Forteo and osteonecrosis
Common Questions and Answers about Forteo and osteonecrosis
forteo
I took Forteo for 10 months. and i can barely walk. i took Tymlos for the first 6 months and was fine, and then Forteo for 10 months. my strength is gone, my feet hurt wearing shoes, i have stomach pain when exercising, and ave thigh muscle cramps, neck pain, and can't sleep. I had confusion when driving, so i told my doctor i'm done with this. I know where i'm going these days, but I now use a walker around the house, elastic knee braces to walk on my own.
I have severe osteoporosis and am trying to take Forteo. I started out with half dose and have worked up to a full dose. The full dose 2 days in a row was disabling. My doctor suggested every other day. So I let the previous trial work its way out of my system for 5 days and tried another full dose. This is three days after the dose and I am weaker each day. I move in slow motion. My doctor is puzzled. Anyone had a similar experience?
com/arthritis/avascular-necrosis-osteonecrosis-symptoms-treatments#2. And here is an overview of the type of surgery that she had https://nyulangone.org/conditions/osteonecrosis/treatments/joint-preserving-surgery-for-osteonecrosis.
I do hope it wasn't useless to have the surgery but I would question that doctor about what is next if they feel that way. There are other treatment options. And it's very important to find the core cause of why it is happening to begin with.
Osteonecrosis Aseptic necrosis, Avascular necrosis, Ischemic necrosis
Osteonecrosis occurs when your bones lose their blood supply. The bones die and eventually collapse, leading to pain and arthritis. You can have osteonecrosis in one or several bones. It is most common in the upper leg. Other common sites are your upper arm and your knees, shoulders and ankles. The disease can affect men and women of any age, but it usually strikes in your thirties, forties or fifties.
I have worked with this site for many years assisting people to get the medicines that they need. You should check and see if you qualify for the Forteo assistance program: http://www.needymeds.org/drug_list.taf?_function=name&name=Forteo
Good luck! I am a breast cancer patient in a drug study taking the osteoporosis drug, Zometa. There is some promising data that suggests osteoporosis drugs may help prevent breast cancer patients having recurrances of cancer as bone cancer.
I had a BMD issue a couple of years ago (suffered 3 hip fractures over 2 years) and after seeing 7 different doctors my Primary Care seemed to put a ton of things together and believed I was not absorbing calcium and may estrogen levels were super low and virtually non existent. I was put on Ogestral and Forteo and knock on wood- no more injuries and a BMD increase of 22% in 1 yr. However, I started having what I thought was food allergies.
Yes, I saw that osteonecrosis. Scary. The blood supply actually stops flowing to the jaw and it dies. She is taking calcim supplements and vitamine D with 50,000 IU per week. But I still don't understand the underlying cause of the bone loss. Wonder if her her low thyroid chemistry causes this. Wonder if she would take synthroid if her problem would resolve.
There are reports that link people taking IV fosamx to osteonecrosis of the bone having oral and maxilofacial surgery. Treatment really depends upon degree of severity. Most of the time patients are advised hyperbaric chambers.
My 20 year son has severe chronic bone pain, osteoporosis and has had multiple fractures. We have also had bone biopsy with showed a mineralization defect(focal osteomalacia) and high turn bone turnover but these do not lend themselves to a diagnosis. His blood levels of calcium and vit D are normal. He received a Pamidronate infusion in October 2004 and that is when the pain began. He was completely debilitated at that time as he is now.
In the summer, when I take a hot shower or just when I wake up, my foot becomes red and swollen. It has evolved to the point that both my feet and hands have this condition. My injured foot is worse.
I live in a cold, winter climate and my feet turn purple as well. I have lost feeling in my left foot and it is becoming scary. Meds (to increase circulation) have aggravated the problem). RSD was ruled out as I had a nerve block which aggravated the problem. I have had all blood tests.
After taking Fosomax for several months I noticed a snapping sound with pain in my jaw when I opened my mouth wide to take a bite of a sandwich. I asked my doctor about it and she said TMJ. I also said that I feel pain deep within my ear and she said that would be caused by the TMJ. When I asked her if the Fosomax could be causing the problem she said absolutely not. She asked if I grind my teeth at night and told me that I may not know that I'm doing it. I really don't think that I am.
When standing after a long period of time sitting I experience symptoms beginning with pressure and pain to the center of my forehead. The pressure generates into my sinus and ears, making my ears pop as if in a plane. My vision becomes blurry and my legs feel as if they are going to collaspe from up under me. I have actually had to crawl on several occasions as my legs would not support me. This has been a consistant problem for about two months. It may occur 1-5 times a week.
The bursae and soft tissue surrounding
the shoulder are unremarkable.
Impression:
1. Supraspinatus and infraspinatus tendinopathy however, the
tendons remain intact.
2. Mild degenerative joint disease of the acromioclavicular joint
without large osteophytes.
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