounted the fact that more than one thing may be going on. Anyway, saw that JH has the big autoimmune disorder research center and wondered, if this is what we're looking at, if it might be the better place to go. Any comments??? Thanks!

You can go online and register or call to set up appointments at Cleveland Clinic and the MAYO Clinic. MAYO has three clinics in the U.S. You do not need a referral to get in to either of these clinics. I have also heard of people the drive there and tell them their symptoms and sometimes they get in right away. So, you might want to consider checking them out online and trying to set up an appointment. I hope this will help you, as I know how frustrating this can be and disabilitating.

m curious as to why so many people are against the Mayo Clinic? I myself am a patient there currently undergoing diagnostics, though I received a clinical MS diagnosis upon first appointment in November, at this time my other cranial issues and viral issues are also being examined. My Neuro there was able to detect issues in one visit that other facilities could not in several other states- including Stanford Over the course off seven years.

I will be going to the Mayo Clinic if FL to their MS specialist to confirm or deny MS in Feb. I am very excited about , hopefully, getting some answers. Has anyone here been to the Mayo Clinic? I was wondering what to expect and if anyone knew anything about Dr. Sheuster (sp?). I will be seeing her. Thanks!

Regarding genetic testing for narcolepsy, positive test results indicate a susceptibility to narcolepsy but do not definatively diagnose narcolepsy. Positive genetic tests results are used to support a clinical diagnosis of narcolepsy. We recommend that you speak with your doctor regarding your symptoms and test results as well as to discuss the most appropriate course of treatment for your specific situation. We wish you the best.

I have POTS and am supposed to go to the Mayo Clinic in Minnesota this winter. I'm curious who has been to Mayo before and how their experiences went. Did you use the POTS clinic part of it or something else? I am also curious because I am mainly going to see if any doctor can figure out the underlying cause of my POTS (my current doctors are not interested in testing for any possible causes of it). Should I go to the POTS clinic part of it or should I just see a general doctor there?

A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.

Hello, everyone. I have been "diagnosed" with Chiari via the radiologist that viewed my MRI. I have my first appointment with Mayo tomorrow. The neurologist that originally ordered the MRI had no idea what Chiari was, so I'm trying out Mayo. I am going to the clinic in Jacksonville Florida - have any of you gone? Do you have any experience, good or bad, with them? I have waited SO LONG to get to this appointment.

Narcolepsy mayo clinic

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