Narcolepsy network organization

Common Questions and Answers about Narcolepsy network organization


589816 tn?1332976771 Does he have narcolepsy with cataplexy? Or is it without cataplexy? Xyrem is a drug approved for treating narcolepsy with cataplexy, and it's taken at night in two separate doses. It combats one of the most important symptom of narcolepsy, aside from cataplexy: fragmented night-time sleep. Just to give a bit more background in case I'm catching you off-base.....
Avatar f tn When I had my first child, I had an IN network OB, an IN network hospital but the anesthesiologist on duty was Out of network. No who, I ask you, when desperately needing that epidural asks the doctor that they send to provide it if they work with your insurance? ugh. So, I got the bills and they were 2000 bucks. I went to the insurance company and they stood by the decision that I had to pay as it was out of network doctor.
Avatar m tn • Gilead will provide support to the Patient Access Network (PAN) Foundation, an independent non-profit organization that provides assistance for eligible federally-insured and privately-insured patients who need help covering out-of-pocket medication costs. • The Support Path Patient Assistance Program will provide Sovaldi at no charge for eligible patients with no other insurance options. Information about how to apply for any of these forms of assistance can be found at www.
668092 tn?1225464120 I wanna be able to talk with others that have this condition because I feel like no one understands what im going through. I also have a condition called Cataplexy which is very rare and I have narcolepsy. If you wanna learn more about what I have I made a site that explains everything I have and what it is, http://www.piczo.
Avatar n tn Either contact your insurance company and see which doctors are in your network or check out That website found my endocrinologist and he is a good doctor. Hope this helps.
Avatar n tn He was not sure I had crps though bone scan suggested it, He was talking about possible synvisc injections in 6 weeks, last resort is an epidural. You see I suffer from narcolepsy/cataplexy and pain triggers off muscle tone loss of total body so even upon inserting the injection I would go limp hear everything but cant move., part of the cataplexy.
Avatar m tn I too got the run around from my insurance company, they refused to pay for the Sovaldi, riba, interf, However, my physician, a hepatologist was really ticked off by that and he arranged with the PAN, Patient Access Network, a non-profit organization to support patients who are under insured and meet their eligibility criteria which thankfully I did. They paid for all my medication and as of this date 7/19/14 I am clear. I started in January 2014 and ended approx. early April 2014.
Avatar n tn d give you a link. There is also info on the narcolepsy network site that you should be able to find if you google their name and cataplexy. Feel free to message me with questions on ruling that out (I have it). Heiferly.
Avatar f tn Anyone else going through a organization frenzy? I did laundry today and reorganized our entire closet and drawers!! I feel like I need to make room for baby things...I was going through baby stuff and I honestly don't remember buying SO much stuff!! I have no clue where its all going to go!! My husband clearly thinks I'm mental...I freaked out wondering where all these baby clothes came from and he was like..that's all you!!
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
1287446 tn?1313947638 Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.
Avatar f tn I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Avatar f tn Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
Avatar n tn The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
Avatar n tn ***@****] The Stroke Survivors Advocacy Network® is a registered 501(c) 3 non-profit organization organized under the laws of the State of California, Federal Law, and other applicable statutes relating to non-profit entities. Your donations to this Network are fully tax-deductible for US Income Tax purposes. Individual state income tax options may vary; please consult your tax professional(s). Please contact the Executive Director for details.
Avatar f tn i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.
Avatar f tn Former FreedomWorks chairman **** Armey says the conservative outlet that helped launch the Tea Party paid Glenn Beck at least $1 million last year to fundraise for the organization, an arrangement he said provided "too little value" for the money. "The arrangement was simply FreedomWorks paid Glenn Beck money and Glenn Beck said nice things about FreedomWorks on the air," Armey, the former House majority leader, told Media Matters Friday.
Avatar n tn The local hospital and staff is in network. My husband got a fishhook sunk deep in the back of his leg getting out of the truck. I couldn't remove it, I drove him to the ER we were there all of 30 mins, no wait taken care of right away. He received a tenus shot, novicane shot, they pushed the hook thru, cut off the barb with DIKES regular old plyer type dikes you can buy in a hardware store and pull it out. put a bandaid on it and sent him on his way. $1100!
535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.