Fibromyalgia research donate

Common Questions and Answers about Fibromyalgia research donate


1047234 tn?1253547296 I have Fibromyalgia and am RH negative, as well!
181575 tn?1250202386 I am reposting articles / summaries on the treatment management of chronic HepB. "cajim" located these articles which are quite informative. I thought about putting them on a seaprate Health Page but didn't think it was appropriate since we didn't write them. Let's make this a sort of "Unofficial Research Thread" or "URT" for this type of information. Let's keep this URT free of comments.
Avatar n tn I have struggled for the past 14 years with numerous debilitating health problems. I was turned down by the red cross to donate blood after testing positive for Hep C though I have none of the risk factors involved for this disease. (However, I have found in my research that I may have been infected during my military service when I was given mandatory immunizations with an air gun which was used repeatedly for mass injections without sterilization between injections - gasp!).
572651 tn?1531002957 And yes, the blood bank folks had my complete med history and they rules have been revised so MS patients can donate as long as they are ambulatory. I'm wondering if perhaps the blood donation set off some strange MS reaction - anyone out there with a clue?
Avatar f tn The only reservation that I have is perhaps the search for a cure gets diluted, when our energy-justifiably so in most cases-is directed toward symptom relief. Dr. Lowe from the Fibromyalgia Research Foundation supports the premise that most fibromyalgia patients are either hypothyroid or thyroid hormone resistant. Watch out for adrenal stress, where hypothyroidism is secondary. So please consider to Rule out hypothyroid 100%! Ask and insist for Free T3, Free T4 and reverse T3 testing!
Avatar f tn I have been diagnosed by a rheumatologist with Dercum's Disease which seems to be related to fibromyalgia, which I have also been diagnosed with for over 40 years. I have hundreds of very painful fatty tumors all over my body. They are in the adipose tissue mostly. They are in bands around my joints and rib cage and hips, ect. They seem to grow along nerve pathways. My grandparents came from Sweden. Most of the research for this disease seems to be done in Sweden.
Avatar f tn The last frontier - The brain and CNS (oh of couse not to leave out stem cell/ genetic research) I would like to put out a call to all researchers to look at some the past findings of using plasmapheresis in auto-immune disease and specifically for MS. Since the offending anti-bodies are circulating and causing a cascade immunity response with T, B and complement; wouldn't removing all antibodies (yes it seems drastic) but so is life in a wheelchair; be one of the more plausible routes?
Avatar f tn Hello bvshish759: Pain in the upper right quadrant is often associated with hemochromatosis. Have you had an iron panel done on yourself? You would be lucky to be diagnosed and treated for this condition at such a young age. Search the net for "ibs-hemochromatosis-fibromyalgia-cfids" and see where I am coming from. Or just research hemochromatosis.
Avatar f tn MOST fibromyalgia symptoms could also be caused by low magnesium levels. By absorbing it into your skin you bypass the tummy troubles oral supplements can cause and you ensure better absorption. It is a cheap EASY thing to try and what if it works??? I'll update this at 30 days on the therapy but I highly recommend reading up on this. I use DMSO (Dimethyl Sulfoxide which I will apply topically.
Avatar f tn I was wondering how many of you, who have either a fibromyalgia or Chronic Fatigue Syndrome/M.E. diagnosis works or worked in the medical field and/or have family members who are in the military... or live near a military base ?
Avatar f tn These scandals were reported by the Washington Post and other respected news sources around the country. CDC officials diverted research funds away from CFS research and misled Congress about the matter, according to the Inspector-General's report. There is good news though... as a result of these scandals, the CDC did a public awareness campaign on Chronic Fatigue Syndrome and there were commercials and even ads in magazines about this disease. (it is a disease.. IMO).
381371 tn?1201126610 this is KEY. Do your research, go to clinical specialists and naturopath doctors, take a class, read books and med journals. and gather info from other sufferers. For me, I discovered healing occurs when I stay low on the glycemic index. This isn't hard. It just requires some knowledge and a proper shopping list! The most amazingly energetic breakfast is an apple with peanut or almond butter, and diluted lemon juice water (this gets digestion going and cleanses body of toxins).
Avatar m tn Four days later they told me that I didn't have Infectious or Serum hepatitis, and they didn't know what it was so they discharged me. Twenty-seven years later in 1996 when I tried to donate blood they told me I had Hep-C. My research showed the virus was isolated in 1989 and prior to that it was diagnosed as non-specific hepatitis. Further research showed me that the incidence of hep-c in Vietnam Era veterans is five times higher that the rest of the population.
Avatar f tn I pray that research will discover what is causing this to happen to so many; finding a treatment that actually does work for those who are sick now, so that no one in the future will spend years (or even one more day) suffering. *I am 55 and have had FMS for 35 yrs. I did not receive an official diagnosis until 5 yrs. ago. I now have CFS as well.
Avatar f tn but probably by serendipity in some unrelated research project!! I believe there is an answer for everything and sometimes it may become more complicated with each new dx. And the more dx given the thicker the diagnostic fog becomes and the further away we may get from a root problem...assuming that I am making a correct assumption. Yet, we also need the validation of each dx to match up with the most helpful treatment...if there is one.. and to satisfy all the medical insurance catagories.
137025 tn?1217768341 As Kalio said, my hep doc thinks I got sick from immune system strain and adding in all the other meds which taxed my liver further. Guess everyone is different. Funny thing, I did a lot of research on Fibromyalgia and never once did I find a connection between Fibromyalgia and Hep C. Immediately when I started research on Hep C it linked to extrahepatic symptoms such as Fibromyalgia. Wish I had figured it out a long time ago.
Avatar n tn Some patients develop pain in small joints in the body (such as the hand) that may be nearly indistinguishable from symptoms of rheumatoid arthritis, fibromyalgia, or carpal tunnel syndrome.
Avatar n tn gov/ncidod/diseases/ebv.htm ) The latest research on CFS shows that many CFS patients' have been exposed to the herpes virus. CFS symptoms usually start off with abdominal pain and diarrhea, together with a persistent headache and / or vertigo, with a stiff neck and back, together with generalised myalgia, described as intense and burning. Muscles are tender to palpation and muscle spasm is not uncommon.
620923 tn?1452919248 It isn’t like she has one of the “popular” diseases, like breast cancer or HIV (not that she wants either of those mind you, but at least people know what they are). But at least those diseases get funding in Congress. Those get research grants. Those are real. Those are noticed by doctors. She has been to so many doctors she has lost count. The rheumatologist who said she has fibromyalgia. The neurologists that had her walk like a duck and touch her nose and said she was fine.
Avatar n tn i was misdiagnosed for so long-- now that i am treated by a competent endocrinologist i have a whole new life and all my symptoms are getting so much better and most of them gone. research all you can about AGHD. do not fall into the scams on HGH non-presription-- they are scams and you can only get GH by a prescription and it is injections-- once you get a doctor to run the IGF-1 ans stim tests and make a positive diagnosis. many GHD symptoms are like ALS and involve neurological symptoms.
Avatar n tn CCF-Neuro-M.D.-CS, many thanks for your advice, I hope it may help in identifying the cause of my symptoms. Mysterious Stranger, I don't generally drink diet drinks or take artificial sweetner with tea etc. As for as aspartame in other food sources, I don't really know but I will give it some thought. Many thanks for your consideration. Brice, I had never heard of RSD but had a look at the condition.
Avatar n tn if only some of the rage here directed towards fellow patients was directed to maybe e-mail bombing your local and state representatives,we might just get somewhere. A dollar towards hepc research vs. $250 towards HIV, at least in the U.S., seems a bit ridiculous. Anyway, that is my Sunday morning rambling..... Take care everybody.
Avatar n tn I also have Lupus ,fibromyalgia,rhuemotd arthritis and recently found out I have ostoeporosis badly in my hips and legs!Not to mention I have a clotting disorder and have clots frequently!Without the pain meds I am a prisoner in myself!I can hardl walk!But I know i have abused them ,How stupid ,It just got away from me!I ahve benn hospitalized this yer already 6 times!I am 30 and feel 70!I live in tx and have filed for ss a few times and of course DENIED!My docs can't understand why?!
Avatar n tn Ok im 23, Im so rare, I have like um 4 or 5 rare diseases, they say universitys would love to get there hands on me. some of these conditions are like 1 in afew million 1 in 2000 etc etc i have them all, i dont care personaly i have a pulse i breathe, a child and a family and a business...
437223 tn?1204857241 There ARE many disorders that resemble and mimcs MS. Some that come to mind are Lyme disease, ADEM, some aspects of Fibromyalgia (although memory loss is not considered a symptom of Fibro) low Vitamin B levels, etc. MS is difficult to diagnosis. Did you have any lesions show up on MRI? IF so, do you know that location of the lesions? If you current Neuro has been seeing you for a year and still does not know what is wrong, maybe it's time to find an MS Specialist.
Avatar n tn When it rains, it pours, doesn't it? I'm sorry for all of your troubles! I've been through the whole gamut of tests (MRI to check for MS, Xrays to check for tumors, EKG and echo and a 24-hour heart monitor, scores and scores of blood tests) and have ruled out a lot of issues as well. I have high cortisol levels (which would suggest an adrenal gland issue but docs didn't pursue that). The test that finally sealed the deal for me was a tilt-table. I was diagnosed with Neurocardiogenic Syncope.
489867 tn?1209210894 9 hydronephrosis Hypertension 401.
Avatar m tn i tired penicillin, benadryl, calamine lotion and aqua chi detox bath...THE ONLY THING THAT HELPED AFTER RESEARCH, WAS B12 VITAMINS...The itch is occuring in the nervous system. Try worked for me...
Avatar f tn What has this drug regime done to me really? Yes, the hep c is undetectable but I can never donate blood or major organs (even tho I'm cured...joke!) tho I have been reliably informed the little bugger hides away in the lymph somewhere. I read on here others that have similar symptoms and I wonder if we are a part of the treatment that pharmaceutically companies ignore due to profits from such a global problem. As time goes on more and more people express long term health and mental changes.
Avatar n tn I also experienced muscle burning and pain, which sounded like what I have heard people say the symptoms of fibromyalgia were like. After about 2 years and number of doctors, allergists and internal medicine doctors, who put me on zyrtec, zantac, allegra, and singulair, I still was seeing no relief. The steroids worked at first, but when they wear off the symptoms would come right back. I stopped drinking cokes, diet and regular, thinking this may help.