Does anyone know of long-term side-effects of Avonex? I've had about 8 or 9 injections so far - was diagnosed
a few mos. ago. I will see the (MS) dr. in 2 days, a 3 month follow-up visit. Does anyone know of any questions I should ask her? Thank you very much! I appreciate any feedback.
I haven't heard about Avonex causing those side effects long term. It may be worth it to have your blood glucose checked. Having diabetes can cause this delay in healing.
As always, your doctor knows best.
If you stay on the Avonex I would ask your doctor to check your liver function and other levels with a blood test every 3-6 months for the first year to make sure your body is handling it well. Are you having any side effects now from the Avonex, such as depression, flu-like symptoms, etc?
I am on Avonex now and the website is helpful. Also, did you get an info packet when you started? I found that helpful, too.
Why do your doctors think its MS? Have you seen an MS specialist?
I'm sorry you feel so poorly. I haven't started any disease modfying drug yet, that will come in mid August. I've heard this about Avonex. The National MS Society website has some great info: www.nationalmssociety.org
Here is what is a small portion of what is said about Avonex side effects:
"Flu-like symptoms are a fairly common side effect during the initial weeks of Avonex treatment. It is recommended that you take your Avonex injection before bedtime.
Thanks. i shot a week is all I can handle. I'm almost sure I will go back on the Avonex. With Ibuprofen, I wouldn't get the side-effects from the shots. Not even sure it was the Avonex that was getting me sick. I will keep in mind that I could always switch to something else. Thanks!
-)
I want to emphasize again that many Gilenya users have not reported intolerable side effects. Now that it appears that there are no long-term adverse effects for me, I’m thankful that at least I gave it a try.
My switch to Gilenya was part of a Phase IV clinical trial (see http://clinicaltrials.gov/ct2/show/NCT01216072?term=fingolimod&rank=8), so the drug company certainly will find out about the side effects, perhaps the FDA does as well.
i wonder did a doctor tell you you had multiple chemical sensitivites....
That's a good one! I sure hope I get that long term side effect.
It is a good thing that your doctor says you are stable, but if you aren't able to continue the avonex for whatever reason, that could easily change. Please go back to your neuro and stress what you have told us here. good luck.
Levoxly's long term side effects if taken at the right dose are very rare, with the most common being hair loss nothing new to most of us here.
True, the worst effects may come before sleep time, but any side effects are more likely out of the way by work time at 6 a.m. Sunday. And by being awake, you can maintain the dosing of acetaminophen or whatever drug at two every however many hours, and you can keep drinking lots of water.
To Aroma_1, the official documentation says that you have to have injections 48 hours apart. I would recommend doing whatever you can to maintain a consistent schedule, especially early in treatment.
Recommended
I have no symptoms and feel great; I am 54 and wondering if HEP C would kill me or if the treatment could cause 