Narcolepsy network phone

Common Questions and Answers about Narcolepsy network phone

narcolepsy

589816 tn?1332976771 Does he have narcolepsy with cataplexy? Or is it without cataplexy? Xyrem is a drug approved for treating narcolepsy with cataplexy, and it's taken at night in two separate doses. It combats one of the most important symptom of narcolepsy, aside from cataplexy: fragmented night-time sleep. Just to give a bit more background in case I'm catching you off-base.....
Avatar n tn d give you a link. There is also info on the narcolepsy network site that you should be able to find if you google their name and cataplexy. Feel free to message me with questions on ruling that out (I have it). Heiferly.
Avatar f tn Hello, Without physical examination and investigations,diagnosis is difficult but your symptoms are suggestive of narcolepsy. Narcolepsy is a neurological condition most characterized by Excessive Daytime Sleepiness (EDS), in which a person falls asleep during the day at inappropriate times, such as at work.Diagnosis is by polysomnogram and the multiple sleep latency test (MSLT). I sincerely advise you to consult a sleep specialist and discuss this possibility with him.
668092 tn?1225464120 I wanna be able to talk with others that have this condition because I feel like no one understands what im going through. I also have a condition called Cataplexy which is very rare and I have narcolepsy. If you wanna learn more about what I have I made a site that explains everything I have and what it is, http://www.piczo.
Avatar n tn He was not sure I had crps though bone scan suggested it, He was talking about possible synvisc injections in 6 weeks, last resort is an epidural. You see I suffer from narcolepsy/cataplexy and pain triggers off muscle tone loss of total body so even upon inserting the injection I would go limp hear everything but cant move., part of the cataplexy.
Avatar n tn All of our visits were labeled as out-of-network. They said the dr. had submitted a form to get re-added to the network but all visits occurring before she was readmitted would be treated as out of network they would not pay them retroactive when she was admitted back into the network. Does this sound right. Sounds like they are using a loophole to deny service. They also said it could take 4-6 months to accept the dr as in-network. This sounds completely crazy to me.
1416828 tn?1282090317 During the day at the office I am always falling asleep, sitting at my desk typing, talking to a workmate, on the phone, in meetings etc. Even when am driving i fall asleep. I feel tired most of the time. But I am fit i train in the mornings and afternoons, since the last 2 months, I have lost wieght which is great. But I am seriously worried about this falling asleep everywhere. I usually go to bed at 10 -11pm and wake up at 5am for training.
1222635 tn?1366396286 Sorry for the long post, but I need help. My entire life I have struggled with sleep. From the time I was little, I have required assistance waking. My mom will tell stories of dragging me out of bed when I was younger, and taking me to school in my pajamas. I had a strict 9 pm bedtime, and I got plenty of rest (about 10 hours) ... She thought I was just stubborn. As I've gotten older, the problem seems to have become more noticeable.
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
1287446 tn?1313947638 Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.
Avatar f tn I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Avatar f tn Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
Avatar n tn The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
Avatar n tn t have that get him tested for narcolepsy. narcolepsy in real life isnt always as dramatic and obvious as it is in the movies. adults with narcolepsy, as children their symptoms very closely resemble add.
Avatar f tn i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.
Avatar f tn Do they treat a lot of patients w/out surgery or is surgery their main treatment course? I'm trying not to read too much into the phone conversation, but now that I'm on the computer vs my phone it's easier to tell you how it went. Got the call from the nurse, Kathy. She explained they are out of network with my insurance but that my case was reviewed and the Doctors would like for me to come in if I'd like to but with it being out of network the first appt is $500.
Avatar m tn m sorry your having such a hard time. I too have narcolepsy. I disagree with your doc saying that narcolepsy cannot get worse- no one knows that until they have experienced this disabling disorder. How long before going back to work did you restart your meds? I wonder if the combo of provigil and ritalin is causing your hbp. I had a hard time while on provigil- It made my bp rise and made my sleep attacks worse. Did you ever consider acid reflux as the problem behind the mild apnea?
1380526 tn?1292839385 I got a phone call from my son's NL office today. They say they want to do an LP on him. They have him booked in for 15th June. They want to do this to see if he has Nacrolepsy. I don't know what to do.
Avatar f tn to add insult to injury I went to my 3rd dr appt today and put down 300 towards my labor delivery (total 1500 now). 45 min later I get a phone call saying that they are just realizing that my dr isn't covered under my insurance and that the 1500 now has to go towards me paying all of the lab fees, Dr fees, and ultrasound fees and out of network pricing. isn't it standard procedure for them to check insurance before the first appt.
620048 tn?1358018235 Be aware that the "4G" part is only of benefit if you are in the 4G coverage area, which on the Verizon coverage map is only urban areas, although about 250 of them. At least you're actually paying nothing for the phones ... unless you absolutely have to have the trendiest phone there's seldom any reason to pay for a cell phone. They make their money off of us with the monthly charges. I have never paid for any app on my phone (HTC Droid Incredible).
535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
Avatar m tn Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.
1745492 tn?1320198340 My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.
Avatar n tn has anyone heard what vaccination is reportedly linked to narcolepsy? i saw a show yesterday about narcolepsy and they mentioned a vaccination was given to a 13 year old girl and 2 hours later she was experiencing cataplexly (a paralyzing catatonic state that is a symptom of narcolepsy) but they did not say which vaccination.