narcolepsy network board

Does he have narcolepsy with cataplexy? Or is it without cataplexy? Xyrem is a drug approved for treating narcolepsy with cataplexy, and it's taken at night in two separate doses. It combats one of the most important symptom of narcolepsy, aside from cataplexy: fragmented night-time sleep. Just to give a bit more background in case I'm catching you off-base.....

I wanna be able to talk with others that have this condition because I feel like no one understands what im going through. I also have a condition called Cataplexy which is very rare and I have narcolepsy. If you wanna learn more about what I have I made a site that explains everything I have and what it is, http://www.piczo.

If you want further information on Narcolepsy or forum support please visit cataplexic ******* the members of that board all have Narcolepsy and understand the symptoms and devastating effects.

He was not sure I had crps though bone scan suggested it, He was talking about possible synvisc injections in 6 weeks, last resort is an epidural. You see I suffer from narcolepsy/cataplexy and pain triggers off muscle tone loss of total body so even upon inserting the injection I would go limp hear everything but cant move., part of the cataplexy.

t increase my meds because he does not believe my symptoms are thyroid. I also have Narcolepsy so symptoms of fatigue and brain fog do flow in a gray area for thyroid treatment. My latest labs are as follows: TSH - 2.15 range for this lab is .47 - 5.0 FT4- 0.58 range 0.64 - 1.

Hello, everyone, I am fairly new to medhelp, and the sleep disorders community. I have narcolepsy, and was diagnosed about 4 years ago, or close to that. I was wondering if anybody else who has been diagnosed is still in denial after that long, questioning....maybe it's something else?! I can't believe I have narcolepsy.

d give you a link. There is also info on the narcolepsy network site that you should be able to find if you google their name and cataplexy. Feel free to message me with questions on ruling that out (I have it). Heiferly.

I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?

Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.

I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?

Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.

The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!

I have pretty good insurance and everything will be covered in network, except the NS alone will be out-of-network so I will have a higher deductible there. I just trying to get a basic idea of what I am going to have to pay in the end. The NS's staff told me not to worry about it and they would work with me about the payment, but I would still like to get a basic idea.

i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.

I would definitely recommend going to see a doctor who specializes in sleep medicine, preferably one that is American Academy of Sleep Medicine board certified. Based solely on the limited amount of information you provided, it is difficult to say what the problem might be. Possible diagnoses I would consider would be Hypersomnia (i.e, excessive daytime sleepiness), Idiopathic Hypersomnolence (i.e., excessive daytime sleepiness due to unknown reasons), Narcolepsy.

Try looking on your state Medical Board site. They usually list the education and dates of graduation on there. My state, GA, lists their Board under the Secretary of State site but you can just google "State" Medical Board and find the website.

A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.

Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.

It was recently discovered that I have narcolepsy on top of my thyroid issues, for those of you who don't recall my thyroid was removed due to multi-nodular goiter with hurthle cells. I was put on a medication called Provigil. Provigil is a central nervous system stimulant to help keep me from wanting to sleep so much - also I am currently on 150mcg. of levoxyl and 3 weeks ago all my thyroid levels came back normal.

My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.

has anyone heard what vaccination is reportedly linked to narcolepsy? i saw a show yesterday about narcolepsy and they mentioned a vaccination was given to a 13 year old girl and 2 hours later she was experiencing cataplexly (a paralyzing catatonic state that is a symptom of narcolepsy) but they did not say which vaccination.

and at the same time it should not be happening. i do have narcolepsy and the reason i add this is because i know this in itself has a lot of symptoms ie cataplexy sleep paralysis.

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