As for myself, I am a patient suffering from severe osteoporosis. My doctor, realizing I cannot afford Forteo ($950 per month!), has suggested I try to find how I can take the equivalent, generic version, which is Bonista.
Please, if anyone can tell me how to get ahold of this medication, any address, emails of sellers, etc! I would be so grateful!
This discussion is related to <a href='/posts/show/1230787'>Bonista-side effects</a>.
I have been on Forteo daily injections for 1 year and I have experienced considerable joint pains which did not exist prior to treatment. My left hip and knee, my right knee and my hands have been getting worse each month. Has anyone else experienced similar reactions?
My doctor told me that I have Osteoporosis and wants me to try Forteo an injection for two years. Has anyone tried this drug and what were your side effects, if any. I don't want to make my stomach problems worse than there already are.
I have severe osteoporosis and am trying to take Forteo. I started out with half dose and have worked up to a full dose. The full dose 2 days in a row was disabling. My doctor suggested every other day. So I let the previous trial work its way out of my system for 5 days and tried another full dose. This is three days after the dose and I am weaker each day. I move in slow motion. My doctor is puzzled. Anyone had a similar experience?
Just was informed that I have osteoporosis. My doctor wants me to use Forteo, an injection that you use for two years.
I'm a 31 yr old male, 3 years ago I was diagnosed with fibrous dysplasia of the frontal skull bone after developing a continuous headache.
For reference purposes, I posted my MRI images here:
http://robsaysrelax.googlepages.com/
My doctors have a strict aversion to operating for this due to it being non-life threatening, as the tumor is stable....
Recently I saw a new ENT who recommended bisphosphonates therapy and referred me to an endocrinologist for this and he told me if this doesn't work talk to him about an endoscopic operation. He said that a Reclast infusion may help me, or Fosamax.
Please tell me what you know about this. I worry about 2 things right now-- what if the bone tumor is something else and not fibrous dysplasia, and the bisphosphonates make it worse by causing a more heavy calcification?
HI,
Endocrinologists do prescribe many bisphosphonates because we treat osteoporosis, paget's disease and others with these medications. Perhaps he simply wants to find someone very comfortable with those doses.
There definitely is a connection between bisphosphonates like Fosamax and osteonecrosis of the jaws. This has been well established and documented in medical and dental journals.
An oral and maxillofacial surgeon is the type of doctor that most commonly diagnoses and treats this condition.
Hi-- When you say Medicare, I assume it is Medicare Part D, administered by an insurance company like Blue Cross, etc? If so, you might be in for sticker shock. I had a similar experience w/ Forteo, via Part D, they wanted $5K for 3 months. I went directly to Lilly, and qualified for pro bono meds for 2 years, the limit of tx on Forteo. My understanding is patients with cirrhosis get priority. Other Gilead experienced persons, and there are a few here, can tell you more.
Do you believe that since my fibrous dysplasia has remained static / unchanged in almost 4 years that bisphosphonates would possibly be helpful to a large degree?
Also, what do you know about the risks of taking a high dose of this drug such as Fosamax?
Here's one of the articles I found:
1: J Neurosurg. 2008 Nov;109(5):889-92.
Related Articles, Links
Use of high-dose oral bisphosphonate therapy for symptomatic fibrous dysplasia of the skull.
Chao K, Katznelson L.
I think you are talking about several different things, There are different treats for osteoporosis one of the more popular and common are bisphosphonates. They are given generally prescribed orally and include Fosamax, Actonel and Boniva. They can cause some severe stomach distress as they did for my father. When this happens there are injectable forms of bisphosphonates.
Medications themselves can be classified as antiresorptive or bone anabolic agents. Teriparatide (Forteo) is also approved for the treatment of postmenopausal women who have severe osteoporosis and are considered at high risk for fractures. The medicine is given through daily shots underneath the skin and you can give these shots even at home. Another advantage is that it can be given in patients who cannot tolerate oral biphosphonate drugs.
A class of osteoporosis prevention/treatment drugs called bisphosphonates have been associated in two studies with about a 30% reduction in invasive BC.
However, there needs to be more research to determine if this is just a correlation, or if these drugs actually lower the risk of breast cancer.
Osteoporosis can cause degenerative changes in the joints. It is treated with bisphosphonates. Others like denosumab and calcitonin are also used for therapy. Please discuss this with your doctor am sure he will provide further assistance.
Hope this helped and do keep us posted.
I recommend checking out the website "Save Our Bones". It is an alternative to using bisphosphonates (Fosamax, Boniva, Actonel, et al) These drugs interrupt the remodeling of bones by adding a "sheath" or layer of hardening to the outside of the bones in an effort to prevent bone "loss". Bones remodel (replace) naturally every few years.
One of the problems with bones is our diets are often highly acidic by processed foods.
Bisphosphonates like Boniva have been associated rarely with uveitis. You would experience ocular pain, blurred vision, light sensitivity, loss of vision and possibly glaucoma if you had uveitis. Your ophthalmologist would be able to tell you right away if you had any uveitis and the Boniva could be discontinued if that were the case.
Food and Drug Administration raised concerns about the potential for some serious side effects in women taking bone-building drugs called bisphosphonates, specifically Fosamax, Actonel and Reclast. The published findings are not new.
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