I have worked with this site for many years assisting people to get the medicines that they need. You should check and see if you qualify for the Forteo assistance program: http://www.needymeds.org/drug_list.taf?_function=name&name=Forteo
Good luck! I am a breast cancer patient in a drug study taking the osteoporosis drug, Zometa. There is some promising data that suggests osteoporosis drugs may help prevent breast cancer patients having recurrances of cancer as bone cancer.
I took Forteo for 10 months. and i can barely walk. i took Tymlos for the first 6 months and was fine, and then Forteo for 10 months. my strength is gone, my feet hurt wearing shoes, i have stomach pain when exercising, and ave thigh muscle cramps, neck pain, and can't sleep. I had confusion when driving, so i told my doctor i'm done with this. I know where i'm going these days, but I now use a walker around the house, elastic knee braces to walk on my own.
I have severe osteoporosis and am trying to take Forteo. I started out with half dose and have worked up to a full dose. The full dose 2 days in a row was disabling. My doctor suggested every other day. So I let the previous trial work its way out of my system for 5 days and tried another full dose. This is three days after the dose and I am weaker each day. I move in slow motion. My doctor is puzzled. Anyone had a similar experience?
I'm a 31 yr old male, 3 years ago I was diagnosed with fibrous dysplasia of the frontal skull bone after developing a continuous headache.
For reference purposes, I posted my MRI images here:
http://robsaysrelax.googlepages.com/
My doctors have a strict aversion to operating for this due to it being non-life threatening, as the tumor is stable....
Recently I saw a new ENT who recommended bisphosphonates therapy and referred me to an endocrinologist for this and he told me if this doesn't work talk to him about an endoscopic operation. He said that a Reclast infusion may help me, or Fosamax.
Please tell me what you know about this. I worry about 2 things right now-- what if the bone tumor is something else and not fibrous dysplasia, and the bisphosphonates make it worse by causing a more heavy calcification?
HI,
Endocrinologists do prescribe many bisphosphonates because we treat osteoporosis, paget's disease and others with these medications. Perhaps he simply wants to find someone very comfortable with those doses.
5 centimeter supra-orbital bone tumor that has been completely stable on scans since 3 and 1/2 years ago. I have had a continuous intractable headache behind my forehead which has not responded to the usual headache therapy regimen. It is believed to be monostotic fibrous dysplasia of the skull. I have found articles to suggest that high-dose bisphosphonate therapy (40 mg/day for 6 months) offers a significant improvement in patients with fibrous dysplasia of the skull.
I had a BMD issue a couple of years ago (suffered 3 hip fractures over 2 years) and after seeing 7 different doctors my Primary Care seemed to put a ton of things together and believed I was not absorbing calcium and may estrogen levels were super low and virtually non existent. I was put on Ogestral and Forteo and knock on wood- no more injuries and a BMD increase of 22% in 1 yr. However, I started having what I thought was food allergies.
I think you are talking about several different things, There are different treats for osteoporosis one of the more popular and common are bisphosphonates. They are given generally prescribed orally and include Fosamax, Actonel and Boniva. They can cause some severe stomach distress as they did for my father. When this happens there are injectable forms of bisphosphonates.
My 20 year son has severe chronic bone pain, osteoporosis and has had multiple fractures. We have also had bone biopsy with showed a mineralization defect(focal osteomalacia) and high turn bone turnover but these do not lend themselves to a diagnosis. His blood levels of calcium and vit D are normal. He received a Pamidronate infusion in October 2004 and that is when the pain began. He was completely debilitated at that time as he is now.
In the summer, when I take a hot shower or just when I wake up, my foot becomes red and swollen. It has evolved to the point that both my feet and hands have this condition. My injured foot is worse.
I live in a cold, winter climate and my feet turn purple as well. I have lost feeling in my left foot and it is becoming scary. Meds (to increase circulation) have aggravated the problem). RSD was ruled out as I had a nerve block which aggravated the problem. I have had all blood tests.
If anyone can tell me something about Arimidex and the above side effects and osteopenia and whether or not I need to start a bisphosphonates please let me know.
however had a complete hysterectomy at 21 and have been on hormone replacement. I know that the early hysterectomy has caused my bone issues(been on Fosamax and actually just started Reclast this week -2.7) but I wonder if it is effecting the breast? I went in for my annual mamo last week and have been called back yet again. New spot directly under the nipple, same breast. Sheduled US for next week. So two mamos and 2 call backs...I am nervous..
for the treatment of Osteoporosis and all have some value. One with a similar name (Boniva) is used quite often and is said to have good results. Since we deal strictly with Breast Cancer issues on this Community you might look at the top of the page under "Health Information" where you will find a subtitle "Osteoporosis" and post there or read other posts and comments. Regards ....
When standing after a long period of time sitting I experience symptoms beginning with pressure and pain to the center of my forehead. The pressure generates into my sinus and ears, making my ears pop as if in a plane. My vision becomes blurry and my legs feel as if they are going to collaspe from up under me. I have actually had to crawl on several occasions as my legs would not support me. This has been a consistant problem for about two months. It may occur 1-5 times a week.
partial sacralization of l5. anterior fusion of l3 and l4. vertabral body and disc heights maintained. Moderate aortic calcifications are seen
cervical spine: no fractures or subluxations. disc space narrowing at c5-c6 vertibral body heights maintained. minimal bony spurring at c5-c6 also noted.
I have had severe joint and muscle pain all over including migraines. I do know about the fusion of l3 and l4 it is congenital.
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