Narcolepsy message board

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narcolepsy

Avatar f tn Hi to everyone, I've been reading this message board for months now, but unable to post because my Apple computer won't let me, don't understand why and we've tried everything.so i'm in my adult community's clubhouse using their pc. Let me first say you are an amazing, compassionate group of ladies and I'm glad to be able to read the information you post to help each other. I'm stage 3C, BRCA 2 positive, OVCA which has metastasized to the lymph nodes.
867808 tn?1239482070 Hi, my name is Valerie and I am 16 years old and I am always very tired everyday. I always get enough sleep, usually about 8 or 9 hours of sleep, yet I always have to take a naps. These are not short naps either, these naps can last from 4 to even 6 hours long. Usually on weekdays because I have school, I go to bed at about 8 or 9 and wake up at either 5 or 6 because of school.
Avatar f tn i sent you a message I am just getting the hang of this and I have narcolepsy would definitely like to chat
4592241 tn?1359813138 I know this is an old post but am hoping that you get this message. I was just diagnosed with Narcolepsy also and I am a recovering Meth addict. My doc knows my history and I am struggling to get the appropriate help here.
Avatar f tn If you want further information on Narcolepsy or forum support please visit cataplexic ******* the members of that board all have Narcolepsy and understand the symptoms and devastating effects.
149081 tn?1242397832 t increase my meds because he does not believe my symptoms are thyroid. I also have Narcolepsy so symptoms of fatigue and brain fog do flow in a gray area for thyroid treatment. My latest labs are as follows: TSH - 2.15 range for this lab is .47 - 5.0 FT4- 0.58 range 0.64 - 1.
Avatar f tn Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include- Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.
1704625 tn?1310708761 I know personally how hard it can be to have a sleep disorder. I have narcolepsy. I feel that my family and friends have a little difficulty understanding exactly what's going on with me. So, I thought perhaps opening my own group where I can feel comfortable and discuss day to day life with others that have sleep disorders would not only help me out, but possibly others that are effected everyday like me. I am eager to hear from all of you soon!
1704625 tn?1310708761 Hello, everyone, I am fairly new to medhelp, and the sleep disorders community. I have narcolepsy, and was diagnosed about 4 years ago, or close to that. I was wondering if anybody else who has been diagnosed is still in denial after that long, questioning....maybe it's something else?! I can't believe I have narcolepsy.
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
1287446 tn?1313947638 Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.
Avatar f tn I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Avatar f tn Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
Avatar n tn The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
Avatar f tn have been in past 10-20 yrs dealing asthma, sleep apnea, narcolepsy,vertigo,anxiety/stress. for 12 days have had an onset of some mild memory loss,confusion,losing of time a little,extreme exhaustion, muscle weakness, i believe muscle wasting in calves, muscle twitching(have had in past). numbing tingling in forearms, hands,feet, lower legs.back pain middle to lower back. neck stiff. I work hard and drive alot.
Avatar f tn i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.
Avatar n tn I would definitely recommend going to see a doctor who specializes in sleep medicine, preferably one that is American Academy of Sleep Medicine board certified. Based solely on the limited amount of information you provided, it is difficult to say what the problem might be. Possible diagnoses I would consider would be Hypersomnia (i.e, excessive daytime sleepiness), Idiopathic Hypersomnolence (i.e., excessive daytime sleepiness due to unknown reasons), Narcolepsy.
535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
Avatar m tn Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.
1745492 tn?1320198340 My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.
Avatar n tn has anyone heard what vaccination is reportedly linked to narcolepsy? i saw a show yesterday about narcolepsy and they mentioned a vaccination was given to a 13 year old girl and 2 hours later she was experiencing cataplexly (a paralyzing catatonic state that is a symptom of narcolepsy) but they did not say which vaccination.