Narcolepsy network forum

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narcolepsy

589816 tn?1332976771 Does he have narcolepsy with cataplexy? Or is it without cataplexy? Xyrem is a drug approved for treating narcolepsy with cataplexy, and it's taken at night in two separate doses. It combats one of the most important symptom of narcolepsy, aside from cataplexy: fragmented night-time sleep. Just to give a bit more background in case I'm catching you off-base.....
Avatar n tn d give you a link. There is also info on the narcolepsy network site that you should be able to find if you google their name and cataplexy. Feel free to message me with questions on ruling that out (I have it). Heiferly.
668092 tn?1225464120 I wanna be able to talk with others that have this condition because I feel like no one understands what im going through. I also have a condition called Cataplexy which is very rare and I have narcolepsy. If you wanna learn more about what I have I made a site that explains everything I have and what it is, http://www.piczo.
Avatar f tn Having a diagnosis of narcolepsy can bring some complications such as getting insurance, possible driving restrictions, etc. However, the truth is the truth and I personally would want to know and be treated specifically for it. But you may want to get your business in order first, such as know what the legalities are in your state, and have an insurance plan in place that is not temporary.
Avatar n tn He was not sure I had crps though bone scan suggested it, He was talking about possible synvisc injections in 6 weeks, last resort is an epidural. You see I suffer from narcolepsy/cataplexy and pain triggers off muscle tone loss of total body so even upon inserting the injection I would go limp hear everything but cant move., part of the cataplexy.
Avatar m tn I have narcolepsy with cataplexy. Cataplexy is rare in the absence of narcolepsy, but I believe it is possible. You may want to get a referral to a sleep neurologist to rule out narcolepsy w/ cataplexy, even if you're not sure you have symptoms of it, especially if these attacks are bothersome to you. The other thing you could be experiencing is presyncope, which can be accompanied by a loss of muscle tone as well as the sensation of almost passing out.
Avatar f tn Stress can cause the falling out.. narcolepsy.. and she's already had the brain surgery a few years ago w no relief.. looking at another surgery.. we'll know for sure the 31st.. she is a fighter like all of you.. but the chronic pain is at it's peak.. it never goes away are their any non habit forming drugs that can help w that... and when she is not having narcolepsy... she can't sleep at all... any suggestions?? Just want to help my baby sister...
612876 tn?1355514495 t know if this same answer will fit, but I wanted to share in case this information could possibly help someone else who is experiencing this paralysis. Apparently, I have narcolepsy (with cataplexy); by taking a very detailed history all the way back into my early childhood, they were able to determine that I had the narcolepsy BEFORE I had POTS, but the cataplexy only showed up when I started having syncope.
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
1287446 tn?1313947638 Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.
Avatar f tn I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Avatar f tn Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
Avatar n tn The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
149081 tn?1242397832 It's been a while since I've been here but I know I can count on this forum for some great advice and game plans. For those who don't remember or are new I had a TT in 2006 ( non cancerous hurthle cell neoplasms was the final dx). My latest labs show I am hypo again but my endo won't increase my meds because he does not believe my symptoms are thyroid. I also have Narcolepsy so symptoms of fatigue and brain fog do flow in a gray area for thyroid treatment.
Avatar n tn Hi, welcome to the forum. Your history is suggestive of narcolepsy. In this condition there will be excessive daytime sleepiness. In this condition there will be “automatic behavior" such as driving past a highway exit or writing off a page, with no memory of the previous few minutes. Classical narcolepsy constitutes of Hypnagogic hallucinations, Sleep paralysis and Cataplexy (emotionally triggered muscle paralysis resulting in partial or complete collapse).
Avatar m tn 22 hours is far more than I oversleep but I lose several hours a day. I thought of narcolepsy and other problems and will ask a doctor next week. If he can help I will put it on the forum for you.
1704625 tn?1310708761 Hello, everyone, I am fairly new to medhelp, and the sleep disorders community. I have narcolepsy, and was diagnosed about 4 years ago, or close to that. I was wondering if anybody else who has been diagnosed is still in denial after that long, questioning....maybe it's something else?! I can't believe I have narcolepsy.
Avatar f tn Take a look at this forum. You might have the same symptoms as many of these people and there are a couple suggestions. I found it interesting to know others had the same sensations and all around the same age. I was 17 or 18 when mine started. Still not sure what it is but have much better idea about possibilities I never even considered which is great since it's gotten much worse in short time.
Avatar m tn Hi, welcome to the forum. Your history is suggestive of narcolepsy. In this condition there will be excessive daytime sleepiness. In this condition there will be “automatic behavior" such as driving past a highway exit or writing off a page, with no memory of the previous few minutes. Classical narcolepsy constitutes of Hypnagogic hallucinations, Sleep paralysis and Cataplexy (emotionally triggered muscle paralysis resulting in partial or complete collapse).