ll be happy to share my experiences. There is also a Gilenya support group on Facebook if you want to check it out. They welcome people who are not yet on the drug as well as you can get a sense of others' extperiences by just reading the posts.
All you have to do is put Gilenya Users Support Group in the facebook search and it will come right up.
Good-luck with your decision.
There's a great Gilenya support group on Facebook. People are on there that have been on G for many years. It's a very helpful group with lots of experience between all the members. You can post questions there too.
Hi, I have been taking Avonex for 6 yrs on and off. I stopped for 2 yrs when I had my third child and have been back on it for the past 2 1/2 yrs straight. I was diagnosed in 2005 and have been fortunate to have little to no changes in my MRIs. That is until I recently experienced vertigo which triggered an order for some MRIs. I have a new active lesion in my brain and one in my spine. My doctor thinks tysabri would be a great next choice.
I am going to the NMSS support group there and another online MSers, Sue, is also coming along to meet in person. Join us!! Not the most exciting night but get out of the house and get someplace positive... We are looking to put together a meetup group in our area for more activities - lunches, shopping, hobbies, etc.; and to help people find friends for trying things like yoga, pilates, etc but not wanting to go alone.
Please think about joining us, think it might be good for you...
I'm a graduate student in bioethics, and I'm researching MS support services like MS Lifelines, Shared Solutions, etc. I'm interested in speaking with people who have had experiences with these services -- in particular the nurse hotlines and the peers/mentors/ambassadors. If you've had any experiences with these services and would be willing to discuss them with me, I'd be really grateful for your help. Thanks very much.
I had forgotten that Plegridy even exists, so I looked it up for more info. Turns out it is made by Biogen Idec, who also make and market Avonex and Tysabri. It is a kind of interferon, and is administered via injection every two weeks. The doses are stepped up, with full levels reached after several weeks.
Hi I am new to MS. My doctor prescribed Avonex. I have little to no drug insurance. I went to a site which offered discount coupons. I called them to ask them if this is a come on price or is this within reason the price every month. They would not give me an ansewr. Does someone here have any experience with this?
I saw someone recently presented the idea to start a smoking support group for pregnant moms who are having a hard time kicking the habit. I think that's a good idea. I am 21 weeks and smoke one cigarette a day to one every to or three. it's getting a little easier but when I gt upset it's still my go too. I used to smoke a pack every two days before I found out I was pregnanat at 4 weeks so considering that I think im doing well.
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