Fibromyalgia research association

Common Questions and Answers about Fibromyalgia research association

fibromyalgia

543346 tn?1214457488 My name is Sarah, and I was diagnosed at Mayo Clinic on Friday with Chronic Fatigue Syndrome and Fibromyalgia. I have been sick for 4 years, and had seen 22 doctors before going to Mayo. I have been working half time and have spent progressively less time doing social things with friends. I am now back in Texas and am faced with telling my friends and family about my diagnoses, while trying to let this sink in myself!
Avatar f tn ve read numerous books, I belong to the National Fibromyalgia Network, The Fibromyalgia Association, and follow the latest research on many aspects of FM. These include, medical and pharmaceutical research. There is NO evidence that people with FM have brains that age faster. There is a neurological aspect to FM that can affect our brains. Our neurotransmitters may not be firing right to put it simply. Depression which is previlant in FM sufferers can cause memory lapse.
937868 tn?1570328281 For instance, the increased prevalence of fibromyalgia in women suggests a hormonal influence. This association is strengthened by observations that women who have fibromyalgia are much more likely to have late onset of menstruation and lower fertility rates than women without fibromyalgia.
Avatar f tn http://www.medhelp.org/health_pages/Fibromyalgia/The-Latest-Research-on-Fibromyalgia/show/520?cid=39 Be sure to keep checking for more information.... some of the research is posted on a research website for mostly medical professionals. It is the best way to stay informed and make sure that your physician is informed.
Avatar f tn t believe there is any association with MVP and the other conditions. Many people who have fibromyalgia also may have chronic fatigue syndrome. For more details on the subject of interest I am providing a link. Thanks for your question. http://www.medhelp.
Avatar n tn There is no mention in any significant source about association of Benign Fasciculation Syndrome (BFS) and Fibromyalgia. There may be a possibility though, as some authorities claim a viral etiology (cause) for both these conditions. Hope you feel better soon!
Avatar m tn stress, anxiety, fibromyalgia, phycological trauma Rationale: after years of research I concluded that the causes described earlier may trigger two main types of conditions: depression OR chronic random pain.
Avatar f tn is there a research group one could participate with, study and analyze past, present and future findidngs/options? i have been outbreak free for years and am almost certain i recently had my first outbreak in january - and they won't stop. i think the following has provoked the virus, as well as disable the latency stage: a. i took a strong proton pump inhibitor in january for my gerd - within a week i had a broken tail bone and rash of blisters across the bottom of my back.
Avatar f tn I have had Fibromyalgia & Chronic Fatigue Immunodysfunction for 20 years. For me a 60 to 80 mg of Depo-Medrol (steroid) does help. (up to 2 times per year and only when I am REALLY bad.) I've heard that Lyrica is very good for fibro. patients but I personally cannot take it as I get the bad side affects. He also had me do a SLEEP STUDY 2 months ago. I have mild sleep apnea & now use a C-Pap at night which I love.
Avatar f tn 8 times more likely to report that they had the soft tissue syndrome, fibromyalgia. This association remained statistically significant after taking into account other factors including whether women thought their implants were ruptured, implant age, and implant manufacturer. Fibromyalgia is a syndrome characterized by widespread pain, fatigue, and sleep disturbance. Women with MRI-diagnosed extracapsular silicone gel were 2.
Avatar m tn I found this new research by Dr. Catherine M.Pittman - one of the foremost brain researchers in the country, to be interesting. We are finding through both animal and human research that the medication class of benzodiazepines may actually prevent learning, both neuronal and cognitive and may prevent long term anxiety recovery. Our work has shown that the neuronal process for learning and also the process for unlearning (called extinction) is slowed or prevented by this class of medications.
329994 tn?1301663248 Chronic Fatigue Syndrome has been proven to be a very real illness. There are actually a couple of tests that can make the diagnosis and at least one of those tests should be available soon. CFS affects your nervous, immune and endocrine systems. Some of the research on CFS has been quite unexpected... for instance, we have clotting problems and diastolic cardiomyopathy... two things that aren't seen in any other illness. As far as fibromyalgia, there is research out there....
217229 tn?1192762404 The objective was to determine whether there might be an association between hepatitis C virus (HCV) chronic infection and fibromyalgia (FM). We determined the prevalence of HCV infection in 112 FM patients, in comparison with matched rheumatoid arthritis (RA) patients from the out-patient clinic of a teaching tertiary care general hospital.
Avatar n tn Fibromyalgia can last forever. There are treatments and even possible cures out there (research protocols). Fatigue, dizziness and so many other symptoms are common in fibro patients and in fact, 29% of fibro patients have a positive ANA titer. I hope that you will consider joining us on MedHelp's fibro/CFS board. I'm the Community Leader there.
Avatar f tn t a vaccination treatment 2 years or less before developing the condition. I am focussing on conducting a thorough research amongs all the sufferers. It is too often that just a sample population is included. I am closely related to too many peeople this happened to. They include close friends, family members and other community members. Due to the diversity I've encountered, it doesn't point out to genetics.
Avatar f tn Woo hoo ! Its nice to see that you've been keeping up to date on that. This is something that is VERY important and I hope other CFS'ers here know about what Dr. Reeves, and the CDC for that matter, have done to us. One of the CDC's embarrassing scandals was published in the Washington Post. The CDC tried to make up for it by having their Public Awareness Campaign, but they are now up to their old tricks again. Dr. William Reeves should be fired.
Avatar m tn Hi I am pretty for sure I have Fibromyalgia some of my symptoms include Soar and stiff muscles in my legs and I just have a Flu like feeling all the time and also the pressure points you have. I have those also. Does this sound like Fibromyalgia to you.
554442 tn?1221235225 Great fibro info ! Here is what Dr. Mark Shaw (author of "Beat Fibromyalgia and Fatigue") says about the possible triggers. I know I read the actual research study on this as well: Fibromyalgia/CFS can be caused by a whole range of factors. All of which, it is most likely your doctor or practitioner will not be able to diagnose.
Avatar f tn I have had several doctor friends (one a DO, an orthopidist and even the nuero I have seen) tell me that Fibromyalgia is not a diagnoses. Because there is no test that proves that that is what you have or even tells you what the cause is from. And that after that diagnoses is made other doctors will not treat pain as any thing other than that when it could be something, but they just tend not to look.
Avatar f tn Why is it that insurance companies don't understand fibromyalgia? I paid in Short Term/Long Term disability insurance at work. But after a 10 month wait while they evaluated my condition, they refused to pay me stating that Fibromyalgia was not a disability. If they ever actually had Fibro maybe they would understand. I don't know where to go from here.
329994 tn?1301663248 The regular labs do not test for the type of mycoplama we have (there are various species), so if you have CFS... it is crucial to do your research on this often disabling condition. Here are some links that you might be interested in. I hope that you will stick around. There are more people with CFS in this country than MS and 80% of them are still undiagnosed. = ( http://www.immed.org/ ---- click on "fatigue illness research".
Avatar f tn Since we have conditions that are relatively new and often misunderstood in the medical field, there are many members here who do their research and share that information with the other members.