Does anyone know of long-term side-effects of Avonex? I've had about 8 or 9 injections so far - was diagnosed
a few mos. ago. I will see the (MS) dr. in 2 days, a 3 month follow-up visit. Does anyone know of any questions I should ask her? Thank you very much! I appreciate any feedback.
go to my nero. on friday morning. is this normal after doing avonex? i seem like i cant do anything very long at all. it wears me out and i hurt all the time. my left leg just dont do what its surpose to do. i trip and when i reach for something its like i get a sharp pain in my back. is this normal for ms? and thanks for all the help you wonderfull people have given me iin the past.
I haven't heard about Avonex causing those side effects long term. It may be worth it to have your blood glucose checked. Having diabetes can cause this delay in healing.
As always, your doctor knows best.
I was on Avonex for several years. No digestive problems but many flu-like symptoms, worse sometimes than others. I learned from experience that these effects would start 2 or 3 hours after my shot, so I did it at night before bed, after which I took 2 Aleve, since these are long-lasting. The net result was that I'd sleep through whatever the Avonex side effects might be, buffered by Aleve.
True, the worst effects may come before sleep time, but any side effects are more likely out of the way by work time at 6 a.m. Sunday. And by being awake, you can maintain the dosing of acetaminophen or whatever drug at two every however many hours, and you can keep drinking lots of water.
To Aroma_1, the official documentation says that you have to have injections 48 hours apart. I would recommend doing whatever you can to maintain a consistent schedule, especially early in treatment.
re having a discussion on the MS forum about whether one can skip a dose of Avonex to avoid the major side effects during the holiday festivities. Some who take Avonex feel quite sick for a day or two. I'm lucky not to, but still this is a good question. Perhaps you could answer in terms of all 4 DMDs.
Thank you.
Nevine, welcome to the MS forum. Wow, you live in Egypt--a place that I would love to one day visit!
MS is very unpredictable, so it's hard to say how long an attack will last. First attacks will sometimes be very hard and last for several weeks or even months, but this is so variable. Also, attack times will even vary in the person themselves. My last attack only lasted a couple of days. However, I've had attacks that have lasted several months.
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