Fibromyalgia research association

Common Questions and Answers about Fibromyalgia research association


1550149 tn?1340004330 Low levels are associated with impaired thinking, lack of energy, muscle weakness, and intolerance to cold. In a 2003 study, however, there was no association between IGF levels and fibromyalgia. Researchers in the study noted that lower levels of IGF also occur with aging and obesity, which must be factored in when studying its role in fibromyalgia. Nevertheless, severe growth hormone deficiency, which may be treatable, has been observed in a subset of fibromyalgia patients.
Avatar n tn this has longgggg bothered me that AIDS research is getting the lions share of research money. please sign your name to do some HCV activism. Dear FAIR Foundation Members, Please forward this new Op-Ed on to the editor of your local newspaper (other media also if you have time) after deleting this red text and adding the text required with your name, etc. below.
2126606 tn?1346348724 This Saturday, May 12, is National Fibromyalgia Awareness Day, so it’s a perfect time to talk about fibromyalgia as it relates to opiate use. Over the past few years we’ve seen an increased number of fibromyalgia patients that have started receiving prescriptions for painkillers to address their chronic pain symptoms. As a Registered Addiction Specialist, this is extremely concerning to me especially at a time when we are also seeing prescription painkiller use exploding nationwide.
Avatar f tn I'm also curious if there is a link between tooth decay and fibromyalgia. I take excellent care of my teeth and haven't had cavities prior to the fibromyalgia.
1534024 tn?1294249675 I do take a multivitamin, fish oil, and evening primrose oil (to help with severe PMS symptoms that I get once a month) Is this all in my head, anxiety, or something else like fibromyalgia? Any ideas of what this may be and how I can treat it?
Avatar f tn I have had several doctor friends (one a DO, an orthopidist and even the nuero I have seen) tell me that Fibromyalgia is not a diagnoses. Because there is no test that proves that that is what you have or even tells you what the cause is from. And that after that diagnoses is made other doctors will not treat pain as any thing other than that when it could be something, but they just tend not to look.
209591 tn?1267418314 In association with the diarrhea, nausea and vomiting I also became dehydrated, to the point my doctor threatened to put me in the hospital and push fluids. After informing him of my fear of hospitals, he put me on Levsin Sublingually and a liquid diet. For the first few days after the script, I was still unable to keep liquids down, nor the Jello I would eat. My blood pressure also sky rocketed and has yet decreased, staying above 140/95 sometimes as high as 160/100 with a pulse of 123.
Avatar m tn If we could just seperate the blood disease from the stigma of being somehow 'dirty', maybe then we would see some real research. Like AIDS was considered a 'life style' disease and so much time was wasted on 'life style' issues instead of the AIDS virus. Now AIDS is a pandemic disease that is mostly sexually transmitted in Africa. As long as hep c is considered a junkie disease, the sufferers will not see an effort to rid out country of it.
Avatar m tn Brain Imaging Study Sheds Light on Fibromyalgia Link found between gray matter and dopamine levels in patients (HealthDay News) -- Changes in the levels of the neurotransmitter dopamine may explain brain gray matter reductions experienced by patients with fibromyalgia, a new study suggests. Previous research found an association between fibromyalgia and reductions in gray matter, but the cause wasn't known, the researchers wrote. In this new study, Dr. Patrick B.
Avatar f tn I have had Fibromyalgia & Chronic Fatigue Immunodysfunction for 20 years. For me a 60 to 80 mg of Depo-Medrol (steroid) does help. (up to 2 times per year and only when I am REALLY bad.) I've heard that Lyrica is very good for fibro. patients but I personally cannot take it as I get the bad side affects. He also had me do a SLEEP STUDY 2 months ago. I have mild sleep apnea & now use a C-Pap at night which I love.
Avatar f tn In my opinion (and based off the research and facts), his opinion is nothing but that. Perhaps your brother-in-law should check out the latest fibromyalgia research at or my website (listed in my profile) and/or read Dr. Garth Nicholson's reports about mycoplasmas and fibromyalgia.
1852058 tn?1320162300 I had every Lyme and tick test there was through local labs and all were negative. I went to 2 Rheumatologists, 2 FM specialists who are speakers for The Fibromyalgia Association and professors at a highly accredited Univ., 2 General Practicioners and a Neurologist. All concurred that I have Fibromyalgia. After years of suffering and a test, early on for EBV testing positive we chalked my FM up to that. Then came the test for Mycoplasma a friend on here suggested...results Positive.
7356842 tn?1405621443 ---BioMed Central Limited (2013, March 15). Alcohol, fibromyalgia, and quality of life. Association between alcohol consumption and symptom severity and quality of life in patients with fibromyalgia. Arthritis Research & Therapy, 2013; 15 (2): R42 DOI: 10.1186/ar4200 --Winfried Häuser, Gerard Urrútia, Sera Tort, Nurcan Üçeyler, Brian Walitt. Serotonin and noradrenaline reuptake inhibitors (SNRIs) for fibromyalgia syndrome. Cochrane Database of Systematic Reviews, 2013, Issue 1. Art. No.
Avatar f tn Kim McCleary, who is the President and CEO of the CFIDS Association of America, effectively called for Dr. Reeves ouster as head of the CDC's CFS research program. This was after a 2 year investigation that had embarrassing results and tax dollars that were being wasted (my opinion). Check out the story: And more importantly... remember to get involved. We need you to voice your opinion.
937868 tn?1570331881 For instance, the increased prevalence of fibromyalgia in women suggests a hormonal influence. This association is strengthened by observations that women who have fibromyalgia are much more likely to have late onset of menstruation and lower fertility rates than women without fibromyalgia.
181575 tn?1250202386 I am reposting articles / summaries on the treatment management of chronic HepB. "cajim" located these articles which are quite informative. I thought about putting them on a seaprate Health Page but didn't think it was appropriate since we didn't write them. Let's make this a sort of "Unofficial Research Thread" or "URT" for this type of information. Let's keep this URT free of comments.
242516 tn?1368227505 Three separate federal cases denied any association between vaccines and autism, according to rulings on Feb 12, 2009. I pray that these rulings reassure parents who limit vaccination of their children, since decreasing rates of vaccination have led to U.S. outbreaks and preventable deaths from measles and Haemophilus influenzae type b. http://www.uscfc.uscourts.
Avatar n tn Fibromyalgia Network PO Box 31750 Tucson, Arizona 85751 National Fibromyalgia Research Association PO Box 3000 Salem, Oregon 97302 The Arthritis Foundation 1330 W Peachtree St Atlanta, Georgia 30309 National Institute of Arthritis, Musculoskeletal, and Skin Diseases (web site: Followup with your personal physician is essential.
Avatar f tn I am not certain how to ask my question. I had been told i had fibromyalgia for years and experienced the muscle fatigue, pain and worst the spasms. Now i have been told I never had fibro but that it has been MS all along. The muscle spasm and pain that i had experienced and defined as fibro comes with repetitive movements and certain tasks~~for whatever reason, standing at the sink handwashing dishes sets off a spasm in my right mid back area. Is this considered a typical MS experience?
Avatar m tn stress, anxiety, fibromyalgia, phycological trauma Rationale: after years of research I concluded that the causes described earlier may trigger two main types of conditions: depression OR chronic random pain.
217229 tn?1192766004 Some researchers suspect that viral illness could be a trigger, for both fibromyalgia and a similar condition called chronic fatigue syndrome. Research has shown that a subset of people who get Lyme disease, parvovirus, or Epstein-Barr virus—which causes mononucleosis—may later go on to develop one or the other.
1741471 tn?1407162630 That is why I was not surprised when in the Alzheimer’s Association International Conference in Vancouver, Canada one of the main lines of research is concentrating on how we age and move. Changes in gait, loss of balance, clumsy coordination are all symptoms that we tend to associate with old age until now when researchers in Alzheimer are seeing how this extremely important changes can lead to early diagnosis and effective treatment.
543346 tn?1214461088 My name is Sarah, and I was diagnosed at Mayo Clinic on Friday with Chronic Fatigue Syndrome and Fibromyalgia. I have been sick for 4 years, and had seen 22 doctors before going to Mayo. I have been working half time and have spent progressively less time doing social things with friends. I am now back in Texas and am faced with telling my friends and family about my diagnoses, while trying to let this sink in myself!
Avatar n tn Since I found this site and have read much more on the subject, I came across info from a popular search engine at the NFRA (National Fibromyalgia Research Association) which have a Comparable Symtoms Chart for Fibromyalgia / CFS - Chari Malformation - Cervical Spinal Cord Compression. After using this chart, I have great suspiciousions I may have both Fibro/CFS and Chiari Malformation. I will go with printed info to my Dr. next week. Thanks for the insight.
Avatar f tn
Avatar n tn I was recently tested for Lyme Disease but only know a bit about it from my discussions with my doctor and online research. I'm assuming your wife had a positive western blot to confirm the original diagnosis? Did she get a second opinion from a lyme friendly doctor? The Lyme Disease Association keeps a database of these it might be worth checking. Lyme symptoms mimic many others. If antibiotics haven't helped, it seems like it might be good for her to be screened for other possibilities.
Avatar f tn I have FM for over 12 years now, I've read numerous books, I belong to the National Fibromyalgia Network, The Fibromyalgia Association, and follow the latest research on many aspects of FM. These include, medical and pharmaceutical research. There is NO evidence that people with FM have brains that age faster. There is a neurological aspect to FM that can affect our brains. Our neurotransmitters may not be firing right to put it simply.
Avatar f tn not leading to symptoms, even if headaches are present. The association between Chiari malformation and fibromyalgia is well established, though not well understood. In pregnancy, a variety of disorders including headache improve. This is thought to possibly result from hormonal changes. Whether or not your headaches will recur will depend on the type of headache you had.
559187 tn?1330786456 I was so happy to get all the records as I want to be prepared for my wrap-up with the research neurologist and ask intelligent questions, hopefully. Well, all that excitement had to wait as I was too tired to deal with it. I got home and didn't really feel up to looking at the nicely arranged paperwork. Instead I went to bed and slept the whole afternoon. Now that I am up and feeling more energetic I decided to finally take a look.
Avatar f tn Woo hoo ! Its nice to see that you've been keeping up to date on that. This is something that is VERY important and I hope other CFS'ers here know about what Dr. Reeves, and the CDC for that matter, have done to us. One of the CDC's embarrassing scandals was published in the Washington Post. The CDC tried to make up for it by having their Public Awareness Campaign, but they are now up to their old tricks again. Dr. William Reeves should be fired.